lung disease

[amyc123]

hi all i have very little Asthma but i have lung disease quite confused ive had it years im only 30 years of age and have the lungs of an 60 year old dont smoke either i have 3 inhalers and constanly on setroids would love a lung transplant but not eligable for 1 yet.... anybody else as ad one... is life different?

[hufferpuffer]

Hello Amy, I'm sorry to hear you have lung disease at such a young age.Do you know if its genetic and have you had a test for Alpha1? I started getting lung disease in my twenties but I was a smoker and told at the age of 49 my lungs were 118 ! but now eleven years on they are 108....I did find out a couple of years ago I am Alpha1AD which explained a lot.

What is important is how you feel and taking good care of yourself, eat nutritious food, get exercise and be as happy as you can, hope you feel better soon, hugs huff xxxx

[Offcut]

I have not had a transplant but I am sure that there will be someone on here that will be able to help. Have they said exactly what the problem is? It is a big problem that very often you will hear a doctor say that you have heart failure or lung disease or such like however it is a controllable condition it turns out in the end! My mother was told that she had heart failure and it frightened so much I asked the doctor what the problem was and it was a very mild AF. I have a more severe AF and a few other problems and had them diagnosed in 1992. Try not to let it get you down do as much as you can and look at your self with a smile in the mirror.

Be Well

[monkey65]

Hello and welcome to the site. Do you know which sort of lung disease you have? There are folks on here with a variety of conditions, some younger than yourself, and it may help to talk to someone with similar experience. Do phone the BLF helpline if you have any concerns - they are very knowledgeable, or just ask here. We are very friendly! Best wishes