I joined Heath Unlocked recently thinking I could view the website and ask questions. But it seems my inbox is full of comments from others?

[siestasue]

Is this how this website works?

[kpatrick]

Hi, I just joined today. At the top of the screen where you see the purple smiley face and your username, click on the arrow. You'll get a drop down menu and you then choose ACCOUNT. You can edit who you receive emails from, and when you want to be notified of new posts, new emails, etc. Hope this helps! Merry Christmas.....

[siestasue in reply to kpatrick]

Thanks kpatrick. I understand now. I want to talk to others but only when I come to this site. I didn't want to be overrun on my emails. I nearly unsubscribed!! Thank you so much. I am a newbe on computers. Have a lovely Xmas!!

[peege in reply to siestasue]

Hi there, hope you're sorted now. I remember when I fist joined and my phone pinging every5 minutes. Now I get one email each morning with24 hours worth of posts\questions then notified if someone responds to my post.

Welcome to the site and have a super Christmas ☺

[Bengunn in reply to kpatrick]

From bengunn.hi kpatrick I am a newbie too I picked up the the info you sent to siesta sue helpful to me also. I also read your earlier post about your emhysema at age42 how awful for you.i am a 7 year vet of this condition although a bit older than you .i will gladly give you any info i have on my treatment etc either by open forum or private email whichever suits you.merry Xmas .bengunn

[kpatrick in reply to Bengunn]

Thanks, Bengunn. I definitely would appreciate any tips, information, suggestions, etc., that you could offer to me. It's something very new to a person who rarely gets sick, and takes pretty good care of herself, so this diagnosis caught me off guard. I thought that if I had tested positive for the genetic form of it, that I would feel a bit better. Now that test has come back negative, I'm honestly shocked that I have emphysema. It's mild, but in the lower lung lobes, which my Pulmonologist says is rare, and he was a bit surprised, too. But, all he is telling me is to take the Spiriva daily, keep the Ventolin inhaler with me in case of a flare up, and then go back to see him in 6 months (earlier if my symptoms progress/flare up again). He'll check me again at that time to see if it's progressed. If that's the case, I'm not as worried now, but I keep hearing and seeing that this is progressive, and that it shortens one's life span. Not sure what to make of all of this information that I'm hearing.

[Shadwell in reply to kpatrick]

This is a progressive illness but it can be greatly controlled by keeping yourself has healthy has u can ie food but especially exercise I find swimming is really good look after yourself and you'll have a great many years of good health.

[kpatrick in reply to Shadwell]

Aaaw, thanks so much for the tips, Shadwell. I really do appreciate it. I'm hearing from many people that even though emphysema is progressive, there is a lot out there that will help maintain my health, and slow the progression. It's definitely been encouraging. I think it also helps that I'm a very active person, rarely get sick, and overall take good care of myself. I love swimming, but have no access to a pool where I live - rats!! At least my 30-year love affair with running can continue no matter where I live or travel. Have a wonderful New Year............

[Bengunn in reply to kpatrick]

hi kpatrick,sorry for delay in replying to your post,going through a sticky patch myself at the moment by blood oxy levels low,not sure why.firstly im not sure why you have to wait 6 months for a recall,when i was diagnosed my consultant had me in pulmonary rehab inside 3 months.The course lasted 6 weeks at 3 days per week and i found it really helpfull,The course educated me on how to manage my condition and also the importance of exersise and breathing techniques it also had a gymnasium and you could excersise under medical supervision,. definately worthwhile. I hope you find something similar where you are.Stay positive.reguards bengunn

[Offcut]

Now you have your emails sorted I hope you have a great time talking to like minded people.

Be Well

[katieoxo60]

Welcome Siestasue, happy Christmas day to you. It can get a little bogged down on emails but you now know how to lessen that so hopefully you will stay and enjoy your time on here.

[Mavary]

Hi Siestasue. No that is not how it works. We have all asked our questions and have got the answers. We have now made friends with each other. Please do not be put off by it. I haven't been on here very long and I thought the same at first. Everyone is always here for anything they can help you with so ask away. Welcome to Healthunlocked. I am here because my Husband has IPF and I wanted to know all I could about it. We don't say we have all the answers but if we can help we will. Mavis. X

[Lena1]

Yes, same with me

[poppyval]

Yea me too, a bit confusing at first but you soon will get the hang of it. Welcome to the website. Cheryl