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Bisoprolol/ reduction causing breathing issues

NLGA profile image
NLGA
11 Replies

Anyone know or have a idea why when my Bisoprolol is reduced I have trouble sleeping

I wake gasping as if I have a air lock for a few seconds then it’s fine Ejection fraction is 55 , no arteries issues had 2 echo’s all fine but I do have a constant high pulse 85-110 when the dose is reduced from 15mg to 10mg a day ( I know it’s high )

AF was diagnosed in 2022

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NLGA
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11 Replies
Afibflipper profile image
Afibflipper

Is it you trying to reduce it or Drs suggesting it? Is this ‘airlock’ possibly sleep apnoea? Has a dose of 12.5mg been tried? Just things to think about not medically advising you at all.

When considering other people are only on 1.5mg as a dose - were all different & 15 is a big dose. Also, any changes take time - not that the day after its not worked so drop again. You probably know all this but just incase. Hope things get sorted.

NLGA profile image
NLGA in reply toAfibflipper

The doctor wanted to see if I could reduce it so we tried it for 3 months and I wake up with like a air lock similar to sleep apnea but not sleep apnea apparently

Once on the slightly higher dose I sleep lovely been 4 great nights sleep since going back to the dose

I also find walking not so much of a problem 2-3 miles is easy but on 10mg a mile is a struggle and a sit down

Yet as you say both are very high considering I haven’t got other forms of heat failure i actually don’t know anyone who seems to need this amount

I have had my cardio consultant move me to AF consultant at another hospital after my 2nd echo and not booked me for anymore follow ups

Afibflipper profile image
Afibflipper in reply toNLGA

And was 12.5mg tried?

Can I ask, what prompted the Dr to ‘see if it could be reduced? Maybe I’m misunderstanding but, seems all was well on 15mg?

I supposedly never had heart failure until after my 3rd ablation. I had for many years had on/off oedema & breathlessness but every scan showed things ok. (I do have a smaller heart than I should - function was normal but, means during exercise has to pump harder to get enough blood & O2 round) Even when quite seriously breathless & swollen the blood test (Pro-bnp) showed heart failure but scans ok HR up at 160. How is the AF when you reduce it - how is your BP? Perhaps an EP will be better placed to see what’s happening. x

NLGA profile image
NLGA in reply toAfibflipper

They said they wanted to reduce it as 20mg was the max and I was at 15 and no they didn’t drop to 12.5 but straight to 10

On 15 I still get breathless but only a fraction of what I get on 10 under 10 I struggle with stairs

BP this Friday at the GP’s 120/70

I honestly think I have heart failure undetected but they saw no both the GP and two Hospitals. It wouldn’t surprise me at all

When I was in hospital my BNP had me dead pretty much but then dropped to normal which they put down to the stress of my HB at the time as I spent 6 days in the hospital I was admitted at 172 HB it was still 133 three days later

I have asked to I am blue in tne face that this can’t just me AF but they insist it is I even asked again Friday to my GP

How did they detect you just via BNP or did other test follow and can I ask how they instructed you to manage it

Thanks for taking interest in my problems

My last BNP was 485 Previously In hospital it was 2350 I just dug the records out

Afibflipper profile image
Afibflipper in reply toNLGA

Hi, well my HR just kept rising for a couple of months post ablation which even raising Bisoprolol was not reducing it. I was then tried with digoxin (low dose) which after 2 weeks had begun to lower HR but all of a sudden I noticed I was so breathless & swollen like never before. Even getting out of a chair was very hard. Then even a few steps made me feel my like id taken in full lung full of air but felt I needed more but there was no more room. That’s best description. I went back to my EP who immediately stopped the digoxin, took bloods & prescribed Furosemide which over the week got rid of 10lbs. Bloods showed BNP was 1200+ & ordered echo which showed strong heart beat, mild/moderate mitral valve leak. The word were that everything pointed to rt sided HF but no reasons found for the cause. Management - BP must remain below 130/70, 40mg furosemide daily, bisoprolol when I went back into NSR was put back to 2.5 plus all my other medications (I won’t list 🤣) we ended up amazed at my recovery. Just recently following flu vaccine I went back into AF - currently on 7.5 but back in NSR again. I want to make sure all is well before reducing again. HR is happy 60-85 which is very comfortable!

Posibbly see if you can get copies of the bloods you had done when you were unwell & any since, take with you to the EP appointment - write down all questions you have & take to appointments(then don’t forget on the day) & maybe keep a symptoms diary of what doses you are on and what activity your doing when you either breathless or HR goes up. They’ll no doubt order their own bloods & maybe further tests. Explain everything. Hope this helps but, don’t be afraid to seek emergency help for excessive breathlessness, chest pain or extremely high HR. Let us know how your appointment goes (do you have a date yet?

NLGA profile image
NLGA in reply toAfibflipper

That’s really interesting I am glad you have gained control

Appointment wise I have nothing Cardio booked but do have a appointment booked via telephone with the AF consultant

It’s like since the echos were both positive they are just stuck on AF as the reason and in my view not keeping a open mind

Afibflipper profile image
Afibflipper in reply toNLGA

Well, again I’m not medical but, it’s just what they’ve done with me. Presumably the phone appointment is with an EP (electrophysiologist). Maybe they will want do a face to face after that appointment. Drs usually want to run their own batch of tests, bloods, ecg etc & don’t usually go off other Drs unless it’s possibly at the same hospital/team. Have you ever had an exercise tolerance test, cardiac mri or cardiac perfusion test (if they still do the the latter)? Respiratory consultation maybe (I have asthma)

If, as you say, you are being pretty handicapped on a daily basis, if it’s confirmed AF diagnosis, you maybe need to be having a chat about other treatments. ( breathlessness - asthma is worse usually at night, bisoprolol be the culprit, they were putting mine up from 15 to 17.5 - was too much but they said ‘some’ go to the 20) Good luck

opal11uk profile image
opal11uk

Try raising the head of your bed a little to help with breathing. As for taking 15mg thats a very high dose, I'm on 10 and told by cardiologist that this is the max, maybe return to see yours as there might be a combination of drugs that could help you better and of course mention the night time issue.

NLGA profile image
NLGA in reply toopal11uk

I was with the GP Friday and he showed me on his screen 20mg is the max he explained cardiologist prefer to recommend upto 10mg but I never explained why

DiyChas profile image
DiyChas in reply toNLGA

I may have missed it but you s/b seeing a Cardiologist.Has your heart been checked for blocked arteries and aortic valve?

NLGA profile image
NLGA in reply toDiyChas

Yes. Had 2 echo 1 mri

All clear

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