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Atrial Fibrillation Support

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Persistent Atrial Fibrillation

cuore profile image
19 Replies

For those who have had ablation for persistent atrial fibrillation, how long were you able to remain in sinus, especially after a second or third ablation? I have had two ablations and I still cannot remain in sinus rhythm.

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cuore profile image
cuore
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19 Replies

1 ablation, NSR for 21 months and counting

Luludean profile image
Luludean

Hi cuore,I had 2 lengthy ablations in St Mary's Paddington. Both failed. Good luck with your next one, you are brave.

PVI and RF ablation for PAF 2013. Major reduction in AF burden. 2017 persistent atypical atrial flutter. 3D mapping showed only a focus at coronary sinus. Ablated. Relapsed at 2 months, now permanent AF/AFL. Nebivolol for rate control.

BobD profile image
BobDVolunteer

Third ablation lasted ten+years but now experiencing Paroxysmal Atrial Tachycardia adn waiting for ablation 4.

cuore profile image
cuore in reply toBobD

I admire how you have been 10+ years after your third ablation. Were you in persistent AF before your third ablation because that is the stage I am in now? Plus, I was in persistent for both my first and second ablation with the second lasting only 5 months. I am quite discouraged that I am not going to get much longevity even after a third. So, it is encouraging to hear success stories

BobD profile image
BobDVolunteer in reply tocuore

It was still paroxsymal but I suspect only because I was also taking just about the maximum amount of rhythm control drugs as well. Being off those for ten years was wonderful.

Coco51 profile image
Coco51

Hi cuore. After my second ablation for persistent AF I had frequent episodes of AF for the first 4 months. After that 10 months NSR. Halved my doses of Flecainide and Bisoprolol and started to have episodes every afternoon😣. So increased the Flecainide again (100 x2 per day) and have been in NSR again for 3 more months except for 1 mild episode lasting 3 hrs. I'm really grateful for the respite and every day in NSR is a joy. I have been told I might eventually need a 3rd ablation or a pacemaker... but not yet.

cuore profile image
cuore in reply toCoco51

I have had the anterior wall ablated but there was no mention of the box. At this stage in the Canadian system, I have been given three choices -- a pacemaker, an ablation or increase of anti-arrhythmic drugs ( I guess that's an attempt at chemical cardioversion). So, I am trying the chemical carddioversion first, but I do not have high hopes as the recent electrical cardioversion lasted only 5 days. I am astounded that whether it is in England or Canada, the EP's are quick to talk pacemaker.

Coco51 profile image
Coco51 in reply tocuore

Yes I was a bit taken aback by mention of a pacemaker. But I do have a very slow heart rate. Resting In the 40s by day and in the 30s at night. I also get a certain number of pauses. But it's been like that all my life and I feel ok (except when in AF) so the pacemaker is not planned yet. It is bit of a last resort as I understand it. Personally if need be I would have a third ablation. My second was pretty major and it has worked much better than the first. I really hope you have some success with the anti-arrhythmics. It must be so frustrating when you have travelled so far for your treatments. Best wishes to you.

Roony39 profile image
Roony39

Hi cuore

I was in persistent af for at least two years before I was diagnosed. My first ablation held for 3 months ( with some episodes ) before going back into persistent. 2 nd ablation ( on dronedarone ) 27 th February last year and I’m still af free , and came off dronedarone in July. Good luck .

cuore profile image
cuore in reply toRoony39

Thank you Roony39. How encouraging as you are AF free for almost a year from persistent. May you stay in sinus rhythm. Your story gives me great hope.

ETFCfan profile image
ETFCfan

Hello, I was in persistent AF had two cardioversions which failed after six weeks. My first ablation lasted six months. Had a second ablation and was completely okay for about 16 months then got paroxysmal then about two months ago it went into persistent. Like you reluctant to go for a third as I’ve been told the third may be longer than the others which were six and seven hours and no guarantees of success.

Barb1 profile image
Barb1

Paroxysmal A F undiagnosed for years leading to persistent AF and DCM. Ist ablation about 6 months. 2nd a year. 3rd 18 mths. 4th coming up to 4 years now experiencing ectopics but I have been in a lot of pain recently with spine condition.

cuore profile image
cuore in reply toBarb1

Your history is most interesting as each time you got an ablation you were able to remain in sinus rhythm a while longer culminating in your fourth ablation at 4 years and going. Your story certainly encourages me to go for a third ablation.

Barb1 profile image
Barb1 in reply tocuore

The other good news is that the longer I am in AF the better for my heart structure which is now normal with only mild diastolic heart failure. Plus each ablation took less time, 7 1/2 hrs, 5 hrs, 4 hrs, 3 hrs.

cuore profile image
cuore

I have had three cardioversions: pre and post first ablation and post second ablation. But each lasted only 3, 4 and 5 days respectfully. My first ablation was short-lived and my second lasted about five months. My first was probably seven hours long but the second was only an hour which is why I am surprised I had minimal results.

I know I will be going for a third ablation and even welcome it as long as I get some longevity in sinus rhythm. I find being in AF very limiting and depressing.

whiststev profile image
whiststev

Hi ,

I had an ablation during open heart surgery (surgical ablation) prior to this I had permanent AF for 6 months and i've been in NSR since the op although I get ectopics on a weekly basis . May I had that this type of ablation is quite rare ,they say its more successful due to being able to get access to all the pulmonary veins .

Regards

Steve

grandmadogs profile image
grandmadogs

I had 2 failed cardioversions followed by an ablation last September for persistent AF and (fingers crossed) still in NSR.

Kahst3 profile image
Kahst3

1 abalation and 172 days and counting!!! Thank God.

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