Vagally Mediated PAF - a Patient's view

[secondtry]

I recently came across this article again, although now 19 years old I think it might help some enquiries here afibbers.org/victor2.html I have found it very useful.

[BobD Volunteer]

Interesting but as you say 19 years old and in AF terms that is a lifetime. A lot has changed since then. but much still applies.

[Ppiman]

That was very interesting, thank you. It seems to me to be still relevant and it's surprising, apart from ablation and maybe some investigative improvements, how little has changed in terms of treatment. I only wish that my persistent AFl was amenable to tablets.

[Ijacp]

Thanks for posting. What an excellent article. Especially for me. I’m a 51 male and have had VMAF for approx 14 years now. Was getting it on average once a month at beginning with episodes gradually increasing in duration over the years from a few hours to 36 hours at longest. Then this year, 2019 they became more frequent. Once a week then more. No obvious reason why. This last week it’s been most nights. Saw cardiologist at Freeman for first time about 10 years ago, got flecainide PIP which never used once, just rode each episode out. She recommended daily aspirin which I took until a few years ago when NICE guidelines changed and my GP (who also has AF) recommended I stop aspirin. Went back to GP a couple of weeks ago and he re-prescribed flecainide which I will get around to taking for first time soon but under supervision at A&E for first time hence I’ve not yet been there. Now waiting for an EP appointment at Freeman as I now want to pursue the CA option. So hello everyone, just joined this group and that’s my story and that article appears to also be my story! I had already done a lot of my own research, I take magnesium, potassium and fish oil supplements. The big takeaway from the article for me is the difference in VMAF to other AF and the fact that it might (hopefully) not progress to permanent. I’ve also now discovered Dr Gupta. Appears to me that not much has changed since the article was written. It’s very insightful. Thanks for reading and good luck to everyone.

[secondtry in reply to Ijacp]

So pleased you found it useful. I would look at taking CoQ10 supplement as well.

[Ijacp in reply to secondtry]

Thanks secondtry - I just ordered some Wenxin Keli but CoQ10 is also on the list

[secondtry in reply to Ijacp]

WK that's a new one to me, I haven't heard it mentioned before will put it on my research list and mention it to my Naturopath who is part chinese trained.

[Ijacp in reply to secondtry]

I just picked it up from internet and it sounded promising - would be interested to hear what your Naturopath thinks and I’ll post some feedback once I’ve tried it.

[secondtry in reply to Ijacp]

Thanks!

[Westsidestory]

Very good article and oh so true , my symptoms , spot on ! Hope all gets sorted , having been plagued for forty , having ablation on Monday ! 🤞

[secondtry in reply to Westsidestory]

Good luck!

[Westsidestory in reply to secondtry]

Thankyou will let everyone know how I got on with the ablation , 🤞

[Faraday954]

This describes me almost perfectly! I was diagnosed at 40, had episodes lasting 45 minutes every 3-4 months, then once a month until I started metoprolol a year ago. Every single episode happened when I was lying down to fall asleep. Makes it hard to go to bed, even though things have improved since starting beta blockers!

I have noticed I tend to get skipped beats when I bend down and drink cold water, but I thought I was imagining things. Nice to know I’m not the only one!

[secondtry]

Absolutely you are not the only one. It is amazing how relevant the Vagus Nerve is and how most medics (not trained to advise) don't even mention it.