just not sure

[Dion3844o1]

hi I'm back to see the specialist next week not before time last time was july cause I was in hospital and then may every other week its the drs and I'm imunne to them antibiotics I'm sure of it ,even the steroids work while I'm on then then back to square 1 in all fairness I don't think the infection ever really goes but I'm wondering when I was in hospital for 6 days in july there was talk of me going to leeds to have some treatment to see a specialist then it September I rung the sectary to see what was happening I received a letter saying when I come for my appointment it will be discusted well why? if I'm not responding to any treatment so what next I appreciate theres people worse than me but I feel let down I'm getting to grips with what I have and slowly learning about it and what it does and can do but even when ive asked the specialist I feel hes not telling me everything roll on next week this is an appointment il look forward to can anybody shed light on there experiences I no everyones different but I just don't no if I'm coming or going thankyou in advance.

[Kristicats]

Just write down exactly what you want to know and the things that have been said to you that you want explaining . Give the notes to the consultant and ask him to jot the answers down as he’s telling you as you can take it in better at home because of feeling rushed at the hospital????