Recently I had a prolonged event of tachycardia, in all its types, but with occasional episodes of AF when, after about 3 hours of very uncomfortable fast AF, I realised I had gone back into nsr. That was a week ago and was such a relief after feeling unwell for such a long time, the longest I've ever experienced, that I still can't quite believe it. I'm still getting occasional ectopic beats but after four weeks of being severely out of rhythm they seem relatively mild in comparison.
I've been on 120mg Diltiazem twice a day for just over three weeks, after p-i-p Flecainide and Bisoprolol didn't work for me, and (long story short) was given 15th December as date for a fourth ablation at the BHI.
I spoke to the arrhythmia nurse on Monday and told her that I'd gone back into nsr, a phone call from her today via the EP gave me the choice of staying on the Diltiazem and postponing the ablation to another time, or stop taking the meds by tomorrow in the hope that I would go back out of rhythm before the 15th so the EP could see exactly what was going on when he came to do the procedure.
Bristol want me to have an ECG, just to confirm I am in sinus rhythm, so that's booked for tomorrow with the GP. Although my gut feeling is to carry on taking the Diltiazem while it seems to be doing its job, I do wonder, having been given the choice (which I don't like having to make on the spot, it's too big a decision to my mind), whether I should go ahead and have the ablation while it's being offered.
What are other people's experience with Diltiazem? Is anyone on it long-term and if so what dose do you take? Also do you have any side effects from taking it for a long time?
Thank you for reading this and for any advice or opinion you can give.