Darn and other expletives - back in A... - Atrial Fibrillati...

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Darn and other expletives - back in Afib after CV lasted just a week!

Rainfern profile image
34 Replies

And what a lovely week it has been! All my energy back, no bubbly heart beats, feeling top of the world. I know most everyone here has been through this so please bear with me while I swear. Silently, I promise. I knew CV was just to ascertain the next step, but one always hopes you'll be one of the lucky ones - just a year would have been nice!So now awaiting the next step. I'm not on any meds apart from anticoagulant so maybe a bit of tweaking with meds? But what I really need to know is if they'll consider me for ablation given it has reverted so quick. Any thoughts on this? I've emailed my EP and await his words of wisdom.

it would be great to hear from anyone who has been through similar stage of the journey with the persistent form of AF.

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Rainfern profile image
Rainfern
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34 Replies
BobD profile image
BobDVolunteer

Honestly the only way ablation would be ruled out would be if DCCV was unable to revert you to NSR. A week is actually quite good for many people.

Rainfern profile image
Rainfern in reply to BobD

Oh Bob bless you that's lovely to hear!

Mumursa profile image
Mumursa in reply to Rainfern

I’m glad Bob said that! I will only add that mine didn’t last as long as the tea and biscuit they gave me afterwards and I ve had two ablations since then!

Don’t give up hope! If it can go back into sinus it might just do that. Good luck 😉

Rainfern profile image
Rainfern in reply to Mumursa

Thank you Mumsura, that's so comforting, tea and biscuits and all! (I had a falafel sandwich which nearly finished me off!)

Dadtoalad23 profile image
Dadtoalad23

I can sympathise as mine only lasted three days !

Rainfern profile image
Rainfern

I hope you've found some helpful treatment since?

Gumbie_Cat profile image
Gumbie_Cat

Rotten to feel so much better then go back into it. A week sounds a good time though, so hopefully that bodes well for an ablation . Good luck!

Rainfern profile image
Rainfern

Thank you Gumbie 😊

Afibflipper profile image
Afibflipper

Sorry I must have missed if you posted about going in for CV & even more sorry your freedom was fleeting. 🥊 🥊 AF’s 🚦🚦 out🚥🤪 🤗

Rainfern profile image
Rainfern in reply to Afibflipper

🤣 Thank you Flipper. Took a moment to get that!Sums up how I'm feeling!

Gincalpe profile image
Gincalpe

I had two CV’s which only lasted a day or two with permanent AF. I had an ablation 4 years ago and got all my energy back and I am still fine. I do take an anticoagulant and blood pressure pills.

Rainfern profile image
Rainfern in reply to Gincalpe

Thank you - posts like this give me hope and keep me on the road! Glad you did so well with your ablation.

Yachtsman profile image
Yachtsman

Hi, you were lucky. I had two DCV's both kept me in sinus rhythm for just 3 days. Eventually had an ablation, which worked fine.

All the best

Colin

Rainfern profile image
Rainfern in reply to Yachtsman

Thank you Colin!

MummyLuv profile image
MummyLuv

it’s positive you can convert to NSR with cardioversion (I couldn’t) and so it opens up the ablation route to you. Hopefully you can see an EP soon and discuss. Wishing you all the best

Rainfern profile image
Rainfern in reply to MummyLuv

Thank you MummyLuv and sorry you couldn't take the ablation route. Hopefully I'll get an appointment with EP soon.

hanne6263 profile image
hanne6263

My cardioversion lasted 21 hours, and I had needed three shocks to put me back in sinus rhythm. I've still been listed for an ablation.

Rainfern profile image
Rainfern in reply to hanne6263

Good luck Hanne and thank you - mine took 2 shocks. All the replies here are giving me hope!

Gra55 profile image
Gra55

My CV lasted 5 days, rather than do another one they put me on amiodarone, two weeks later I was back to normal, they kept me on amiodarone for 6 months and been fine since (hope that's not the kiss of death lol).

Pindarus profile image
Pindarus in reply to Gra55

My cardioversion lasted 2 days even though it worked first time. But there is no reason not to proceed with an ablation as they are totally different procedures.

Rainfern profile image
Rainfern in reply to Gra55

Thank you. It does seem amiodarone works for some. Of course I'll wait for my EPs advice, but it does really help getting first hand experience from this forum.

