Hi, has anyone been able to claim PIP with COPD? xx
PIP: Hi, has anyone been able to claim... - Lung Conditions C...
PIP
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Hi
There are several members who have claimed DLD/PIP who also have COPD, it is not the condition but how you are affected by that condition, interms of mobility and or care needs.
Complete the online form on the Gov web site, it will give you a general idea.
I would also contact your local CAB office for further advice.
I got PIP because of the effect COPD has on my ability to manage my daily life. I am stage 4 and on oxygen 24/7 but many folk get it with less The best advise I was given was to have a welfare rights worker help me to fill the form in. Hope all goes well well for you,
Anne
Good advise .
Hi 👋 hope you don't mind me commenting but I already wrote on this blog scroll down . Spelling is wrong odd places . But I. Was trying to make a point like yourself you should off been awarded as it's like admin mentioned it's not just copd. Ondition its hai it disables you . I was saying how do people cheer 👏🏻 When they do get the pip as they deserve it & we shouldn't have to fight for it as frustration emotional states disable us more as it impacts on breathing especially if you have infection .please read my comment below as I say we shouldn't have to deteriorate be at deaths door 🚪 before awarded pip . Ridiculous frustrating that the mountains we crnt climb but we have to half dead or not to receive what you rightfully entitled to . AnywY Let's hope you do succeed good luck all the best 🌈 rainbow from Bernadette
Its hit and miss. I HAVE COPD and other illnesses but got turned down for PIP yet I know people like me got it.I'm sure it's who deals with your application and what sort of mood they're in.
Biddy_ALUKPartnerBritish Lung Foundation
Morning Cazz60,
If you have any condition that effects your mobility and hinders your ability to manage your personal care, then it's worth putting in a claim for PIP.
Give me a call on the BLF Helpline, 03000 030 555, and we can discuss it further.
Best,
Biddy
Great to see admin involving themselves on the forum in that way
We're just at the end of the phone for any enquiry Mandy6513, Mon-Fri 9-5pm.
Regards,
Biddy
Yeah im aware of that Biddy but its nice to see you guys interacting on the forum
Hi Biddy great to see you what I would like is for all MPS to understand COPD and I think all people with COPD automatically awarded PIP. I feel a annual lung function test should be all the evidence they need.
in reply to Biddy_ALUK
Hi Biddy, I have just sent my forms in last week to try claim pip for the second time, i was turned down last yr September, I also took the case to the tribunal and got nowhere, I have other illnesses OA in both hips, Asthma, grade 3 COPD and now depression, the health professional that came to my house and done the assessment said on her report that I should be awarded mobility low level and be assessed in a yrs time, i saw the report myself, but the decision maker said no to my claim who has never even met me, so really what is the point in wasting tax payers money appointing health professionals to assess you but don't go on what they say,
karen x
Hi Cazz60, the benefits system is certainly exhausting and frustrating, your experience is testament to that.
Did you get help with completing the application forms from anyone? This can often make a difference to the application, although I appreciate not always. In our experience, assistance from an agency, CAB or Age UK for example, can make a difference, simply because these agencies are familiar with the terminology it's advantageous to use. They can also give advice and support at appeals and tribunals.
Even if you didn't have help with the application, these agencies may still be able to support you if you need it further down the application process.
I know it can be tiresome and very unfair and the system can make you feel angry and despondent but our advice is, if you believe you have a genuine case for a claim, keep trying.
Please let me know how you get on, and don't hesitate to contact me if you've got any questions.
Best regards,
Biddy
It's not to do with the COPD. I've had it all my life but was denied PIP because they told me that immobility comes with age. So if you're able to wash and dress yourself etc., and are over 60 - forget it. You have to apply before pension age or you don't qualify - no matter how much you may need it!
That is unfair
x x x
Hi Nikkers you say it a waste of time if your pension age. But im 61 and my pension age has moved to 65 so surly I can apply?? x
When you fill in the forms remember how difficult it is for you to manage doing normal every day tasks when you are feeling your worst.Hope you have a successful claim, huff 😆
Are things like PIP & blue badge deteminations based on how you are at best, at worst or just when they happen to see you?
