NSR...out of the blue!!: Last year I... - Atrial Fibrillati...

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NSR...out of the blue!!

Fullofheart profile image
14 Replies

Last year I had 3 ablations for persistent AF, all deemed to be unsuccessful. 5 months after number 2 , I had 9 days of NSR but then went back into persistent AF with no further breakthroughs. Number 3 was arranged as a top up but after that did not result in NSR for more than a day it was decided AF was permanent and we agreed no more ablations. The plan was to switch from rhythm control to rate control meds, to go on heart failure meds (EF 43% on mri/ 53% on echo) and hope that this will hold things a few years with the probability of a pacemaker after that. (They won't go down that route yet as although I've had AF 18 years, I'm still on 47 and the risk is too high apparently in younger folk).Anyways I was dealing with that plan reasonably well when low and behold here I am in NSR (only 3rd or 4th day in) another 5 months after ablation number 3. I'm currently not on any heart medication or anti coagulation as we were trialing that before the switch, so this makes it even more surprising. I'm thinking it's unlikely to hold but happy to experience it. Seeing my cardiologist next week anyway as luck would have it. Just wondering if any other experience like this or any thoughts? Whilst it's very good to be here, it's a bit of a rollercoaster!

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14 Replies
CDreamer profile image
CDreamer

Oh WOW - how fantastic. Very much a roller coaster for you but looks as though you are top of the hill at the moment - long may it last.

Fullofheart profile image
Fullofheart in reply toCDreamer

Hey CDreamer...cheers! I'm not convinced, but you never know! 🎡🤷🏻‍♀️

Gumbie_Cat profile image
Gumbie_Cat

Fantastic! Crossing fingers for you.

Fullofheart profile image
Fullofheart in reply toGumbie_Cat

Thanks! 🤞🏻👍🏻

MummaSoap profile image
MummaSoap

I have no personal experience that I can share with you for this scenario Full of Heart but I just wanted to celebrate this win for you 😁🤗 long may it continue.

Best wishes,

Soap 🧼

Fullofheart profile image
Fullofheart

Cheers....I'm not sure it will last and keeping realistic, but appreciate these positive vibes, thanks!! 😊

4chickens profile image
4chickens

🤞it lasts enjoy every minute

Fullofheart profile image
Fullofheart in reply to4chickens

🤞🏻👍🏻

stoneyrosed profile image
stoneyrosed

Sincerely hope you remain in NSR 🤞

Fullofheart profile image
Fullofheart in reply tostoneyrosed

You never know!! Cheers! 🤞🏻

stoneyrosed profile image
stoneyrosed

When it comes to AF the unknown is the certainty 😁

Fullofheart profile image
Fullofheart in reply tostoneyrosed

Indeed!!!!

jeanjeannie50 profile image
jeanjeannie50

Fingers crossed that you stay in sinus rhythm now.

I had 3 ablations and then was told no more because for some people they don't work and unfortunately I was one of them. Had periods of PAF still and then after many cardioversions was told no more would be offered. Went into constant AF about 3 years ago, but at a low rate between 60-90 and I can live a fairly normal life with that.

Jean

Fullofheart profile image
Fullofheart in reply tojeanjeannie50

Thanks Jean. Mines still in 100s but hoping new meds will help that get lower IF I go back into AF...which I think is quite likely tbh. Been persistent for about a decade. But, as I say, you never know....

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