I wrote to my MP yesterday about this. It felt good!!!
Perhaps you've already done it? If you scroll down the page you'll see a link about mailing your MP. Let's hope I get a response!!😀
Battle for Breath BFL Campaign - Lung Conditions C...
Battle for Breath BFL Campaign
Written by
GeorginaS
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68 Replies
•
Done! Please everybody take a couple of minutes to do this.
GeorginaS• in reply to
Yah! Great 😀x
• in reply to
Thanks Hidden !!
Done. It's really important.
• in reply toWatfordgirl
Thank you Watfordgirl 
Watfordgirl• in reply to
You're welcome, Ben. I'm surprised BLF haven't emailed everyone on their email list asking for support. I didn't know about it till I read GeorginaS's post.
Have a good day.
• in reply toWatfordgirl
From what I remember (and my memory is a bit hazy today!) an email was sent out a few weeks ago when it was launched, but I agree, the more awareness we can raise, the better!
Have a good day too
• in reply to
Hi Ben, I never received an email about it so maybe it's time to head to the mailing list again.
• in reply to
Thanks for this - I'll mention this to our team who put the emails together
• in reply to
thanks Ben. As you probably know, I have bronchiectasis, for far too long one of the orphans of lung problems. The failure of successive governments to address all lung conditions because they are not 'sexy' or deeply emotive like cancer or have powerful people to speak for us is a disgrace. The only way that we will get our voices heard and hopefully shame them into taking action is for all of us exhausted, debilitated, feisty characters to stand up and SHOUT together! Go for it BLF. You carry the banner and we will march, stagger, drag ourselves behind you.
Katinka46• in reply to
If bronchiectasis is the orphan of lung diseases then OB the orphan of an orphan. OB? Did I hear you ask? Quite....
bpold.co.uk/condition04.php am i going in the right direction Katinka?x
Close but me and the others here have the "grown-up" version. Fibrotic strangling of the bronchioles. Caused by damage. Some here have it as a result of autoimmune disease, RA and Lupus. Mine seems to be "purely" fibrotic, ie no inflammation, hence no medication. ☹️
i just knew you would be in the 'grown up' sector.(smiley thing)Having worked in the communications industry where fibre and optics where the buzz words and after Cecilia's demise and meeting nice people like yourself suffering i am beginning to hate the word 'fibre' grrr........ski
• in reply toKatinka46
I said that bronch is One of the orphans of lung conditions. I am well aware that OB, IPF and many other conditions are treated just as badly. This is why we need to stick together and make our voices heard.Please read my posts properly and don't get cross with me. I'm on your side.
GeorginaS• in reply to
Littlepom... I've changed the words to reflect our situations... All we need now is Paul McCartney and lots of voices to sing.
Any volunteers?
We could be number 1 in the charts by Christmas! Here's my version!
"We All Stand Together"
Win Or Lose, Sink Or Swim
One Thing Is Certain We'll Never Give In
Side By Side, Hand In Hand
We All Stand Together
Play The Game, Fight The Fight
But What's The Point it's to breath just right!
Arm In Arm, Hand In Hand
We All Stand Together
Keeping Us Calm In Our Fight
La La La La
Wake In The Night
We'll Get It Right
Win Or Lose, Sink Or Swim
One Thing Is Certain We'll Never Give In
Side By Side, Hand In Hand
We All Stand Together
• in reply toGeorginaS
maybe Paul might be persuaded to help us re release it in this form to raise the profile.
• in reply to
If you could see me now Hidden I've just done a standing ovation in front of my PC
Totally agree with your post, thank you for this.
• in reply to
I didn't get one either.
Great x
Thank you GeorginaS !!
If you do get a response, please do forward it to our campaigns team at press@blf.org.uk
Thanks for your support,
Ben
BLF Admin
GeorginaS• in reply to
Will do x
This was on BLF Facebook page a few weeks ago, I did it and shared it with a Facebook group I belong too.
• in reply toNottobad
Thanks Nottobad !
Just sent. I edited it a bit as I know our MP quite well having campaigned for her in the GE (first Labour MP in Canterbury for over 100 years). She's also now sitting on the Women and Equalities Select Committee and lung disease is an equalities issue for sure, if not specifically relating to women.
I already did it when my story about working went live as part of the campaign. But all I had back from my MP was a meaningless reply written by one of his minions, but I tried.
So, who has Paul McCartney's email address?
PentreathVolunteer
Done!
PentreathVolunteer
Done! Guess I'll get a standard response from my MP.
Done, let's hope it does some good. Xx
Wow! What a wonderful response. Thank you x
Good one, done it.
Thank you for the opportunity to sign and spread the word.
Done.
Great 😀
I'm willing to help out but it tells me can't find my zip code. I'm assuming it's because I live in the states. I'd be happy to donate.
Hi, it's not a fund raising it's a campaign to parliament so UK citizens only.
Ok...put a tick against my name, done! Good one Hidden !!
Excellent. Lots of people have joined in 😀
Done let's see what MPs reply have a blessed day
Thank you x
Just sent this to my MP & posted on Facebook. Hopefully by friends will do likewise.
Done! Let's see if Nicky Morgan will reply 🤔
Done in just 2 minutes
DONE
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