Mark has two urologists who don't know about the other

[Darryl]

youtu.be/jq6i7ZiOyk0(Not working as expected?)

[vintage42]

Could someone who has watched it give a summary? I skimmed it and don't want to spend 30 minutes watching it to find out its point.

[vintage42 in reply to vintage42]

Darryl provided a link that contained this summary of Mark's interview at 5:00 in the program:

Mark, a Malecare community member who lives in Paris, talks about his diagnosis and seven-year journey with prostate cancer. Mark shares his initial reaction to his high PSA levels, the stress of waiting for diagnosis confirmation, and the challenging decision-making process between different treatments. He discusses the impact of ADT and abiraterone on his life, the importance of getting second opinions, and how he found support and information through an online prostate cancer community. Mark emphasizes the need for transparent communication with doctors and the patient's role in understanding their condition.

[billyboy3]

I hate to hear these stories. It is one thing to get a second opinion but it is morally and ethically wrong to take up needless time with specialists when there is such a short supply of them!!

[vintage42 in reply to billyboy3]

What do you think of having a team of specialists? In my case, a Urologist who transitioned to be an Oncologist for prostate cancer, and a Medical Hematologist/Oncologist with special interest in treating leukemia, lymphoma, myeloma, and urologic cancers. Two very different people with very different backgrounds and approaches. How can that be morally and ethically wrong?

[vintage42]

So I watched the video and it resonated with me.

I, too, have two doctors, an MO and a Urologist. The MO handed me off to the Urologist after initial treatment, and referred to the Urologist as my "primary". After the Urologist had treated my recurrence with radiation and ADT, the MO became irritated, said no more second opinions, and that I had to choose one doctor. So I am going to replace him with another MO who will be a team member.

I, too, found Abiraterone on my own (here), after MO said I had no need for 2nd generation meds, while the Urologist insisted on Appalutamide or Enzalutamide which I feared would provoke my seizures.

And I, too, found the value of exercise which eliminated the weakness and fatigue of ADT and Abiraterone. In my case, using gym machines that work the leg, arm and back to counteract loss of muscle and bone.

[billyboy3 in reply to vintage42]

What you fail to realize is that ALL OF THESE GUYS ARE OVERLOADED!!

First, get yourself informed from end to end of where your st etc.

DO NOT EXPECT MIRACLES, you’re a very sick guy and are going to die of this disease or impact therein.

This playing around is NOT GOOD for anybody, and you’re taking up valuable resources!

I as a project manager, would fire you as a client as it is insulting and a waste of my time!!

Sorry, but I see the terrible waste of resources by guys trying to find some magic cure or some crack - THAT DOES NOT EXIST!

LIVE LIFE LARGE WITH THE TIME YOU HAVE LEFT. Do NOT spend your last days trying to figure out something thst does not exist!!!

I have been at this for 26 years so have a little knowledge of what it takes and how to live with cancer and NOT let it led my life running around like a chicken with its head cut off!!!!

[j-o-h-n in reply to billyboy3]

I think you meant, a rooster with his balls cut off (which makes him a Ball-less cock, cock).

Good Luck, Good Health and Good Humor.

j-o-h-n

[billyboy3 in reply to j-o-h-n]

Good on J

The point is to worry less and live more. There are good and bad docs as with every job but there is also a large volume of data on what works and when but at the end of the day, we are all going down so get informed and direct your treatment but do not get into fights with the docs nor put them against each other.

Remember there is still a lot more that they do not know then know and ALL do their best!

It is life, nothing is perfect!!

LIVE LARGE MY FELLOW COCKS!!

[j-o-h-n in reply to billyboy3]

True nothing is pefect!!

Good Luck, Good Health and Good Humor.

j-o-h-n