hyper sensitive skin since meds started - Atrial Fibrillati...

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hyper sensitive skin since meds started

fairyfeathers profile image
21 Replies

hello to you all,

diagnosed possible Atrial Flutter/etopics/narrow complex regular tachycardia. Still waiting for a 48 hour Holter been about 8 weeks since requested. No follow up appointments as yet.

i started Edoxaban 30mg daily plus. Bisosporol 1.25 daily on. 20 July 2022. In the past week my skin appears to have become extremely sensitive. I am unable to wear my medical stainless steel bracelet which has caused intense itching and redness. A jacket with tight cuffs made my wrists red and sore. My usual natural shampoo seemed to cause my scalp to become hot and sensitive. Could it be my meds causing this which is a little odd as I've been taking them 5 plus weeks?? When I was in my 20's I used to have sensitive skin but this all settled down in my 30's. I'm 7 1 yrs young.

Any ideas lovely people?

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fairyfeathers
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21 Replies
Teresa156 profile image
Teresa156

Hi Fairy Feathers,

Sorry to hear about the problems you are now having with your skin. I can’t speak for the anti coagulant, as I’m not on any yet, but I’m on the same dose of Bisoprolol as you. I did have a skin rash, which started about two months after being on it. I’ve had red cheeks and an itchy red rash on my neck ( which lasted for weeks but thankfully did go) small, itchy red rashes that have come and gone, in between my fingers and also inside my elbows. These all happened, strangely, many weeks after I started and I really can’t blame it on anything else and I’m not normally one who gets rashes.

So, for me, they have come and gone, so perhaps give it a couple more weeks or so? perhaps they will for you too? If it’s not that, I’m of course not sure what else it could be, but it sounds like one or both might be the culprit, I agree.

Sorry too to hear that you haven’t had that monitor yet. Is it possible to call them and ask where you are on the list? It might gee them up a bit?

Teresa

fairyfeathers profile image
fairyfeathers in reply toTeresa156

Hi to you Teresa156, thanks for your response. It's strange about the rashes especially as you too had rashes for some unknown reason. I'm pleased yours disappeared! I seem to blame my new meds for causing me all sorts, but I expect it's just one of those things that has no explanation.

I rang the Cardiology Dept who informed me I was in a queue and they were under a lot of pressure. I had a little chuckle to myself as I felt like saying, I too am under pressure being informed I had a heart condition I didn't know I had and just given medication and told to wait for Holter. I will give them another ring next week as have now got the name of one of the secretaries to the Consultant whose special interest is arrhythmias. Don't hold out much hope for anything happening soon, but worth a try.

Hope things are OK with you.

Teresa156 profile image
Teresa156 in reply tofairyfeathers

Hi Fairy Feathers,

Ah, the joys of the NHS 😳🙄it’s definitely a waiting game all this, I can vouch for that. I’m not sure they can even blame covid any more, but I think they do as they now have a back log I gather, though how long that will take to get through is anyone’s guess. I bet it wouldn’t have been quicker pre covid though.

I am totally with you, in that people you speak to about this, tell you how much pressure they’re under etc. Since this diagnosis, I’ve experienced a lot of medics who are very ‘matter of fact’ about it all, telling me to pull myself together and get over it - ( I kid you not! ) unfortunately there’s a lot of those 😳

I’m not sure they’d feel the same, if they had this...

I do have to add that the rash on my neck did take quite a while to go….it was the longest one I had out of all of them. It was very itchy, so I can imagine how yours are feeling 😳 I did used to put creams on them, just E45 in the end as to be honest I wasn’t sure what to put on them at all. No creams did anything though, which makes me think even more it was the Bisoprolol.

Well, try and think of nice things, deep breaths! Have a good day and this will all get better 😊

Auriculaire profile image
Auriculaire in reply toTeresa156

The rashes might have been made worse by the heat. Quercetin is a good supplement for skin irritations like hives - a minimum dose every other day really improved my hives which I used to get regularly in winter. It might help rashes too.

Teresa156 profile image
Teresa156 in reply toAuriculaire

Hi Auriculaire,

I shall make a note of that stuff if it flairs up again and perhaps Fairy Feathers can get some too. I had the neck rash a while back now, when it was cold weather 😳, so can’t unfortunately blame the heat….but I do take note that you also had yours in Winter so I’ll get some in, just in case 😊 I do think the dreaded bisop was the culprit.

