Nsip/ipf

[richardw26071966]

Hello I have just decided to ask for help been struggling with getting specific answers from doc's been told I have nsip with emphysema and went to see pulmonary nurse today about rehab. Now she said I have ipf are these the same thing im so confused thanks for any help

[stone-UK]

Hi

IPF and Emphysema are to different conditions

nhs.uk/conditions/pulmonary...

nhs.uk/conditions/chronic-o...

[richardw26071966 in reply to stone-UK]

Sorry should have been more specific are ipf and nsip the same thing thanks

[stone-UK in reply to richardw26071966]

Hi

Nsip

Nonspecific Interstitial Pneumonia.

Is a separate condition. " Pneumonia" which is common among people with lung conditions.

Reason for the Pneumonia jab, although it can't cover all strains.

[imelda16]

I have the same as you and IPF when I asked what it meant the specialist Respitary Nurse told me a team of around 8 professional staff look at all the tests , scans etc of your lungs and make the diagnosis of IPF which means no known cause for the scarring. I have never had pneumonia to my knowledge and the consultant said it could be anything such as environment, allergies something in your body that keeps damaging the lungs which there is no cure. Hope you get your answers Richard. On the bright side ask about the latest drugs there trying and new ones in a couple of years.

[richardw26071966 in reply to imelda16]

Thanks I will keep pestering for answers and prognosis 

[Offcut]

I am having similar issues I have multiple condition and they effect me in different ways.  I have been told I have emphysema and fibrosis which was due to a major infection that meant bleeding in my lungs leaving the scars and restrictive lung issues.  I get bouts of pneumonia even though I have the jab every 5 years.  One of my GP's summed it up by saying all in all you have crap lungs which they need to decide what condition is the most important and work back from that?