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Atrial Fibrillation Support

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advice please

soupersue profile image
11 Replies

I used this forum some years ago when first diagnosed and was so grateful to everyone.

I need advice again, my attacks of Afib are becoming more frequent, I have flecainide as Pill in the Pocket and am using it.

My query is should I try and see my GP for a EP consult or just carry on taking the meds?

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soupersue profile image
soupersue
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11 Replies
BobD profile image
BobDVolunteer

I wouldn't just put up with it if I were you. Rattle a few cages and see if you can get a refferal.

CDreamer profile image
CDreamer

Seek a referral to an EP. Time for a reassessment.

bean_counter27 profile image
bean_counter27

You appear to have had similar issue 6 years ago, where your episodes became more frequent . Presumably things settled down back then, noting you are still using flecainide as PIP, still paroxysmal etc.

What do you mean by more frequently? What was "normal" for you and how has it changed?

Is your PIP still working okay i.e. ends episodes?

Have you been unwell lately? Other illnesses, including Covid can trigger episodes or a series of episodes. Covid seemingly triggered an increase in my episodes over the ensuing months before it settled back down. My cardiologist said it was quite common and other members have noted other illnesses can have same effect.

Unless you can identify any temporary circumstances that indicates the increase in events might also be temporary then you should see an EP to discuss.

I see my cardiologist annually or more frequently, if there's a reason to. It pays to be proactive with AF as avoiding episodes and/or reducing their impacts is better for your heart's long term health.

BenHall1 profile image
BenHall1

If you are still able to ... see EP ... pick up your story from where you left off. Why not phone his Secretary and seek guidance. If that fails see GP. It maybe that your original prescription is no longer appropriate.

Rainfern profile image
Rainfern

Hopefully it’s just a temporary change, but in any case a good opportunity to link in with an EP for a check up and to have your questions answered. Good luck

Singwell profile image
Singwell

Personally I'd be seeking a consult with a good EP to set my mind at rest. Something has changed in your system. See if you can find out what it might be. Have a think about what's changed recently in your life, lifestyle or in other health conditions. Be a detective. That will help in your consult too.

JOY2THEWORLD49 profile image
JOY2THEWORLD49

Hi

More frequent AF episodes, you need a review of meds.

Try jotting down your episodes, when and how long. Meds side effects etc. How you feel.

Everything.

A Heart Specialist who is interested in you is the best person.

You are updating your health experience.

cheri JOY. 75. (NZ)

Ppiman profile image
Ppiman

I’m pretty similar. AF seems always to increase. I would say what to do depends upon the effect AF has on your well being. I paid £200 a fortnight ago to see a specialist as the NHS is over full here. It was very worthwhile and I feel much more reassured.

If you haven’t had an echo ultrasound heart scan for a long time, I would say that would be worth asking your GP about. I think family doctors in the UK are a very valuable resource as they see many sufferers from AF.

Steve

Vonnegut profile image
Vonnegut

When this happened to me I was told to take Flecainide regularly, at first 50mg twice daily and after I still had occasional episodes it was increased to 100mg twice daily. It works as I haven’t had an episode now for well over a year and sometime before that episode which must have occurred at the time it seems I was infected with covid with no other symptoms but a positive test! It does seem to increase the fatigue I have and messes up my digestion but still alive and brain still functioning and I’m fortunate to have my husband to look after me and do the things I am no longer able to manage. Do hope you get a regime that works for you as we know we are all different.

Desanthony profile image
Desanthony

As always when things change you should see your GP and specialist. As episodes are becoming more frequent then an EP would be your best bet.

Alphakiwi profile image
Alphakiwi

Hi super sue, do you take anything else other than pp. I have verapamil as pp but also have a regular med for af. So i take 120mg diltiazem slow release plus 40mg verapamil when required.Apparently i may have to increase the diltiazem as my use of the pp has increased a lot lately. Yes go and get it sorted if you are becoming uncomfortable and concerned. All the best. Colin

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