Hi,
I'm looking to add either Fenbendazole or Mebendazole to my cocktail of repurposed drugs. I know Joe TIppens favours Fenben but is there any difference? And does anyone have a reliable online source (I'm in the UK) that isn't prohibitively expensive?
Final question: I'm assuming this isn't a 'one and done' dosage - how often/what dosage should I take?
Many thanks.
my husband has been on Fenbendazole and Liposomal Artemisinin for the. Past 2 months since we discovered his PSA was 23. We are meeting with the Medical Oncologist and Radiation Oncologist Monday. We are going to share with them that he is on these repurposed medication. I will let you know what their thoughts are. The drugs are readily available on Amazon. Our research has been limited. We are getting another PSA today will keep you posted
please do
Oncologists are not trained or have any knowledge about repurposed drugs. 999.9% of the time they will say no to that. What's most interesting is the PSA number after 1 month of use of these 2 drugs upfront. Keep us updated and good luck.
Let us know doc's reaction when you tell him. Could be startling.
What was the protocol with fenbendazole
since Fenben has several contraindications in humans taking cancer meds, ….. as with any self administered drug or supplement, always check with your pcp - oncologist first. It especially impacts your liver enzymes. Liver enzymes monitoring might be necessary for some of us, if we used fenben . your medical team will know.
from Google :
“ Who May Be At Greater Risk of Side Effects?
People who use Fenbendazole in high doses.
People taking medications or supplements that use the same pathways as Fenbendazole.
Those taking treatments/medications that increase liver enzymes
People who are undergoing chemotherapy may experience more side effects. These may include high liver enzyme levels. “
I’ve had strong ongoing issues with microalbumin leakage , I’d definitely have to go through my medical team to try this chemical.
Just say’in
Gave up on micromanaging my cancer, SOC for me but everyone is different and most people looking for that "home run" good for them.
Same here, SOC got me 65 more months of time that my entire medical team still thinks to be “ astonishingly lucky “, saving me from hospice / certain death so far. Fenben or anything that impacts my damaged liver ( like NSAID pain relievers ) is a non starter for me. I’d never get a liver transplant at my age, it’d be a big risk requiring very close enzymes monitoring. Ultimately, tho, each of are responsible for our own choices, hopefully I’ll have the wisdom to make the right ones for myself.
My heart still breaks for Big_John and those others here that jumped on fenben as a last resort over the last 5 years. ALL of them have passed now. Based on the limited experience here …. Using it as a last resort has ended in failure and death. Perhaps if those same guys had jumped on it much earlier than as a last resort, who knows what might have been. We’ll never know now. I still miss Big_Johns foodie posts, he and his partner and fur baby were bigger than life lovable nice guys.
❤️❤️❤️
I didn't realize Big John had used fenben. I read a lot of his posts, but not all of them. I'll look back through them.
Well, that's convinced me.. Thanks for the heads up. No Fenben for me. But when you talk about SOC - what treatment did you have? My oncologist says after chemo has failed, which it has, that's it. Nothing left.
My case probably wasn’t the usual mainstream path usually seen here. And at Kaiser, at least, when you get “ croaker “ ( actively passing away … end of the road ) on your diagnosis….. that’s about it. I’ve received Lupron, Xtandi, opiates and about 50 infusions of Zometa ….. so far. All of it intended to shrink my ( extensive ) metastasis , this hoping to make me as comfortable as possible / relieve some bone pain … as my cancer plays it’s inevitable self out. I’ve been told, no surgery, no radiation and no more scans on the table for me as well. Some how I’ve persisted years longer than expected, my last oncologist, in December, telling me “ you are very very lucky “ … three times during our visit. Shaking her head amazed yayaya yayay.
I’m not sure really, and clearly not the best person to say …..but maybe you could run that “ nothing left “ thought by Tall_Allen . He knows “ a whopping lot “ and usually has uplifting - supportive advice as well. He’s the go-to brain trust guy on this group.
Ive mentioned my good friend Mark, ( Urang on this group…..now passed after 23 years ) …. many times. The V.A. sent him home to home hospice ( with a bushel basket of fentanyl lollipops, patches , an Imbedded morphine pump etc. ) and he puttered around his garden and enjoyed his computers for an additional three comfortable years.
The point of all of this being , that “ nothing left “ can mean a lot more left than you may expect sometimes. Speak with TA , and examples like Urang and myself say a lot about possibilities . Hang in there brother …. You got some gas left in that tank.
