Enrolled in phase 2 clinical trail fo... - Advanced Prostate...

Advanced Prostate Cancer

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Enrolled in phase 2 clinical trail for neoadjuvant Enoblituzumab

RazorSaw profile image
10 Replies

This community has been a lifeline for me since my diagnosis in July 2024. Short timer, but you all have been invaluable. Thank you.

In my bio you can see that I had a rapid workup after a PSA in July that was over 30. The diagnostics were done well, and I sought a second opinion early on at Mayo Clinic in Rochester. My local urologist in my initial appts was too pessimistic for my tastes. Sort of old school. But I did meet other doctors and advanced care practitioners at the UW Madison Urology and Oncology departments who were top notch. Very impressive. The treatment plans they offered were SOC and the RO had an aggressive 'hit it hard' approach.

I chose to be screened and volunteered to be part of this study. clinicaltrials.gov/study/NC...

My treatment plan will run it's course based on the trial requirements. 12 weeks of the drug, followed by the RP. I'm glad to be in the treatment arm. 😏 I'll keep you all posted on how it goes.

To all of you who have suffered with this disease I offer my empathy. It's been difficult for me to resume living, but now that I have a plan, I'm breathing easier. Many of you have been good examples to me. Your candor, your good will, your humor, and especially your level of knowledge are inspiring.

But above all, your courage and resilience is what I find most inspiring.

💞From the bottom of my heart, I wish you all the best.

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RazorSaw profile image
RazorSaw
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10 Replies
keepinon profile image
keepinon

Good to know you are breathing easier. In the beginning the mental part is the worst, at least it was for me. My urologist was pretty pessimistic. I dropped him right after the surgery.

I went through RP,+ 6 weeks of radiation and 2 years of Lupron and Zytiga. It has been 6 years since I was diagnosed with Gleason 9 and still undetectable. Living a pretty normal life with a normal diet. Good luck with the trial. I am sure you will do great!

j-o-h-n profile image
j-o-h-n

We thank you for your compliment's regarding our site and our members advice, information and our humor (especially the humor). We wish you excellent results during and after your 12 clinical trial and your RP.

p.s. So now you have to make me a customized wooden plaque which says "Funniest Guy in The World" signed "Your Friend".

Note it's should be signed Friend and not Friends, cause I'm 88 years old and I only have one friend left.

Good Luck, Good Health and Good Humor.

j-o-h-n

Orange95 profile image
Orange95 in reply toj-o-h-n

Wow 88 and so positive and funny. I did not know you are that age. My grandma turning 88 tomorrow. Thanks for all you uplifting comments here.

j-o-h-n profile image
j-o-h-n in reply toOrange95

Thank you kind sir. Nuttin like 30's babies ( October 1936) ......... Depression and WWII. Let me wish your dear Grandma a happy and a healthy 88. And just think I could have dated your Grandmother. And if you're a good dude, remember the apple doesn't fall far from the tree.

Ask her if she remembers this old rhyme (if she does, she may smile a little).

Don't kiss by the Garden Gate,

Love is Blind but the neighbors Ain't.

Good Luck, Good Health and Good Humor.

j-o-h-n

Orange95 profile image
Orange95 in reply toj-o-h-n

I am not dude, here to support my husband! I will ask her. Thank you

j-o-h-n profile image
j-o-h-n in reply toOrange95

Sorry Dudess............ Wonderful to see a loving and care giver wife on here. Regards to both of you while you hug and kiss Grandma for me.....

Good Luck, Good Health and Good Humor.

j-o-h-n

Carlosbach profile image
Carlosbach in reply toj-o-h-n

John, if orange you glad you're not 95 makes you a "funniest guy" plaque, what are you going to do with the one you had me make you?

j-o-h-n profile image
j-o-h-n in reply toCarlosbach

Wooden urn for my ashes.........

Good Luck, Good Health and Good Humor.

j-o-h-n

RazorSaw profile image
RazorSaw in reply toj-o-h-n

You give me the address and I will make the plaque.

j-o-h-n profile image
j-o-h-n

Rikers island NYC will not permit us prisoners mailed in packages unless they meet guard bribing standards. Maybe in the future if I get time off for good behavior I'll send you my south Bronx NYC mailing address . Thanks, Thanks and Thanks.

Good Luck, Good Health and Good Humor.

j-o-h-n

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