Edoxaban

[Grayjay]

Hi, I'm to be taken off Warfarin which I've been taking for quite a few years and being put on Edoxaban, so no more INR tests. Just enquiring if anyone here has done the same and to see their opinions, i.e side effects etc.

Thanks in advance.

[moo196]

Why are you switching? I declined to switch as I wanted to keep to the tried and tested warfarin. What benefits are being suggested?

[Grayjay in reply to moo196]

I think it's mainly because of me shielding and have to go to my surgery for INR where two nurses have to come out fully kitted up and take my blood in the car park. Probably for convenience I.e no more blood tests . My query is to ask about the pros and cons of EDOXABAN

Kind regards.

[hello-kitteh]

I've never heard of this Edoxaban are you sure you have the right medication?

[Grayjay in reply to hello-kitteh]

Hiya, Yes definately EDOXABAN. My GP has just phoned me and I am now on it. When I can get it from the Chemist anyway 😁 .

[SpeedyH]

Hi grayjay. There a number of new type anticoagulants and they work on different parts of the clotting cycle. Edoxaban is one of a group of anticoagulants that work on Factor Xa. Two others in the same group are called Rivaroxaban and Apixaban and these are more usually prescribed (not sure why? Possibly cost?) It seems that everyone’s experience of the side effects of anticoagulants are different - some people are profoundly troubled by joint pain, exhaustion, stomach issues etc and other people are absolutely fine. You will just have to try Edoxaban and see how you get on, though give it a fair trial of a few weeks. If you find that you are struggling you might need to change to another med in the same group, or to one that works on a different part of the clotting cycle like Dabigatran. Hope it goes well for you and you enjoy no longer having to worry about diet and

INRs!

[Grayjay in reply to SpeedyH]

Thankyou Speedy H 👍

[moo196 in reply to SpeedyH]

I never worried about diet anyway. My coag clinic very sensibly said that we would dose the diet, not diet the dose... So I could enjoy at least 3 portions of otherwise "disallowed" foods daily eg broccoli, spinach, avocado, chickpeas, blue cheese.... As a vegetarian I will always have these in my diet

[Suebo2 Moderator]

Well done. As long as fir AF or VTE, better and safer.

[cheritorrox]

I'm on sintrom here in Spain (acts same as warfarin) and so far nothing else authorised (would have to pay for alternative) .... to be honest I quite like having my INR check regularly to know if I'm on track - but easy for me as live really close to the Centro de Salud (which also has a bar next to it so can go for coffee when waiting for hospital to email doses for following weeks!)

Sorry this doesn't really help you does it!

[Grayjay in reply to cheritorrox]

Hi, Thanks for your reply. At least my GP said that there's no dietry restrictions as there are on Warfarin. No more trips to the Hospital for my INR tests, as you say it was a trip out for a while. No adverse effects yet so, so far so good.

Gracias.

[Mitralan in reply to Grayjay]

Hi Grayjay,

i’ve been taking 60mg Edoxaban daily following heart surgery two years ago. I suffer numerous side effects from this and other meds i have to take. At the moment i’m trying to narrow down on which med is causing which side effect. Definitely the worst side effect from Edoxaban is excessive bleeding. I had to have a tooth extraction and the bleeding was horrendous for two days following the procedure also sneezing has caused small bleeds in my eyes. I’ve just read that the manufacturers of Edoxaban offered the NHS a considerable discount for five years if they bought the drug so this may explain why you have been asked to change meds