hi im new my mum and myself suffer fr... - Lung Conditions C...
hi im new my mum and myself suffer from copd how do you now when its time for end of life please mum also suffers from parkinsons and dement
Hi Wobbley
Sorry I can't help with your questions, but some of the more knowledgable members will be on soon to give you some advice.
I'm sorry to hear about your situation, you must be really going through the mill with your Mum being so ill on top of your own health problems too.
It's nice to meet you. You've come to the right place as the members are so supportive and welcoming.
Casper. xx
Hello glad you found us.
I would suggest you ring and speak to the qualified staff at the help line, I'm sure they will be able to help you, or point you in the right direction.
Kim xxxx
hello Wobbley58 welcome you have definitely come to the right place for support,help and advice with some humour thrown in too..wow you have it all going on at the moment thats not easy for you at all .Firstly how are you....? What you ask i think to begin with you need to speak to a pro if you click on the red ballon in the corner of this page there is the telephone number for the blf and they are brilliant,give them a bell in the morning.The people on this forum are great so much experience you cant ask for more someone is sure to know or point you in the right direction.takecare and see you soon i hope .Janexx
Welcome Wobbley, so sorry to hear how much you are having to cope with. The others above are right about ringing the helpline and you can get the number by clicking on the BLF balloon logo at the top right hand side of this page. Yours is a question I often think about, I imagine others do too, so thank you for posting it and Im sure you will get some useful and sensitive advice from people here and from the nurses at the helpline. Very best to you, jean
Hi and welcome Wobbley.
Good Morning Wobbley - You sound very worried - I think the best advise I can give is for you to ring the BLF helpline. I look after my husband who suffers with severe COPD, he was diagnosed about 9 years ago. He is still going! Take good care of yourself and please make the call I am sure you will get the answers you need. If you have any other questions please ask here - lots of lovely people who suffer with COPD or care for people with COPD. TAD xx
Welcome wobbley you will get exhalent advice from the b.l.f. team. by for now.
Bless you wobbley
Don't forget your not on your own. This is a wonderful support group, we are all behind you. Also, phone the b.l.f team.
ha wobbly,welcome,sorry your having problems,but others have already said it,all good advice,new dawn new day,take it and enjoy it,bernice
Hi Wobbley
Sorry to hear about your health problems. My husband has 'end stage' COPD whatever that is. He is on oxygen 24/7. We take each day at a time with family support and professional help. This morning we are waiting for transport to go to the hospital for an oxygen assessment. We do manage to go out with a bit of organisation.
I agree ring the BLF helpline. I hope that you have a supportive family and of course an understanding GP.
Jean
Welcome Wobbly there are some people on here that you will find can be of a great help to you as they have been to me wishing you and your mam the best xx
Hi Wobbly welcome to this site, like you mum and I suffer from COPD it can be a very lonely place at times but you will always find someone on hear to talk to your never alone now you have found this site.
Hi, Welcome to the site, I can only reiterate what has already been said. I lost my Mum recently to copd she was 88 and had a good quality of life until the last 6 months. I was diagnosed with it about 10 years ago, up to 3 years ago I was coping well but have deteriorated since and am now on the list for a lung transplant. I gather everyone with copd is different as copd is an umbrella term for quite a few breathing problems. Mum never needed o0xygen but I do. Like you I wanted to know how it would end my life and the best answer was that you don't die from being out of breath it is the problem it causes your organs. Good luck and keep in touch. Susie Q
seyre,how you keeping,sorry for mom,can I ask what stage mom was at,as that age is good,respect,bernicexx
Hi, yes she did really well considering but in the last three months developed pneumonia twice. I have to say she seemed healthier than me and did not need oxygen. I think it was my Mums heart that was affected more and I hate to argue with the doctors but my Mum smoked (not a lot) and gave up after her heart attack when she was 58 but I feel as soon as you mention being a smoker and have breathing problems copd is their answer. Unfortunately I too smoked, a little more than Mum, and gave up as soon as I was diagnosed when I was about 53 (I'm 62) but know I will never have the quality of life Mum had. My consultant said yes smoking has a big factor in the problem but teere is usually another underlying problem hence I believe I have been given the chance of a transplant. I don't believe anyone can actually tell you how long you have you just have to make the most of what you have and do as much as you can. If you want to chat anytime please e mail me kev.sue@talktalk.net. Take care Sue xx
ha seyre,hope your ok, the way meds say copd to all is amazing,how are your legs now,and no with copd you never no,for sure,along the route other stuff tags on,so whos to say,just keep going on,bernicexx
Hi Bernice, I have been fortunate with my consultants who have listened, and helped me all along the way, the only sad thing is I was originally told as long as I gave up smoking it shouldn't get worse, unfortunately is has but perhaps more slowly than it would have. Don't know how bad you are so it is difficult to say much. My legs are a mess but that is all down to taking steroids and the steroids in the inhalers, once they have cleared up the haemotoma I will start wearing my 'wikkies'. Take care. Luv Sue
ha seyre take good care,im work at 10 till 4,bernicexx
Hi Wobbley, welcome. I do not have Copd but Pulmonary Fibrosis, a different kind of lung disease, so sorry I cannot help you. But keep coming here everybody is lovely and friendly and also very helpful. I do not get on the site as much as I would like to. I hope you get onto the BLF helpline they will be able to help you. Good luck. Cheryl
Hey Wobbley, There are so many things you can do to stall this inevitable thing called dying , whatever the cause ! dont look at what you cant do but look at what you can ! you will be amazed . No matter how far you are down the copd road there is always help to get through the tough days , especially if you are part of a support group , I run a support group for people with all kinds of lung conditions and I am so amazed sometimes at the determination that some of our group have , some on oxygen , one 90 years old , some use walkers , another has asbestosis, and every week they turn up for our exercise for lungs session , everyone of them are a credit to themselves and a great benefit to the group when we have new members coming in. being with people who understand the condition is a great start .
I would say try to find your local support group for you and mum , I am sure you will benefit . Kind Regards
