Essential Tremor: Have Essential Tremor... - Atrial Fibrillati...

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Essential Tremor

atomic74 profile image
9 Replies

Have Essential Tremor right hand. Now the left hand is showing signs! How does one survive with both hands bouncing about? Have enjoyed AF for 9 years. Now I am told I have "mildly impaired left ventricular function with dyskinesis in the inferior septal region". Wow...what ever that means! Perhaps a kind knowledgeable person could explain for me. Have just had an appointment to see consultant postponed until November. Thank you.

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atomic74 profile image
atomic74
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9 Replies
CDreamer profile image
CDreamer

I am not a medical professional but 'mildly impaired ventricular function' means that the lower part of your heart - the ventricle isn't working 100% efficiently. Dyskinensis - is a complicatied way of saying there is an unusual movement. Inferior septal region refers to the exact part of the heart which isnt moving exactly as it should.

Perhaps you should ask your Doctor (GP) to confirm this and ask them to explain to you what it means in terms of health and well-being.

I would have thought that if this meant something really nasty they would have had you in very quickly - rather than wait until November.

It is hard to sit with something which you don't know the meaning of and having to wait - and stressing about it really doesn't help so do go and talk to your GP.

souljacs4 profile image
souljacs4 in reply to CDreamer

I have just been told the same thing. CDreamer post is spot on. I have now been told I need an MRI heart scan to clarify the results. echocardiograms are not always accurate.

atomic74 profile image
atomic74

Thank you CDreamer and souljacs4, I have an appointment with GP in a couple of weeks, perhaps he will give me further details, and tell me it is nothing nasty...I hope.

!

irene75359 profile image
irene75359

My mother has a severe tremor in the hand she uses to hold essential cutlery. The occupational therapist gave her weighted cutlery which can be bent (once) to the best angle for eating, and she has found this very helpful.

atomic74 profile image
atomic74

I must try and get hold of the weighted cutlery, sounds good. Thank you.

maryjc profile image
maryjc

I two have essential tremor and it shows in my feet as well as my hands although I don't really notice it in my feet my chiropodist told me it was there. I have found that gradually I have learned to work with it, but when I am cooking or doing things the floor seems to collect its share! Very annoying. Mine came at about the time my Afib was proving a problem and I asked the forum if there was a link. Both seem to be connected to the Vagus Nerve but other than that I could find no medical link! Any other ideas out there now?

atomic74 profile image
atomic74 in reply to maryjc

I have found something rather interesting: "MR-guided focused ultrasound for essential tremor" This from the Imperial College Healthcare NHS trust. Lets hope they finished the test quickly and the specialist equipment can then be placed around the UK!

maryjc profile image
maryjc

Sounds interesting. Do keep me in touch. I find one of the most embasadding things is when my knife and fork decide to do their own music and dance on my plate when eating in public! Ah Well

atomic74 profile image
atomic74 in reply to maryjc

Me too! Will take the details to GP and ask if he would put my name forward to take part in the test.

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