Histamine Intolerance (and SIBO and Hashimoto's)

[Sunny3]

Hi all, not sure if I am posting in the right community, but I am struggling with histamine intolerance.

I was diagnosed non celiac gluten free 3 years ago and went gluten free. A couple months later my thyroid slowly started to work better and I am now on no thyroid meds -- which is the good news. The bad news is however, shortly after going gluten free I developed some new symptoms out of nowhere that would come and go for days at a time but steadily worsened - head pressure & pains, hives, tingling in lower legs, flu like, breathlessness, palpitations, supersensitive to meds (thyroid meds, Folate, B12 would intensify my symptoms), just UNWELL. Well finally a very smart doc diagnosed SIBO and histamine intolerance. A low histamine diet is the ONLY thing that has helped with some of these symptoms. So next week I start taking Xifaxan and Neem for SIBO and Quercetin and a couple other supplements for histamine.

Just wondered if anyone else has experienced a connection between going gluten free and histamine. This is been a tough road and I am ready to feel better/normal!

[EmmaF91 Community Ambassador]

Hi

Sorry to hear you’re having issues.

You may find a better response to your question on the IBS forum (I know it’s not IBS but the search bar says there have quite a lot SIBO people there), compared to the asthma forum 😉😅.

Sorry I can’t help you. Good luck in finding your answers!

[Sunny3 in reply to EmmaF91]

EmmaF91 - thank you! That is a great idea. And I DO also have IBS so that makes sense!

[Hidden]

If you’re in face book check out mast cell activation U.K. groupsSIBO- Fast Tract Dietcis great way of controlling it and can help histamine issues as it controls bacteria that can cause too much histamine. You can layer it easily with low histamine...

DAO breaks down histamine-check out which foods are rich in it or you get supplements

Quercetin is natural mast cell blocker which is fabulous so it’s great you’ve got that. Also check out Tina Peers for other ideas

[Sunny3 in reply to Hidden]

THANK YOU THANK YOU SOOOOO MUCH - I so appreciate input from folks who know and not just doctors (who most have not been helpful). I will check out the UK groups and Tina Peers. A seeing there is good info out there if you know where to look. Yes I am starting about 6 supplements including Quercetin, omega3, an antioxidant modulator, GI detox, etc.

[Max225]

I had food intolerance issues 20 years ago. My histamine levels were extremely high, resulting in my whole body breaking in hives every 6 months or so. As noted below by Kikkles, DAO may help. I have been taking it regularly with Quercetin and Vitamin B6 and have not suffered hives for two decades, in spite of consuming high-histamine foods, i.e. tomatoes, sardines, salami, ripened cheese - and worst of all, wine. Good luck.

[Sunny3 in reply to Max225]

Max225 - thank you so much for replying. My blood histamine showed normal but I was already eating low histamine and top doc told me that test isn't accurate or helpful. I have been fighting this 3 years as former doctors all blamed on thyroid wasting so much time! My symptoms overlap with thyroid but the low histamine diet was a tremendous help - although I haven't started my supplements yet (next week) I can see with the diet I still have a day or two that are bad. I am still learning what is and is not high histamine. Was clipping along with a very good week and ate a grilled porkloin and bam - next day was bad. Part of my problem is my symptoms don't show right away but usually in the next 24 hours or so Hard to pin down!

[Max225 in reply to Sunny3]

Agree. Trial and error seems to be the way. Here's an article on DAO - just in case:

ncbi.nlm.nih.gov/pmc/articl...

Incidentally, I have had no side effects from DAO. Best of luck.

[Sunny3 in reply to Max225]

Thank you so appreciate the feedback! Good luck to you too Max225!