If you are over pension age and not eligible for PIP then you can try for Attendance Allowance. Good luck x
I have severe COPD, I claimed ESA and was put into Support Group, claimed PIP and got the higher rate of both mobility and daily living component.
Definitely worth claiming.
I am 63, I claimed pip and I was given Standard mobility higher daily living allowance and then put on to EESA Support group.
Some days its easy going other days can hardly get up the stairs always tired to point of just clunk asleep..
I have chronic pain in left arm lower back and both legs, I have a right wrist complete fusion and like many others Acid reflux.
The reason I have blabbed on about the ( ailments ) is it doesn't matter a jot about having the diseases, What matters is how these diseases affect your daily quality of life..
I went to an advisor to help me fill the forms in, I was shocked at the number of questions I said "yes that`s me!! "
At the EESA Assessment, I was about an hour waiting to see the interviewer and literally 10 Minuets Half of which were trying to walk to the room which was 10 meters away.
The Guy said, " I`m not going to hold you back sir, I have observed all I need to see while you were in the waiting area and walking to the interview room.
I have all your medical notes and hospital admissions.. go home and rest..
Do get help to fill the form in, it is hard to fill it in for yourself as how shocked I was at the number of questions I say " that`s me " to.
If I had filled it in myself I would swither and say " I`m not that bad "
Regards.
Tom.
I've just been awarded full PIP but also have a DS1500 form that states without a double lung transplant I only have a short time to live (been told around Christmas time)
Devastated doesn't begin to cover how I feel, anyone in similar position want to discuss how they cope?
Hope you are still coping, god bless
Dear Elaine,
I want to send you lots of hugs Elaine and I am so sorry to hear your extremely sad news. This must be terrible and not having anyone professional to support you is going to make it so much harder.
I see you have the same or similar condition as me and we also both live in Scotland. I can never get the Doctors to tell me how long I have left which frustrates me as I would like to know how much time I have so I can organise and prioritise the things which mean most to me.
Elaine......have you asked to be put on palliative care? I was reading about this myself the other day and thinking I should do this myself so that I can get some help about how to cope.
nhs.uk/planners/end-of-life... This is NOT about giving up. This is about getting the help and support you need to enable you to struggle on. Please look at the web link and see who provides palliative care in your area. I looked it up for my area and it is the MacMillan Trust. I have not contacted them yet but I think I will.
My situation is never clear because I think I would be on the Transplant list but they stated I was too ill to have a Transplant. I think they meant that I would not be accepted for Transplant because my other health conditions would make Transplant impossible. I felt that my GP may think I was attention seeking if I were to go ahead and contact them so I was going to ask my Respiratory Nurse what she thinks about it. The site states, "Palliative care isn’t just for the end of life. You may receive palliative care earlier in your illness while you are still receiving other therapies to treat your condition." In my case I think it would help my GP to realise just how ill I actually am.
In your case I think it would help you. Also have you spoken to someone at the British Lung Foundation.......they would help you too. I will Private Message you with my contact details.......maybe we can get together for a chat too! Hugs to you, Elaine. We both have our very own special Angel watching over us. Love to you from Twinkling Star. XXxxx
Hi Julie
I am in palliative care, yes. I just hope there's enough time to find a different path for me.
Elaine x
Did your Consultants offer you Palliative Care. How did they approach you regarding this. My Consultants know there is nothing they can do for me yet I don't get any real support. They don't bother to even make appointments now and I feel just like they are leaving me alone. Should I ask them out about Palliative Care?
