Early on set alzheimers

I'm a care taker of a wonderful man diagnosed with early on set alzheimers

[pkpayne]

I am so sorry for both of you. Appreciate the good times and find support for yourself. Alzheimer's is such an awful disease. I do think they are finding new drugs to help or delay it and they are coming up with new drugs all the time. I pray for a cure.

[Hidden in reply to pkpayne]

I have been on ALZ connect for the past 3 months and no one has replied to me .. I just discovered this site yesterday, and you were the first to respond, having said that... Thank you!.. He was diagnosed a year ago at 59, our future plans are now bleak, however I am trying to enjoy everyday with my man, and try not think about the horror I have been told is coming our way...

Thanks for listening,

Ddcaribe

[pkpayne in reply to Hidden]

Ddcaribe, I think you will find a lot of support on this site. My husband has MCI and I'm petrified that it will turn into Alzheimer's. His father had it and his mother had some form of dementia although I don't think it was Alzheimer's. It affects different people differently and my mother-in-law's world was centered around my father-in-law but when he started getting violent she had no choice but to put him in a home. Still she went everyday twice a day to take care of him as best she could. Maybe your man won't get violent. I pray not. But get all your papers in order now and then take advantage of the good times you have with each other. There will still be many. Also don't lose your sense of humor and do whatever you need to to take care of yourself. I'm wishing the best for the both of you.

[Hidden in reply to pkpayne]

Thank you, All my financial papers are in order, but for now his only problem is his speech, ( trying to find words).. we still do everything we have always done, my fear is the future, how long? When will it get worse? etc.. I'm a very planned and organized person , so this throws me. For the first time in my life, I feel I have no control of my life moving forward.. I guess time will tell... Thanks for all your support

Ddcaribe

[faithmarshallseattle in reply to Hidden]

I am happy to hear you found some support - I too am hoping to develop or find resources for the Alz community. Blessings to you for sharing you heart caring for others.

[Hidden in reply to faithmarshallseattle]

Hi

Let's all keep in touch..I don't want to burden my family..so it's nice to know I have a sight that I can communicate with who understand what I'm going through......

[faithmarshallseattle in reply to Hidden]

Certainly we will. I'll le you know when i have the Facebook support group set up too.

[jandon30]

We have been dealing with Alzheimer's for awhile. I had to quite work because I couldn't leave him alone about 6 years ago. Up until about 6 months ago we would hike, swim, bowl, church and even travel (a little). During that time I tried to keep him as busy as possible. I found little things to laugh about. Try to fine humor in every day things. Also try to remember the man you married . He is still there (somewhere). I didn't find this group until yesterday and already it has made a difference. It's a long ride, and don't dwell on things to come only on the moment. Good luck and we are here for you.

[Hidden in reply to jandon30]

Jandon30

Thank you , and I agree this sight is very helpful, especially when you feel you are alone and then someone responds , and puts a little hope in your heart.. I hope we can keep in touch

Ddcaribe

[faithmarshallseattle in reply to Hidden]

I believe support is one of the most important ways for us to cope. Blessings to you all!

[pkpayne]

Yes just as with cancer they tell us not to concentrate on next year, next month, or next week. Just concentrate on today and tomorrow and enjoy those. You aren't alone here and everyone here will support you. I am an organized person myself so I know how you feel about the unknowing. That is a hard pill to swallow when we are used to planning and now not really knowing if we can or not. My biggest concern right now is you and your health. Don't overlook yourself!

[Hidden in reply to pkpayne]

pkpayne,

Thanks again for your support, I'm ok for now, still working, and keeping busy..

Not to say that at times I get very overwhelmed, but I believe for now, I'm ok

[mirtshearer]

Hi, my name is Anna; I am 63 and have MCI. My Dad died from Alzheimers. I was terribly afraid for quite a while but recently I realized that I don't have Alzheimers YET. I was just in a two year clinical research trial which I really enjoyed, and at the end of the final testing they said I hadn't gotten any better, BUT I hadn't gotten any worse!! Of course I can be freaked out in a heartbeat but when I do that it is killing my todays which are really wonderful. They are working and working on a cure and I intend to stay positive, involved, proactive and thank God for every day that I am given. That applies to everyone I think. All any of us have is today. God bless my fellow friends with memory loss!! There is a cure coming and I do highly recommend a clinical trial. It sure makes you feel like you are making a difference.

[Hidden in reply to mirtshearer]

I keep writing my heart out and when I'm finished..I lose everything..I'll try again...I feel very overwhelmed today...I get these days...we r relocating to California, where my adult children are ...but I feel like I'm doing this alone...my husband and I used to make all decisions together..this is especially hard for me..I never in my life thought I would be on a forum like this..He is only 60 diagnosed with early on set alzheimers...me only 54..what happened?? Am I in a nightmare?..All our plans have diminished..this is the hand that we were dealt..I'm just trying to move foward..I hope I can! As for you Anna I'm happy that you found trials that make you feel part of a solution..best of luck ..I am hopeful that there will be a CURE one day..I plan on enrolling my husband in a trial when we get to California .....