Wellue ecg newbie - we finally have s... - Atrial Fibrillati...

Atrial Fibrillation Support

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Wellue ecg newbie - we finally have some data and now I am curious

Efka profile image
Efka
4 Replies

Hi afibers, I know I've asked lots of odd questions this year after husbands health took a massive nosedive after a two lead ICD with pacing capability was implanted in February.

With the help and reassurance of Ppiman and interesting chats with ozziebob - thank you both! we purchased a Wellue 72h ecg a couple of weeks ago to get some data hoping it would both help us and also inform our first EP meeting which we have tomorrow, hurrah, very excited and hopeful.

Now then, I am rather a data geek and as we finally have some concrete data I thought I'd quickly ask you all here. I am not after a diagnosis and I fully appreciate there is no such thing as "normal" with afib, there probably isn't even anything such as "common"...

The hospital diagnosis so far is that he is in persistent bradycardic afib, that's fair enough. Flutter has been mentioned but not diagnosed.

From the Wellue ECG after doing a day-time and a night-time trace for 5 days I have the following stats:

- Recording total time of 57.3h

- Pulse, min 39 (the ICD paces at 40), max 106 but truly that was once, mostly max is peaking at 80ish.

- Afib/Flutter (that is what Wellue categorise it as) is on average 73% of all recorded time. This seems fair as the numbers on a per trace view range from 70-81% with 1 night time outlier at 54%

- PVC comes in at average 15 per hour. They seem pretty evenly dispersed over time with I would say slightly more over night time. On a per trace view they range from 7-28 per hour.

- Couplet of PVC only 26 detected in total

- PAC only 16 detected in total

Now then, I felt quite alright with this data. Of course completely rubbish he is in afib majority of the time however the other number didn't seem too drastic to me?!? [fingers crossed!]

For others with persistent afib do you happen to know your % burden? Is that even a thing, I am not even sure how one measures degrees/types of afib?

Any wise questions I should ask the EP tomorrow (and I apologise for the lateness of this all)?

Again, thank you all, this absolutely is the most helpful and supportive forum on here!

Eva

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Efka
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CDreamer profile image
CDreamer

Yes, both my pacemaker app and my Apple Health give AF burden - mine is currently 2%, down from after COVID when it was between 5-10%. I wear an Apple Watch so it’s monitoring HR & HRV all of the time so will pick up AF and produce a warning which I then confirm with Kardia. The Kardia syncs with Apple Health which then produces a very comprehensive monthly report.

Don’t have any experience of Wellvue as my doctors have always recommended Kardia (Alivecor) which I’ve used now since 2013.

Efka profile image
Efka in reply to CDreamer

Ahh ok very interesting thank you so much for sharing!

Golly 2013, that’s a long time.

And I am very pleased your burden has lessened to such an extent, long may it continue, or indeed lessen even further!!

Thanks again

ozziebob profile image
ozziebob

I know your EP consultation has now passed, and your Post had no time to get Replies, but I thought you still might be interested in these past Posts and Replies on this topic ... there's always a next time ...

healthunlocked.com/search/p...

Efka profile image
Efka

General little aside - as “vaccines” now a days is a rather broadbrush term, for RSV there seems multiple products are given varying on country etc. Depending on one’s health one might want to inquire/learn more about the personal risk/benefit analysis for the specific product suggested.

One product is certainly a Monoclonal Antibody, think there is a Modified RNA one and not sure if there are actually any traditional style vaccines?!

Any doctor should be able to answer such questions and the Number Needed To Treat and the Absolut Risk Reduction etc.

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