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Lone AF.

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Can someone explain what lone AF is please . I have just recently been diagnosed and a lot I don't know about it. Also I still get palpitations but not as bad as I did . When do I go need help . Is it just if they get really bad and don't stop ? I would be grateful for any help.

7 Replies
pottypete1 profile image
pottypete1

Lone Paroxysmal Atrial Fibrillation is a condition where you suffer from Atrial Fibrillation but it comes and goes.

The difference is that unlike those with other underlying heart problems th AF is all you have and furthermore it has come about for no identifiable underlying reason.

I hope this clarifies it for you.

Pete

in reply topottypete1

Thanks Pete. I haven't been told if mine is but I was curious. I don't have any other heart problems that I know off.

CDreamer profile image
CDreamer

Hi Jacksnanna - have you been referred to a specialist cardiologist yet? Have you questioned your doctor about anti-coagulant rather than aspirin yet?

Unfortunately we do have to be quite persistent and quite assertive as AF can be dismissed by some GPs who are not up to speed with latest thinking on treatments for AF.

You can ask your doctor for guidelines as to when you should seek help but in general AF episodes are not considered an emergency unless you have chest pain, faint, are dizzy or feel very unwell - then call 999. It also depends upon how long your episodes lasts and how high your heart beats, if it is too high for too long then you will feel pretty tired and may need to seek treatment.

Getting used to AF takes some doing and quite a lot of time and it can be quite scary if you are symptomatic.

djmnet profile image
djmnet

"Lone" afib means you have only afib and not any other identifiable condition such as high blood pressure, diabetes, heart disease, etc.

Lone AF in my book is good news as you have no other physical heart problem. You may still have to take pills, but there is more chance that lifestyle changes (e.g. mindfulness to reduce family stress), supplements and diet will lower the frequency of episodes. Good luck.

Dodie117 profile image
Dodie117

Get your GP to refer you to an EP - specialist in heart rhythm problems. In general the earlier it is identified and treated, the better.

You may be given medication or you might be a candidate for ablation and you may need anticoagulants. All this will be discussed with you by your EP. Read everything on AFA website. Knowledge is power. Good luck 🍀

Thanks everyone for this good advice. I have just had a phone call to say I am going to be prescribed Warfarin instead of Aspirin . I believe it works better , hope there are not too many side effects . I suppose it depends on the person.

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