Hope you are doing ok. I was thinking of you when all those fires were happening in France.

Teresa

fairyfeathers profile image
fairyfeathers in reply toAuriculaire

Hi to you Auriculaire, thanks so much for the recommendation I will certainly look into this with the hope it will help me.

fairyfeathers profile image
fairyfeathers in reply toTeresa156

Thanks Teresa, I'm finding all this very frustrating. To me it's been a scary time suddenly being told that I have issues with my heart rate and then prescribed medication to take for life even if a Holter shows there is no problem. I understand that the likelihood of the Holter capturing my odd heart rate is probably low. But now I feel in limbo lots of anxiety, loads of questions with no answers, the Cardiologist I saw in A&E just gave me a leaflet, the medication and sent me off under the care of my GP. My GP is understandably not able to help me only to say wait for the results of the Holter. Patience is not something I have very much of as I need control and a cunning plan! Sorry you have not received the reassurance you needed and it's not helpful to be made to feel it's nothing and just get on with life.

I've tried lots of creams which unfortunately have done little so I feel it's a waiting game with the hope the rash disappears.

I wish you a lovely day too 😀

Teresa156 profile image
Teresa156 in reply tofairyfeathers

Hi Fairy Feathers,

I totally understand how you feel, as I feel the same, as do many others on this site.. I had this for over 10 years before diagnosed last year and I just used to think they were palpitations. I only had them every year or so and thought nothing of them as they’d be gone by the morning. They say ignorance is bliss and I really wish I could think like that now.

Yes, it’s horrid to have a ‘heart problem’ and definitely not something any of us ever thought we would have. My cardiologist said ‘it won’t kill you’ and I’ve heard that said by others too on this forum, as it seems that’s what the professionals try and tell us, but it doesn’t make it any easier.

I keep telling myself that I have to make the best of it and not waste time worrying about it, as it can take over.

My experience in A&E was very much like yours - they must follow a script! Yes, GPs pretty much don’t know anything about Afib. I would keep on at the hospital and tell them how anxious this is making you feel…keep ringing them, honestly, you might need to. If this goes on too long, there is also PALS of course within the hospital where you can complain, that might do something.

Once you’ve had the monitor, you should get a follow up appointment at your cardiology unit with a cardiologist at your local hospital to go through the results and/or an echo cardiagram too. make sure you do get a follow up - and that they keep you on their books and don’t discharge you.

Give the rashes another couple of weeks….see if there’s any improvement 🤞if not, it might be worth asking your GP, for some cream?

Good luck.

X

fairyfeathers profile image
fairyfeathers in reply toTeresa156

Thank you so much for your reassuring words, this helps me so much. My worry, well one of them 😂, is that my flutter is increasing. Mind you am I just noticing it more because a Cardiologist diagnosed the possible problem and gave it a name ? Who knows. My Father died in June 2022 from heart failure, he had a heart pacemaker fitted in 2007 and was very active until April this year which was remarkable as he was nearly 97yrs old. His heart issues, (heart block) was sorted out with his pacemaker which gave him a full and fabulous life. I think once I get a definite diagnosis I will settle down a little.

I will give Cardiology a ring this week to try and get an update on the Holter.

Thank you again.

Teresa156 profile image
Teresa156 in reply tofairyfeathers

Hi Fairy Feathers,

I am so sorry about your Dad, that couldn’t have been an easy time for you earlier this year - and now this to contend with as well.

I do believe that once we get that ‘diagnosis’, it seems to make it in capital letters and bold whereas before it was a possible feint scribble, if you know what I mean. We definitely notice our hearts more and I think it’s a ‘thing’ that comes with the territory now sadly. I certainly never used to give mine much thought.

My Aunt is approaching late 80s now and has had Afib since she was 60 and has been on Atenolol ( another beta blocker)all this time, plus a statin and just a daily soluble baby aspirin. No Anti coagulant. She hasn’t had another episode since she was 60. I don’t think she has ever given her Afib a second thought and perhaps that’s the key.

I daren’t say anything about being on an OAC to her ( she must know about these things) it sounds like her GP doesn’t want to change something that isn’t broken after all these years ….I just wanted to let you know too, as there is hope and it’s not all doom and gloom with this condition 😊

Take care & good luck with getting that monitor!

X

fairyfeathers profile image
fairyfeathers in reply toTeresa156

Thank you Teresa for your wise and kind words. Puts it all in perspective.

