Anyone with a diagnosis of bronchielactasis?

[peace2all]

I'm from the US and my father in law was told he might have this diagnosis. We're not familiar with this disease. Can anyone give some insight as to what to expect please. Thank you.

I'm new to this community but am also a part of the PSP community.

[sassy59]

Someone will be on soon peace2all and welcome to you. Xxxx

[Mandy6513]

I have this but my knowledge of it is very limited....I know its a widening of the airways and due to this the tiny hairs cant move the mucus around so we are prone to infection so its important to move the mucus ourselves......Its also known as none cf bronchiectasis

There are quite a few member who have this who will be able to explain it much better but here is a link

patient.info/doctor/bronchi...

[peace2all in reply to Mandy6513]

Thank you. Someone posted a link to a chss.org website that was quite helpful. I will click on your link as well. Thank you!

[cofdrop-UK in reply to peace2all]

It was Hanne I believe who put the link up for CHSS Living with Bronchiectasiss. It is about 4 years old now but, on a vote amongst people with bronchiectasis, it was voted the best and most comprehensive information available at the moment.

I wish your father-in-law well and I hope you find the answers you are looking for. Anything specific please don't hesititate to ask. There is usually someone around who can help.

Love your name btw.

love cx

[peace2all in reply to cofdrop-UK]

Thank you

[Louisiana]

I was diagnosed with Emphysema years ago, but the last couple of years I have been diagnosed with Bronchiectasis as well. I was constantly having anti-biotics before the Bronchiectasis diagnosis as it was thought I had chest infections all the time. Since my Consultant sorted things out and since the diagnosis that I have both, I have learned that my coughing is due to the fact I must bring up the mucus. It doesn't necessarily mean I am infected. But, if you don't cough up the mucus you can be infected...Oh dear, I am rambling, but do tell your father-in-law that it is essential he try to remove the mucus. Not nice having to cough, cough ,and spit, etc....but it's needed. I tend to stay close to home now as I hate being in public on a bad day. Some days I don't cough at all, which is wonderful Good luck to your father in law.

[peace2all]

Thank you...I will give him the information. Hope you have more good days than bad. Blessings

[Katinka46]

Good evening peace2all. (Sudden thought, it won't be evening for you, will it?)

Just a query: there is a condition called bronchiectasis which several members here do have but there also a condition bronchiolectasis, which is the same condition but it happens in the small airways rather than the larger ones. In terms of understanding what it is it may not make much difference but the treatment may well be different. Do you know which one it is? And a little bit of history may help. When/how it was diagnosed, how long it has been going on

Just looked up PSP. That sounds difficult to cope with. I'm sorry you have this to deal with as well.

All the best

K

[peace2all in reply to Katinka46]

It's bronchiectasis and he still has a CT to do this coming week. He also has an immunodeficiency disorder. He does a biweekly infusion for this which he may have to go to weekly again. He's had a cough that doesn't want to go away; started 2 months ago and has been tired and somewhat out of breath.

The PSP was my mother. She passed away in March but I still go on the PSP community site to provide information to those new to the disease. It can be frustrating not knowing what to expect or how to help. Thank you for responding.

[freefaller in reply to peace2all]

This is how my Bronchiectasis starts with a cough that just didn't go away. The main thing is to move the mucus. You can look up breathing exercises for doing this or he may be referred to a respiratory physiotherapist. The CT is probably to show where the Bronchiectasis is and how much of the lung/lungs are affected.

[Hidden]

Hello peace2all, and a warm welcome to you.

I have copd so know very little that I am able to help your father in law with, but I have found a little information on the NHS site which may be of interest. I hope you will soon get the answers you are looking for and I wish your father in law, and you, all the best for the future.

nhs.uk/Conditions/Bronchiec...

x

[peace2all in reply to Hidden]

Thank you