Bluetonic profile image
Bluetonic

Like others have said, take it as a positive. It shows that your heart can maintain nsr.Now time to push for an ablation.

I had 4 cardioversions that lasted from 6 months (with amiodorone assistance) to 3 weeks.

But that all led to an ablation that has kept me in nsr for 6 years with only a couple of blips

Rainfern profile image
Rainfern in reply to Bluetonic

I'm so pleased to hear that. Its so helpful hearing people's first-hand accounts and to know there could be some light at the end of the Afib tunnel! Stay well!

andyk0001 profile image
andyk0001

My partner also had a cardioversion which only lasted a week.She then took amiodorone and was back in SR in three or four days. There were no obvious side effects from the amiodorone despite all the bad publicity surrounding it. She is now off the amiodorone and we wait to see if the Afib comes back. Her consultant is not happy for her to start and stop the amiodorone as a long term solution and of course is talking about an ablation.

Rainfern profile image
Rainfern in reply to andyk0001

Replied to your post below but think under a different response! Thank you

bassets profile image
bassets

I hope you can see your EP soon and resolve this. It sounds as though an ablation is in the offing. Good luck.

Rainfern profile image
Rainfern in reply to bassets

Think I got my responses muddled here! (Typical Afib fuddle! ) Thank you bassets!

Rainfern profile image
Rainfern

I shall be asking my EP about amiodorone - thanks for this. I know it doesn't suit everyone but heard a couple of good things about it today! Good luck and I hope your partner receives best treatment - they are amazing these specialist EP cardiologists. I would have complete confidence in mine if I have an ablation and any risks seem to reduce with experience and improved technology.

DKBX profile image
DKBX

Push for the ablation more so than Amiodarone. The latter should be considered a stopgap only.

UnhappyAF profile image
UnhappyAF

i had first CV and it lasted only 10 days. Then I had ablation and it lasted only 6 days. Then I had a second CV and knock on wood I am in sinus rhythm 5 months now.

DawnTX profile image
DawnTX

I went through the same thing last October. My cardioversion lasted 3 1/2 weeks and it was heaven as you say feeling alive, etc. then one night poof my afibwas fast as I was watching TV. My medication was changed and I was scheduled for another cardioversion Christmas week. Long story short, it completely failed. They tried to shock me three times. The purpose was to try me on a new med to keep me NSR but the medicine was canceled. It made no sense to do it without being in rhythm. My doctor and I had a long discussion while he had me on digoxin for a month. The digoxin failed twice and had to be doubled that month.

we had already started discussing a pacemaker, because they had come out with one that could help me. It had just been approved not that long ago prior to that there was nothing for me and I would’ve continued in heart failure.

Anyway, my doctor believes in quality of life and not repeating things that didn’t work whether it’s meds, cardioversions or ablation. I had too much scarring from ablation and the cardioversion failed totally. Meds only lasted weeks and had to be changed. So on February 13 I got the beginning of a new heart for Valentine’s Day when they finished my special pacemaker. On February 27 I had my AV node completed. How incredible the change in my life. I had to go into the hospital that day in a wheelchair. I was able to walk out to the car later that day. I had been unable to walk more than shuffle a few steps in my house for more than a year.

keep an open mind and don’t be afraid if you have faith in your doctor. I did with mine. I have no regrets. Best of luck.

Rainfern profile image
Rainfern

Hi Dawn, thanks for taking time to reply. You and others on this forum who've been on the long Afib journey do lighten my spirit and give me hope. I'm seeing my EP cardiologist on Thursday (they just phoned me with a cancellation!) and will hopefully come up with the next step of the journey. I'm expecting to be put on ablation waiting list, but also need to enquire about meds. At the moment I'm just on adoxaban and occasional beta blocker (propranolol).

It's a lovely bit of magic you got your new bit of heart on Valentines day! Good luck and good heath!

Lenaropes profile image
Lenaropes

So sorry. We all get our hopes up. It seems with all the medical advances and so many with AFib there would be a better treatment success.

Nezzera profile image
Nezzera in reply to Lenaropes

I feel the same way. Medication is just an expensive bandaid. Why isn’t there a cure yet?

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