Hi all, my AF journey is a 10 year one, to date. I've had 2 ablations, one for AF and the 2nd for AF and flutter. Numerous cardioversions, over night stays in hospital with heart failure several times. Since February of 2015 I've been back on Sotalol. Initial dose was 240 a day, dropped to 160. (80 twice a day) I'd had 12 days of a hr of over 160 at rest with no let up. I couldn't have another cardioversion at that time because my INR wasn't in range. After being at my wits end with it and pestering my AF nurse, the sotalol was prescribed and after 2 doses my heart rate dropped to mid 60's., thank goodness! Jump forward to now, I'm still on 180 a day and although I feel the AF/flutter at times, I've had no real bad 'episodes'., just a feeling it's being 'masked' and is underlying- every day., with a slowed down, some days more than others, very tired feeling. I have had employment during the last ten years, but at two jobs I had two very bad episodes which resulted in very low times for me waiting to see how I could be made to feel better, hence the ablations, cardioversions..
I have a supportive husband but I want to work again, but I'm scared.. What if I get a job and I have a bad episode again. This AF strikes as and when.. I've learnt stress is a big trigger and I know of other triggers so I'm aware of what can set me off. Do I look for a job, one I feel I could do- knowing AF may strike me down again, do employers need to know of my condition and will it hinder my application? I have a hobby, making jewellery - which has been like an escape for me when I've been really low and I have wonderful children. I just feel I need something more, for me, but how realistic is the thought of working again. I know people with AF do work, how do you cope? And has anyone accepted that not working is best for them? I'm so torn 😔