Thomas45 profile image
Thomas45

A very rare side effect of bisoprolol is urticaria also known as hive's, itchy rashes which can also be painful. 7 weeks after I was prescribed bisoprolol I started with intermittent painful rashes. As far as side effects go, very rare is deemed to be between 1 and 9 people in every 10,000 who take it.

The first GP I saw dismissed the idea that it could be bisoprolol which was causing the rashes.

Before I saw a different GP I took photos of the rashes. She immediately recognised them as caused by bisoprolol and I was weaned off it. I don't take any beta blockers, and in my 26 years of AF I only took one beta blocker, that bisoprolol for about 14 weeks. I still take an antihistamine once it twice a day, and I also get rashes if I eat tomatoes or bananas, which prior to bisoprolol caused me no problems

Auriculaire profile image
Auriculaire in reply toThomas45

Try Quercetin. It works by damping down mast cell activity. I was getting hives every winter. Since I started taking it at a low dose every other day no hives.

fairyfeathers profile image
fairyfeathers in reply toThomas45

Thanks Thomas45 for your interesting and helpful response, much appreciated. I sometimes think the medical profession dismiss us if we mention a possible side effect to medications. I have to be careful with the fillers used in some tablets as they cause me bad issues. I am listened too at my GP surgery now as they admitted it was possible problem? It's interesting that you mention an issue with certain foods now giving you a reaction. Suddenly I cannot seem to tolerate mustard and tomatoes , all very odd! I did not know if I could take an antihistamine tablet I will look into this. So thank you.

Thomas45 profile image
Thomas45 in reply tofairyfeathers

I should have added that I was first prescribed a beta blocker by a hospital doctor following my heart beating very rapidly during an operation to remove my appendix about five years ago. He said he couldn't understand why I was not on them I mentioned that I as asthmatic, which he rejected as a reason.

Apart from the urticaria I had a rare side effect, a very sudden attack of asthma. My lungs felt tight. I couldn't breathe. I was in a pharmacy at the time. As I also had chest pains an ambulance was called and I subsequently spent 2 nights in hospital.

JOY2THEWORLD49 profile image
JOY2THEWORLD49

HiI think it is PRADAXA that gives me a tiny hard rash. But I do know that on 150mg x twice day my natural teeth hurt. Reducing to 110mg x twice a day they stopped hurting.

Cheri JOY. 73. (NZ)

fairyfeathers profile image
fairyfeathers in reply toJOY2THEWORLD49

Hi to you. It’s so annoying when a medication that will alleviate symptoms and help is also the one that our body seems to react too? It’s good by tweaking your meds your teeth stopped hurting!

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply tofairyfeathers

HiI was angry that I was not told about the increase in PRADAXA. My age 70 then and heart condition AF and now found out ECHO Feb2021 that I have enlarged heart. And now I was told that I have a SOFT SYSTOLIC HEART MURMUR. NO CARDIVERSION, NO ABLATION.

Adiodine has rash side effect and skin sensitivity.

New research don't take statins after 75.

Less meds the better.

cheri JOY. 73. (NZ)

fairyfeathers profile image
fairyfeathers in reply toJOY2THEWORLD49

My goodness you have lots going on that must be difficult. I agree less meds the better. Up until the beg of July 2022 I was on no regular medication. When I was taken into A&E at the end of June 2022 with tachycardia the ambulance crew could not believe I did not take regular meds. I explained I always try the natural route to alleviate health probs if I can. Mind you I came out of hosp with anti coagulant and a beta-blocker and was told these meds would be for life! Take care of yourself

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply tofairyfeathers

HiI only had B12 Solgar 1 x 1day a week but with the Thyroxin I have increased this to 2 days per wee.

Earlier in the year I was put on Lorestin or something off the family of Metroprolol, to bring down especially my BP. Didnt and left my urine filled with protein.

So I stopped. Urology said in May 2019 that I'd never have a stroke over it but in Sept I did.

ManageMyHealth is great if we get all the information.

Don't use DOVE it gives me a rash!

cheri JOY. 73. (NZ)

fairyfeathers profile image
fairyfeathers

Hi to you. You seem to have had a lot of issues with medication which is not helpful when going thro the stress of being unwell. That must have been a shock having a stroke after being reassured that this would not happen. I wish you well going forwards

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