Shellbyshoo43: Hi everyone, has anyone... - Atrial Fibrillati...

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Shellbyshoo43

shellbyshoo43 profile image
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Hi everyone, has anyone Had afib witha flutter also . I’m going into Hammersmith hospital for an ablation and to sort the flutter . I’m so nervous, but I know I’m in good hands .

Love shellbyshoo

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shellbyshoo43
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12 Replies
KMRobbo profile image
KMRobbo

I had AFib, a PVI CRYOABLATION for Afib, , then 9 days later developed reentrant AFlutter at 140bpm, and had to have an RF ablation for that a month after the first. My flutter was right atria.(most common) The ablation is more simple that the Afib ablation in the left atria and took less time.

I had no issues, was home the same day. Flutter stopped then and has never returned. 3 .5 years.

Dont worry , all the best.

shellbyshoo43 profile image
shellbyshoo43 in reply toKMRobbo

Thanks for replying, how long had u had this before having procedure? Shellbyshoo43

KMRobbo profile image
KMRobbo in reply toshellbyshoo43

I found out I had Afib September 2015. It progressed and was getting unmanageable by mid July 2017. I arranged an AFib PVI cryoablation ablation for 29th January 2018. That was fine and stopped the AFib. No problems at all. Then on the 9th day after, I developed the reentrant A Flutter, rate controlled at 140bpm by the diltiazem I was taking for rate control for the AFib. My EP believed that the AFlutter was caused by the flecainide I was also still taking during the blanking period for the AFib ablation. There was no sign of flutter in any of my ECGs nor was it apparent during my ablation. I was totally asymptomatic in AFib ( only sign was a slight fluttery feeing for less that 10 seconds as I went into AFib, and then I was usually at around was 165BPM resting and I could not feel anything and I was not noticeably restricted in any way. However in flutter I was only really comfortable lying down or sat down. I was very breathless just walking into the kitchen for a drink. So I could not do anything in flutter, basically disabled. Consequently I had a second ablation for the flutter 26th Feb 2018, which stopped the flutter, and it was not returned since.I carried on taking flecainide and diltiazem until close to my 3 month post ablation appointment with my EP. I believe this was important to protect the AFib ablation, as the Afib is more difficult to eliminate by ablation, where the right atrial flutter is much easier (normally). Also flutter ablations are 90% successful and more likely to be permanent fixes.

I am not medically trained, just my experience.

shellbyshoo43 profile image
shellbyshoo43 in reply toKMRobbo

Wow , thanks so much for all this info . I’m pretty much same as u . I’ve also just found out Tony Blair had this . So I live in hope . Can I ask how old u are ? I’m 54 😊

shellbyshoo43 profile image
shellbyshoo43 in reply toKMRobbo

Just see your profile age 😌

KMRobbo profile image
KMRobbo

61 was 57.5 when i had the ablations, was quite fit and had no other comorbidities

Karendeena profile image
Karendeena

Hi Shelbyshoo43, I have both but luckily controlled with medication for the time being

shellbyshoo43 profile image
shellbyshoo43 in reply toKarendeena

Well this will be interesting . I’m still in hospital. It’s been a rough time for me 😊Thanks for the reply

mikelocke profile image
mikelocke in reply toshellbyshoo43

The ablation for A Flutter was a breeze, had it two years ago and stopped the flutter full stop. On the meds my heart got a bit slow so had a pacemaker fitted eight months ago. Now everything going fine, just every two or three months I might get the odd ectopic coming through for a couple of hours. not a problem. The pacemaker is brilliant, so much more energy and the ability to exercise. Love it.

Karendeena profile image
Karendeena in reply toKarendeena

Hi shellbyshoo43, have you had your ablation yet? Hope you are feeling better. My EP told me that ablation for flutter us much more successful than afib often over 95%

Jctga profile image
Jctga

It’s a scary procedure but you will do fine. I was surprised that I felt like I’d been run over by a truck afterwards but feel so much better 6 weeks later than I’ve felt before ablation.

I had both and when I went for my ablation I went into AFib under the anaesthetic- once they fixed the AFib the flutter stopped and they didn’t need to do anything else. There is a chance it may come back and I was told they can do it at a later stage if necessary

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