How long have you live with metastatic(bones,lymf nodes..)prostate cancer?

[petrig]

How long have you live with metastatic pca and with what medication you have managed?

[mrscruffy]

61 years old. 9 years in June. Lupron, Abiraterone and Lynparza

[pjd55d]

diagnosed 8 years ago

Lupron ( Provenge 7 yrs ago )

switched to Eligard because of availability

many of the usual side effects - pretty much dealing with them though they can be nasty but I put up with it - because the ATD works for me

just shoveled snow

travel a lot

going to Machu Picchu in Mar

one foot in front of the other

try hard not to be a cancer victim - living life with cancer

sometimes I get tired of pushing forward - but then I push and am glad I did

Best

[Fuzzman77 in reply to pjd55d]

Enjoy Machu Picchu. Been there three times, first was over 21 years ago. It has certainly grown as you can tell by how many are selling stuff at the bottom. There were only five when I was there first time. Very magical place. Found a large ax head in Manu last time. Great place and lots of people going there from Cusco. Great jungle. Lots of butterflies if you go at the right time. In around September. And you can see the national bird there. Very orange, but you have to get up early. And if you like parrots there were literally 400 one morning. Now I want to go again!

[pjd55d]

that was supposed to be ADT not ATD

[VictoryPC]

Guy I know have lived over 10 years doing the right protocols. Many have reversed them as well.

[IKNY]

I’m a newb, my odyssey began in 2023, 1yr, 6 months. RALP, ADT Lupron/Nubeqa*, Radiation.

Gleason 9(4+5), stage 4A, Mets to several pelvic lymph and one para-aortic node.

Looking forward to many more years… so far, it’s been bearable.

* Switch to Nubeqa due to Abiraterone/liver issues.

[KocoPr]

diagnosed at 54 gleason 6. 12 years this May. RP, RT, Lupron, Orgovyx, Darolutamide, BAT.

Lymph and now bone

[patandemma]

DX 10+ yrs ago with mets x3 to thoracic spine and to 1 rib. Drugs Lupron,Docetaxel and denosumab. Proton beam therapy to prostate,bone mets and prophylactically to lymph nodes along iliac arteries. PSA 3months ago undetectable and MRI iyr ago no new mets seen

[speranza10 in reply to patandemma]

Can I know your Gleason score?

[speranza10 in reply to patandemma]

Sorry being metastatic at diagnosis, I guess you don't know your gleason score

[Gearhead]

6 years since DX with cervical spine met and PSA = 111. Lupron and abiraterone.

[j-o-h-n]

2002 - 2025. The meds that work.

Good Luck, Good Health and Good Humor.

j-o-h-n

[gsun]

Dx in 2018. Mets to bones. Gleason 9. Lupron, abi and pred. PSA started to rise so am plotting the new treatment.

[petrig in reply to gsun]

Darolutamide (Nubeqa) if you can and maybe change Lupron to Orgovyx .