Merry Christmas to all. I was diagnosed with COAD over 20 years ago whilst living in South Africa. Teatment with inhalers. Over the years my condition has deteriorated and find that I dont seem to get much in the way of help or information from my GP. I Have had a couple of pneumothorax in the last couple of years. The last one ended with a procedure to introduce Talc to glue it all together.
At the moment I get short of breath easliy, while getting dressed, washing, occationally when walking from one room to another and it feels as though I am being strangled also pains in the chest. My GP says well you have COPD what else do you expect. That does not help me. I know excercise will make me breathless but why is it painful, is that normal? I have a motability car and this year I found that on a nice summers day I could go for a reide but at the other end I could not walk far enough to even go for a cuppa. I got a replacement car a few days ago with a hoist and a scooter to enable me to get out of the house to try and get a life. The first time I tried it all out I got the scooter out of the car great but when I returned I could not position the scooter in the right spot to attach the hoist. Needless to say after a few seconds I could not get air, I was trying to do breathing excercise and I was just doubled over in pain. Luckily a passer by saw my distress and helped get th e scooter into the car. After sitting for a while I could drive home. Why the pain. At times I wonder is it worth it no quality of life at all.