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Pulmony fibrosis.

Gailkings profile image
6 Replies

I'm new. I've recently being diagnosed with PF and just wondered if it's best to rest & not do anything that makes me out of breath or do I push myself each day. Go out, do what I can without over doing it too much. I just don't know which is best!! X

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Gailkings profile image
Gailkings
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6 Replies

Do what you can and do not nures it what you cant do one day you can allways do it the next good luck

sibkev profile image
sibkev

i had that pal the worst thing you can do is rest the more you walk etc the less it will invade ya life try to do 2 mile a day i wish i had done more i ended up with transplant and all is well now but i train like hell . the more you streach ya lungs the better

Gailkings profile image
Gailkings in reply to sibkev

Thanks. I have been nursing it I think. If I have a bad day I stay in for the next week trying to recover. I have a small flat & walking around just trying to do the simple things has me out of breath. My poor hanging baskets have died because I just haven't been able to water them. I will try & walk more but to be honest I'm so out of breath it's going to be hard but thanks for advice. X

imelda16 profile image
imelda16

Ask your Doctor to refer you to pulmonary rehab they are trained to show the best way to breathe and how much exercise to take the class is usually run local to where you live plus you get to talk to others. I have the same and found one of these courses quite helpful. And of course this group are great for responding when you feel down just keep in touch.

Gailkings profile image
Gailkings in reply to imelda16

I'm seeing respiratory team on Thursday. I will ask about it then. Thank you. X

tmichl10 profile image
tmichl10

Thank you all so much for the support and great advice!

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