Dr Sanjay Gupta - POTS

[jeanjeannie50]

Talk on how POTS can affect people and a new pill to help:

youtube.com/watch?v=z4Qtrz6...(Not working as expected?)

[Ragnarok450]

Interesting video. I most likely have POTS... Discovered a few years ago that my standing heart rate was usually above 90, sometimes as high as 120-140.

Doctors always said it was just because of how tall I am, but then again, when I'd mention POTS, they'd have no idea what I was talking about. Will be worth mentioning to my cardiologist next time I see him.

Do you think POTS has any links to afib? Increases the risk etc. Could be part of why I got af at such a young age.

[jeanjeannie50 in reply to Ragnarok450]

I'm afraid I know nothing about POTS, but know that a few people on this forum have it and thought this information would be helpful.

[CDreamer]

Thanks Jean - I hadn’t seen that. Not a Med I would want to take though as it’s not addressing the cause - which is ATP/ADP energy conversion within the Mitrochondria - or so it is believed. Body hacks are the best way of managing it that I have found & the conventional advice is drink more water & increase salt intake.

I am on a steep learning curve with this one at the moment but it is linking together so many of my problems. I have been advised to take D-Ribose which is a sugar in a form that is easily accessible & which allows the mitrochondria to recover. I’ll find & post the full explanation as it is really interesting, not yet accepted though.

All I can say is that it seems to be really helping me.

[jeanjeannie50 in reply to CDreamer]

Gosh, that's good if its helping you. I have heard of D-Ribose before and think it may have been mentioned on this forum. I guess you have done a search on the HU site to see if any posts relate to it?

I'm really against taking any pills and at the moment just take the one's that I really have to Warfarin and Levo for my thyroid. I find I sleep better without Flec and Metoprolol and at the moment my heart rhythm is fine. I agree with you that it's far better to try and treat the cause naturally.

I hope you continue to feel well.

Jean

[CDreamer in reply to jeanjeannie50]

There are posts on Fibromyalgia & CFS sites as it mainly recommended for those conditions with variable results. The problem is there is only Dr Myhill in the UK who tests for this & I was unable 4 -5 years ago to get access as she had closed her list & wasn’t accepting any new patients. Plus I had just been diagnosed with Myasthenia which rather shadowed everything else.

Now I am generally more stable I feel more inclined to experiment - I am seeing Nutritionist who has also recently qualified in a Functional Medicine on Fri so will discuss with her then.

My new aim is to get the PM sorted & wean off the immune suppressants & reduce the Pyridostigamine.