Some input from the community - Atrial Fibrillati...

Atrial Fibrillation Support

32,400 members38,733 posts

Some input from the community

riffjack846 profile image
12 Replies

Just wanted to get some of you folks opinion on something. I started my Afib journey back in 1999 and after countless Cardioversions, homeopathic regimens, anti-arrythmia drug regimens, lifestyle changes nothing has worked until recently when my doctor put me on 200mgs a day of Amiodarone. This is the first time in years I've been Afib free for more than a few days. In the past the doctors have said I wasn't a very good candidate for an ablation but now it seems I am. Here's my dilemma. I have an opportunity to have an ablation done on Sept. 2nd but I am currently in NSR bliss. So, would you have the ablation done, or wait until the Amiodarone stops working or presents ill effects? I appreciate all feedback. Thanks for reading. Mike

Written by
riffjack846 profile image
riffjack846
To view profiles and participate in discussions please or .
Read more about...
12 Replies
Becksagogo profile image
Becksagogo

Hello. I'm pleased to hear that the Amioderone has done its thing and put you in NSR. To take it long term though may not be a good idea as it has devastating side effects for some people. I thought that the idea was you took it short term, had the ablation and then stopped taking it.Please research this drug as much as you can before you make any decisions.

What Becks has said makes a lot of sense. I don’t know if they are called anything different in the States, but have you recently had an echocardiogram, a scan of the heart which determines how well it functions, whether or not it is enlarged and the performance of the valves. This would give a guide as to how suitable you might be for an ablation. Also, as you are in the States, it might be worth researching and enquiring about a Hybrid MiniMaze procedure which some say can be more effective for patients in long term persistent AF.

Here in the UK, if an EP offers an ablation on the NHS you can be fairly sure they are confident that it will be beneficial to the patient because they are salaried from the State rather than financed by insurance companies. You are relatively young and taking Amiodarone long term can be difficult for some so it is, understandable, a difficult position to be in but others here may help you to reach a decision……..

BobD profile image
BobDVolunteer

Do it now. Amiodarone is horrid nasty drug and should not be taken long term. Don't miss the opportunity.

secondtry profile image
secondtry

No experience of the longevity benefit of Amioderone but my vote would be ablation now.

healingharpist profile image
healingharpist

Hi Riff, I'd also recommend an echocardiogram to give more info on health of your heart. But my cardiologists in the US have said to use meds for as long as they give you a good quality of life, and save the more invasive methods (which have their own side effects and unpredictable outcomes) for "last ditch" or when you have no good drug options left. My EP also says ablation methods will improve in future years. 200 mg amiodarone is considered low-dose. It is reported that 100-200 mg amio causes few or mild side effects, if any, and I was glad to read the clinical studies that support this. Mom has been on 100 mg/day amiodarone for almost 23 years now, has never had another afib episode, and has never had any side effects; she was told by her cardio that low-dose long-term use is OK with periodic blood tests, as she does. Seems only common sense that more troubling side effects may appear if taking 400 -800 mg/day.

Thank God, I am still doing well on 25 mg/day metroprolol and hope that continues forever, but seeing my mom's experience (and another friend's), I am keeping low-dose amiodarone on the list. Just FYI, they also still prescribe dronedarone (similar to amio but without the iodine molecule) in the US for people who don't do well on amio. Wishing you continued good health on 200 mg! Diane S.

riffjack846 profile image
riffjack846 in reply tohealingharpist

Thanks so much for your feedback. I was thinking along the same lines after some research on my dosage.

healingharpist profile image
healingharpist in reply toriffjack846

You're welcome. I was also thinking, they schedule ablations frequently around here (Ohio/KY), don't know your State, but if you're near any big cities you'd probably have other opportunities should the need or desire arise. All good vibes. D. S.

mav7 profile image
mav7 in reply tohealingharpist

Great info in your original post, harpist !

May I ask if you are in NSR and have paroxysmal or persistent AFib ?

healingharpist profile image
healingharpist in reply tomav7

HI mav, I have had paroxysmal afib over about 12 yrs w/ some long gaps. Metroprolol is working, also got rid of ectopics which was so distressing, and I keep flecainide in reserve in case it appears again. My EP said "hold off ablation as long as you can" because he could see from my heart measurements on echocardiogram that I have not had any remodelling of my heart tissues in 12 yrs. If remodelling occurs, there is a higher chance of recurrence of afib. Are you also paroxysmal, mav? Cheers, Diane S.

mav7 profile image
mav7 in reply tohealingharpist

Persistent.

Rate control with metoprolol since diagnosed 1.5 years ago is keeping control at present

Have not elected ablation, did have cardioversion which lasted for 3 days.

Thx for reply and best to you for good health.

MummyLuv profile image
MummyLuv

Great to hear Amiodarone has you back in sinus Rythm 👏👏

It’s a personal decision but I would have an ablation sooner rather than later as afib is progressive and catheter ablations have a higher success rate the earlier you have them.

Having been in persistent afib for a long time I would discuss both catheter and mini maze options with your cardiologist. The mini maze is surgery rather than a procedure but it has more success in long term afib.

Rdiehl01 profile image
Rdiehl01

Personally I would get the ablation. You got this:)

Not what you're looking for?

You may also like...

Afib following Ablation

Had an ablation done 11 days ago. Was feeling great and no Afib up until this morning. Been in...
Nickr282 profile image

Post ablation short of breath

I am 74 years old. I had a catheter ablation 3 days ago having been in permanent Afib for 5 months....
jnbee profile image

life sucks

So, stopped amiodarone because it was killing me. Then, AFib comes back stunningly. So, back on...
PaulaEKing profile image

Procedure for Morbidly Obese with AFIB

I’ve had AFIB for about 6 years now and am morbidly obese. Up until I got Covid a year ago, I was...
jackibar profile image

How long does Amiodarone last and stop episodes of AFib occurring after cessation. Now I feel very apprehensive and could not sleep.

I wonder how many days Amiodarone will still work after stopping it after 3 months of taking it. I...

Moderation team

See all
Kelley-Admin profile image
Kelley-AdminAdministrator
jess-admin profile image
jess-adminAdministrator
Emily-Admin profile image
Emily-AdminAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.