Hi: I am new here, but I'm on the Lung... - Anticoagulation S...

Anticoagulation Support

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Gingerapple profile image
Gingerapple
โ€ข16 Replies

I am new here, but I'm on the Lung community and Breast cancer. I have just had a PE, still in hospital. I have a dangerous tumour on my right lung, I do not have a left lung. I need an operation very soon and have just heard how long it can take to recover from a PE. It seems I am almost a dead person. Has anyone recovered quickly from a PE? Any positive thoughts please? Thank you for your response, Bev xxx ๐Ÿ’โค๐Ÿ™๐Ÿฝ

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Gingerapple
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16 Replies
โ€ข

Physically I was better in a few days after I had started treatment but psychologically a good few weeks until I felt myself again.

Gingerapple profile image
Gingerappleโ€ข in reply to

Hi catgirl,

Thank you for responding. I am out of hospital so 2 weeks of bedrest took it's toll, but after 3 days home I'm cleaning up, washing and hair๐Ÿ˜‰so physically a bit tired but mentally unhappy with blood thinners. Awful things!๐Ÿ˜’

Have a good weekend catgirl, love Bev xxx โค๐ŸŒน

โ€ข in reply toGingerapple

You will recover when you are good and ready for it!

Gingerapple profile image
Gingerappleโ€ข in reply to

?๐Ÿค”

โ€ข in reply toGingerapple

What I meant was that everyone is different and recovers at their own pace when they are ready for it.

It takes a little while to recover, but we are all different. Hang in there and take it one day at a time!

Gingerapple profile image
Gingerappleโ€ข in reply to

Thank you mrsredboots,

I feel less tired now and I am doing things at home, I have ops waiting for me in Manchester, so I need to recover quickly ๐Ÿ˜’๐Ÿ‘๐Ÿพ

Have a great weekend ๐Ÿค—โค๐ŸŒน๐ŸŽˆ๐Ÿ’

philcollis profile image
philcollis

I had bilateral PE's during a knee replacement (10 yrs ago) take your time in recovery, listen and follow medical advice, particularly from the anticoagulation nurse/advisor. ;-) good luck

Gingerapple profile image
Gingerappleโ€ข in reply tophilcollis

Thanks for your adviceโค๐Ÿ‘๐Ÿพ

Have a great weekend ๐ŸŒŸ๐ŸŒบ๐Ÿ€๐ŸŒณ

mestala profile image
mestala

Sorry to hear about yr situation,and yes,everyone is different.I had serious life/death,multiple p-e's many years ago,and I'm still suffering the damage caused.What I will say is that you need bucket loads of patience,some do cope better than others,

All I can really say is. my best wishes in your fight,

M

Gingerapple profile image
Gingerappleโ€ข in reply tomestala

Hi there,

So sorry to hear you had multiple PE's, must be awful๐Ÿ˜”I am now 3 days at home, cleaning up now, washed hair, on home trainer 5 minutes per day. I have ops waiting for me in Manchester so I need to recover quickly.

Have a lovely weekend mestala๐ŸŒน๐ŸŽˆ๐Ÿ€๐Ÿ‘๐Ÿพ๐ŸŒŸ

mestala profile image
mestala

And the same to you

M

MazzyB profile image
MazzyB

I still get a bit breathless but apart from that Iโ€™m ok, take care.

Suebo2 profile image
Suebo2Moderator

Itโ€™s always overwhelming and youโ€™re not alone. There is a good deal of information on Thrombosis uk Website.

As everyone has said, everyone is an individual so take it at your own pace. What I would say though, is that breathlessness is not due to being unfit, you hsve a clot blocking the oxygenation of the blood so do NOT push yourself as all you are doing is demanding that your heart works harder to get the blood round and oxygenated which is a wee bit hard for the heart at times.

Take everyday at a time, some will be great, others a backward step, but keep smiling whatever.

Good. Luck.

โ€ข in reply toSuebo2

I remember when I first started having symptoms I had thought that I was unfit and needed to go on a diet but it was nice to know no I wasn't unfit and that I was ill.

Gingerapple profile image
Gingerappleโ€ข in reply toSuebo2

Hi Suebo,

Thank you so much for your message. It was great! Now I understand why I am fit one day and the next I wonder if I should get up at all๐Ÿ˜‰It was like that, one day great the other๐Ÿฅฑ๐ŸฅฑI am breathless anyway but 95% blood gas. But I understand now that I need to take it easy with my heart. I did push it. I smile a lot thanks!

I hope you gave a great afternoon, thanks once again ๐Ÿ‘๐Ÿพ๐ŸŽˆ๐ŸŒŸ๐Ÿค—๐ŸŒน

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