I live in a remote areas of the Blue Mountains in Sydney
I have been diagnosed with CVID and Bronchiecstasis
Today I was advised that I need. bronchoscopy next week
As I am two hours drive from the hospital, and have to be there at 7am I would have to leave home at 5am
My best friend who Lives in another State rang me today and wants to pay for accommodation near the hospital the night before the procedure
I just want to share this beautiful gesture with everyone
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A truly wonderful friend. Me thinks you must be a special person too.
A true friend indeed Barbie52. Welcome to you by the way and nice to hear from you. Hope all goes well for you next week. Do stay in touch. xxxxx
You are lucky to have such a lovely friend. TAD xx PX my son has just returned from 6 months study in Sydney - he loved the Blue Mountains
I hope he enjoyed his stay!
The Blue Mountains are really lovely with some really beautiful communities
Unfortunately it is not a good place for me to live any longer due to my health so I am moving to the Central Tablelands
Now wait for the name of the village
Wallerawang
It is an old mining town
I am a volunteer fire fighter and will have to stop that as well
Hugs
Barbie52 - he loved his stay. He did everything anyone could whilst in Australia!! He love Byron Bay and of course the Barrier Reef. And surprisingly fitted in some studying and even got good results at the end of the semster.
The name of the village is absolutely brilliant - the name alone will bring a smile every day!
Sorry you have to give up the fire fighting - but try to be positive when one door closes, another opens - although sometimes its difficult to see which one is opening! The very best of luck xx
Very good friend but is the appointment maker aware of where you live and the time needed to travel? I have found that just because your Dr and his team know of a patient's health and travel difficulties it often ends up with a totally uninformed person making the appointment. I have rung my consultant's secretary on several such occasions and have acquired far more suitable times.
Obviously I don't know if this would be appropriate in your situation but it may help other thread readers. Regards Rib
Hi Ribvanrey
My specialist organised it
I am the same distance from other hospitals
It is 45 minutes to the nearest shop for bread and milk
I do appreciate what you are saying and will keep this in mind for physio and IV gamma globulin treatments
Thank you
Hugs
Hi there ! I have gamma globulin treatment as well. .i was tought to do it myself at home ! I give myself the drip weekly its no trouble and easirt than travelling to hosp because i do it my self it has to be done weekly ,but if i went to hosp it would be monthly. On balance its easier to do myself we go on hollidays and take equipment with me. ! I was tought by hosp how to do it but i dont know if its available in oz. But worth bearing in mind ..its certainly cut down on chest infections and pneumonias. As my y my immune system was non existant before treatment and now getting much improved. Good luck. Sue x
Hi Sue
Great to hear from you!
I am waiting to get the go ahead as my numbers don't line up but I have just had a comprehensive IgG level test including T and B cells
I should also qualify due to constant infections
It was great to know that it has been a good outcome for you
I will look into home administration
Hugs
Hi Barbie what a lovely friend,very thoughtful.
We lived in Leura for a while,I love the Mountains,but not the cold winters! We actually moved there from Sydney,when our oldest son was small,& developed asthma badly,after having pneumonia.Our specialist
advised us to go to the upper mountains,I must admit,after being there 3 months,he was a different boy,& never had asthma since! With saying that,met people there,that were asthmatic,& blamed the mountains!
We have now been on the Gold Coast over 20 years,much warmer!
Good luck with the bronchospy next week,let us know how you go.When are you making your move? Is that town North of Lithgow? Have a vague memory of it!
I'd better away to bed,so Goodnight & sweet dreams! xxx
Hi Wendells
I currently live in Mount Tomah near the Botanic Gardens
We live on a rain forest property which is extremely damp
I absolutely adore Leura
Wallerawang is out past Lithgow prison on the road to Bathurst and Mudgee!
Who in your family has the COPD?
That's marvellous news. We should all have a friend like that. Good luck for the Bronchoscopy. xx
Thats lovely Barbie. What a good friend 
What is CVID please? Hope your hospital appointment goes well x
Hi coughalot 1 (love the name)
CVID is a rare genetic immunological disorder
It is Common Variance Immunological Disorder
The common referring to a common gene mutation but each person with a different outcome
We are sometimes called Zebras
The outcome is that we do not have the gene that protects our wino-pulmonary system so are susceptible to ongoing very painful sinusitis and lung and other infections
The Bronchiecstasis can be a result of CVID or be independent of it
I am having the Bronchoscopy to wash out my
Lungs and get samples
I am waiting to get infusions of Gamma Globulin every 4 weeks, which should support my lack of antibodies and lessen the chance of infections
Warm welcome to you Barrie
You are so right, friends are gold. There is a saying that is so true. "You can choose your friends, you can't choose your family" You are so lucky. However, I have to think that if the shoe was on the other foot, you would be doing exactly the same. Good luck. xxxx
Thank you mustcarryon
I would love to be there for this friend and others
Sometimes I wonder if COPD is something common to really good people
Also you can feel the goodness of people on this site
Higs
Aw, wonderful. Friends really are gold.
Emmo
Life is rich indeed if you have great friends! Good luck with your appointment, hope all goes well for you.
Thank you Huffpuffer (another great name)
I am nervous but only about something going down my throat when I am struggling to breath as it is
But I am also grateful that I live in a society where I can access this level of medical attentiom
Thats so good of your friend.good luck
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Aria and friends
Any thoughts, friends, before I send this letter?
Hello friends
Friends are the family we choose.
