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Mindy1635 profile image
16 Replies

Hello I'm new here have lung problems

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Mindy1635 profile image
Mindy1635
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16 Replies
amg-915 profile image
amg-915

hello Mindy. Unfortunately, welcome. This is not a fun club, but the peeps on here are really good and sometimes make more sense than the Docs.

What sort of lung problems?

All the best Annemarie x

Mindy1635 profile image
Mindy1635 in reply toamg-915

Cpdo wat you mean fun club

amg-915 profile image
amg-915 in reply toMindy1635

I mean it is no fun having lung problems, but there are lots of helpful things on this site.

Katinka46 profile image
Katinka46

Hello Mindy. Welcome. I have only been on this forum for a short time but I have been bowled over by the love and support it offers. There are plenty of members with COPD, and they are very knowledgeable. living with it they are a positive mine of info.

Good luck.

Katinka xxx

casper99 profile image
casper99

Hi Mindy and welcome to the forum. We offer friendship, support and great advice from the more knowledgeable members, so, if you have any questions or anything else, please feel free to ask. Xx

helingmic profile image
helingmic

Mindy, A warm welcome to our forum.

I have bronchiectasis, what have you been dagnosed with?

Have you got a good consultant?

There are ways to get on and even to stay your illness. So have courage, and tell us more. Regards, Mic

Tranh123 profile image
Tranh123 in reply tohelingmic

I have same. Newly diagnosed. Hoping to gather info from this forum.

helingmic profile image
helingmic in reply toTranh123

Tranh123,

Welcome and take heart.

First of all, regarding consultants and team: Have you got a consultant? Can you ask him/her to refer you to the Pulmonary Nurse Team. They are extraordinary in the sense that they are down to earth, know what patients experience and can advise them in time of crisis, shortness of breath, infection, drugs, nebuliser, etc.

Second, ask if you can join the Pulmonary Rehabilitation, because you will be assessed in your capacities. They will put you on a set of exercises which would improve your condition a little and set you on the way to maintain your illness.

Exercises, whatever form it takes, is vital. I can talk more about this as I am an ardent promoter of exercises! Most of all, keep your confidence. When you encounter an infection, ask your consultant to prescribe a “rescue pack” which consists of medicine that you can use as soon as you have a bug. For instance, my consultant put me on Clarithromycin. I jump on it whenever I feel ill. It may have to be altered, for instance if the bug persists. Then have a sputum test (ask for sputum pots and forms to your consultant) to define which bug and which drug to use against it. In that way, you might avoid hospital when everybody else runs to it (usually Autumn and winter). Have confidence in yourself and you will tame the ill down. Mic

freefaller profile image
freefaller

Welcome Mindy1635 Ask what you want here and you will usually find someone has the answer or knows where to get the answer from.

scorpiolass profile image
scorpiolass

Welcome Mindy. Love Marggaret x

Hello and welcome Mindy, I was diagnosed with emphysema in April, so still finding things out, but you are in the right place, with fantastic people all helping each other, as best they can, Sally xx

dragonuk44 profile image
dragonuk44

hello I have chronic fibrosis with eaa welcome

Dedalus profile image
Dedalus

Hello Mindy and welcome - you have come to the right site for support and any questions you may have about your illness.

29h3m profile image
29h3m

Welcome Mindy, feel free to share your lung problems, everyone here to help.

Why do you have 2 profiles

maccas profile image
maccas

Welcome Mindy

I hope you feel the benefits of joining this group. The people here are marvellous and always willing to help and support others even though they are going through difficult times. Lovely bunch of people (me included ha ha) so hope you stick around.

Carole x

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