It's all covered.: "[Content on... - Atrial Fibrillati...

Atrial Fibrillation Support

31,925 members37,925 posts

It's all covered.

JayDJ profile image
5 Replies

"[Content on HealthUnlocked] does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them."

To those who feel they have to be the guardian's of the forum then please read the above from "HealthUnlocked". It clearly recognises that (advice) from time to time might although be well intentioned, might also be wrong. With that in mind then instead of "Complaining" and getting posts shut down, then correct it (which in itself could be incorrect) and let members make up their own mind.

The caveat is in place re advice & experiences ie "it does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them."

Written by
JayDJ profile image
JayDJ
To view profiles and participate in discussions please or .
5 Replies
Ppiman profile image
Ppiman

I kept out of the thread to which you refer as it seemed to me I could add nothing useful to what others had said. Also, I had fallen foul of what to me seemed at the time to be an uncalled for level of officiousness from the same individual in the past. Once burned, twice shy.

However, the thought also did pass through my mind, now spurred again by your excellent post, that some suggestions posted here can very occasionally be so risky as to require some kind of comment from the forum administrators - as happened here.

In this particular case, a stroke is a catastrophic event, too impossibly awful to be imagined and one that affects, perhaps forever, so many others in both family and beyond - and at great financial cost, too. We have a good friend, forever wheelchair bound, who, in her forties, poor woman, found that out to all our horrors.

The only known medical intervention for stroke prevention in AF is prophylaxis using anticoagulation such as warfarin or DOAC drugs.

Steve

JayDJ profile image
JayDJ in reply to Ppiman

Hi Steve. What we have and stating the obvious is a forum and on any forum you are going to get well intentioned but often incorrect information along with posters sharing their thoughts and experiences. I'm personally fine with that and like with most things in life I will do my homework ie I will pop onto [say] TripAdvisor or Trustpilot to get a general feel of things on hols or products, in many cases going back pages and pages incase they are trying to hide recent bad reviews. What I am doing is exercising my rights to make my own mind up and if I'm still not sure then I'll find a man/woman who does.

With the above in mind then nobody unless there is a swell of agreeance and possibly backed up by medical notes/papers etc should really act on it until they see a Doctor/Cardiologist . As for the Forum Admins intervening and giving advice then that is never going to happen, as I don't believe that they have the time or inclination to read every post and yes that is what it would entail.As for reporting posts that are not personal or have become insulting then I find it insulting that someone feels the need to nanny us. The rules that are often quoted to make a point are in place for this particular thorn, so please no more reporting and shutting down of sensible discussions would be my plea and if they are then Admin should be more upfront.

Ppiman profile image
Ppiman in reply to JayDJ

Well, Jay, I couldn’t have put it better except given the caveat I mentioned, and I suppose there may be other possible scenarios where I’d be happy for admin to step in censoriously (with an explanation, mind you).

I have a suspicion that the admin here are bound by legal requirements to vet the posts since health issues are a litigious area and “small print” holds little water in a court of law (quite rightly having just had to scroll through - not read - three screens of it to be able to accept a new Phillips Hue agreement so that I can now switch on my own “smart” electric light bulbs!

Having spent a fair bit of my life dealing with the general public (and still doing in a smaller way), it seems to me that forums on the internet not only show how generous people can be with their time, but also how easy it is to believe foolishness when given by seemingly authoritative sources. There was a fact-checking BBC Radio 4 programme on last night which showed just how many millions are following a YouTube covid vaccine denier who was proven to have lied unashamedly - but to remain unabashed.

Those two Donne and Atwood quotations are a bit of a mantra for me. Here’s another that has stayed with me since I first came upon it, this time from Virgil, so rather ancient: “Sunt lacrimae rerum”, he wrote which, loosely I gather, translates as “There are tears at the heart of life itself”. Indeed there are. And on this forum many of us likely shed them quietly more than we let on. For those especially the forum can be a haven.

Steve

JayDJ profile image
JayDJ in reply to Ppiman

I'm not so sure although I could be wrong about HealthUnlocked being involved with litigation. On Twitter there have been a few threats of litigation, not to Twitter but the poster that made say career damaging accusations, for the wronged person to then go to court or to receive an apology from the poster🤔. I feel for you re your electric light bulbs 😂

Ppiman profile image
Ppiman in reply to JayDJ

I’ve got to say, the Hue bulbs are excellent and very “smart” indeed. 😊

Steve

Not what you're looking for?

You may also like...

Heart rate increase

Over time, my NSR events have lessened and been replaced by SVEs most of the time - so my Kardia...

high blood pressure

I’ve been in hospital all day today. Woke at 6am with racing heart and ectopics. Took my blood...

3% Afib burden and proposed medication

Results from my 30-day heart monitoring device show mainly sinus rhythm, a 3% afib burden (plus...

Afib/Ectopic Beats Nightmare

Hi please bare with me first forum of any kind I've ever joined!! I Have had Afib for over 7 years...

Hair loss is Bisoprolol or Apixaban? the cause

Hi all, My hair has really started to fall out lately, I’m on 1.25 Bisoprolol and 5mg Apixaban x2....