Hello Elaine xx God bless you. I have just joined this eve and can never get a full night sleep as I am trying to come to terms with having pulmonary fibrosis and emphysema/copd. And I am living in fear each day x. So I can only imagine what feelings and thoughts must be running through your head x I have a palliative nurse coming on Monday to try to help me discuss things and the bleak road ahead x I truly hope there is support for you too x I am told to be strong .. I truly hope you have more time xx
Yes you can get it. I've got emhysema (severe). Just recieved PIP , standard for living, enhanced for mobility.
Hi Stree, what is this support group? I have no idea on things i can claim, yesterday i had what i call a better day think it was because the sun was shining 😊 hope you are well as can be xx
I dont get any support either never even saw a consultant , and not saw my nurse in a yr, ive been on the same inhaylers for nearly 2yrs and have quite a few other meds i take for other illnesses, xx
Hi Kazz60, been on holiday so hence the late reply, I get DLA which I was receiving before diagnosed with COPD because my arthritis effects my mobility. I would be entitled to PIP but as I am retired I am not being reassessed. If you claim on the grounds of COPD alone think it has to be affecting you quite severely. But always make a claim if in doubt there is nothing to loose but you could gain a lot if your claim is granted. Good luck if you do claim. x
in reply to katieoxo60
Hi Katie, i have OA in both hips also my left knee so mobility is poor, im on severe level of copd and also asthmatic so days im not able to walk across my living room, last yr i was turned down and took it to a tribunal and still never won the case, so i have now sent my paper work in againwith medical records, when i had the health professional come out to assess me she put in the report i should be granted mobility, then dwp said no, so, what is the point in having these health professionals come out go through untold amount of questions, wasting tax payers money when they dont go on what they say? xxx
Kazz60, I totally agree with you, think it took me three attempts before I got it, which included an appeal hearing too which was turned down, I also took my case to the commissioner as was your right before the new rules began. In the end it was granted on the grounds of multi effects of more than one illness once I was no longer able to work. That may be the way you need to put it, the gravity of the effects of more than one illness, i.e OA in several joints, and breathing effects of asthma ongoing pain causing stress, side effects of pills taken. I would recommend you get a specialist in disability issues to fill in any forms and be persistent. Have to admit I have three illnesses plus a visual impairment which is a disability of its own. and was assessed by the disability doctors from the Nottingham disability centre although I live in West Midlands. But some of these visiting health assessors say one thing then DWP go against as you say, it defies all the rules and why should they get pay from tax payers just to amass paperwork that is ignored?? NO further comment but to wish you good luck if by chance you want to go through the same process repeatedly until it is granted which is what I went through xxx
I been told o have been awarded pip . Don't understand how people are happy ones they get it I no that they need it . My point ☝️ regarding myself couldn't be bothered if I did or not receive just my nurse & consultant who was on the application pip form mentioning limited mobility FV 30 & rightlung upper lobe changes & referral to be considered for lung transplant . But pip should wait till people apply on deaths door to be awarded it's wrong . 2 years ago I was refused & I did notcontest it I felt I should not have to beg & besides didn't have energy or the support that I do now .mynursing community team are amazing not with pip but with every thing else .plus am struggling with rehab but you have to do it to gain strength pre transplant. I feel I won't even make lung transplant assessment the way I am at the moment but I am putting my all into it as I don't want to give up & be positive. Breathing is tiring me out . Am on max medication & rescue & have ambulance crew on board Aris respiratory team & a physiology councling via phone . Staff at rehab are fab. So multidisciplinary team working together through G.P. Consultant at hospital updates Gp . With HRCT scans & Exho . Am glad it's just my lungs & I have no other conditions on top off severe copd not on oxygen it's not needed its symptoms & med men's rescue meds don't give relief so am breathless uncomfortable struggling daily . I also done a 6 mw Managed 100 meters. Therefore I got told I now have qualified for pip but hey ho they should wait for people to deteriorate before award. Wish you all out their good luck with your pip & if anyone can shred some light to all above mentioned regarding lung transplant I greatly would appreciate it . At present there is only old blogs & no new information on this for an . So please if anyone can direct me to another link or recommend anything thankyou all the best wishes from Bernadette x😘
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