Just say’in
❤️❤️❤️
More info about Mebendazole:
Mebendazole, an old vermifuge -
as an adjuvant in tumor therapy
As of: May 2020
The proven vermifuge Mebendazole (Vermox) has appeared to be an excellent universal
anti-cancer adjuvant in recent years. Since our meeting with Dr. Simon YU in our clinic and
his impressing book “Accidental Blow up in medicine”, we were able to gain impressive
experience. How does Mebendazole work, what is known so far? It
• intensifies chemo & radiation p especially with triple neg. breast cancer
• blocks metastasis
• activates killer cells and M1 MAFs, (M1 macrophages)
• can slow acute leukemia
• slows down glioblastoma, including meningioma
• has shown effectiveness in melanoma
• blocks the chemo resistance gene
Since modern kinase inhibitors, like checkpoint inhibitors, have little long-term effect, in-
creasingly existing drugs are being examined for “repurposing” - for effects against cancer.
We have already reported on this elsewhere. Ivermectin, another vermifuge, is also a very
safe agent and can inhibit tumor stem cells and intervenes in cancer metabolism with vari-
ous interesting mechanisms.
The dosage is 100 mg Mebendazole (Vermox) daily for 3 weeks, then 1 week break before
starting again.
Dr. med. Friedrich R. Douwes
Facharzt für Innere Medizin
Onkologisch verantwortlicher Arzt
Medikamentöse Tumortherapie
Ärztlicher Direktor
More info here:
Antidiabetics, Anthelmintics, Statins, and Beta-Blockers as Co-Adjuvant Drugs in Cancer Therapy
"Mebendazole is an FDA-approved benzimidazole with a good safety profile, which has been widely used to treat parasitic diseases, mainly due to the fact of its tubulin binding capacity and prevention of microtubule polymerization. As an anthelmintic, common presentation of mebendazole is in 100 mg tablets, with indications for 100 mg as a single dose to 100–200 mg/day. Its mechanism of action has been linked to in vitro antiproliferative activity against cancer cells [5], but preclinical anticancer research also identified its ability to bind and inhibit signaling of selective tyrosine kinases including VEGFR2, TNIK, and BRAF [6]. It crosses the blood–brain barrier and evidence supports the use of mebendazole for both therapeutic and preventive purposes in the treatment of brain and colon cancers. [7,8]. Mebendazole is now being tested in clinical studies for glioblastoma, pediatric brain tumors, colon cancer, pancreatic cancer, thyroid cancer, prostatic cancer, and breast cancer [9,10,11]."
Oncologist : Don't take Fenben or IVM.
Me: Okay. Then what's the next thing I can do to live longer.
Oncologist : Nothing left.
Me: Thatmeans I can try Fenbenor IVM
Oncologist : No, that's dangerous for you!
I've always used the cattle/goat liquid by Merck. Well over three years now.
How is your liver function?
Great. About 3-4 months after starting fenben in Feb 2020, my liver enzymes AST and ALT rose somewhat dramatically. I stopped fenben for two weeks, things returned to normal, and no problem since.
PSA also rose during the period, but also reversed and fell back, hitting a new low nine months later.
I've been on Lupron that whole time, and even for 15 months prior.
Ah, so it could be the Lupron?
Yes, very possible. 5+ years now on Lupron. I just keep on with both. I also use Ivermectin 3+ years now.
Mebendazole (Vermox) is available in the UK as per the Care Oncology Clinic protocol. It comes in the form of a 100mg chewable / suckable tablet. You take one per day for a month then go onto Doxycycline for a month before switching back to Mebendazole for another month etc. Cost is appx £300 every 12 weeks. You also get Metformin and Atorvastatin daily as part of the protocol. You have to send your latest blood results to care oncology before they prescribe. The initial consultation is about £400 I believe. Good luck.
Yes, I was actually one of the first on that protocol (Gus Dalgleish referral). Unfortunately I couldn't tolerate Metformin so had to drop out.
If you cannot get Mebendazole any other way then you could still go to care oncology, just don't take the Metformin.
I have been using fenben for about a year with no adverse effects. Happy Healing was a good source, don't know if you can get that in the UK, though. thehappyhealingstore.com/pr...
Can I ask what dosage you use?
Joe Tippens was treated with Keytruda. Keytruda works extremely well in those who respond to it. Tippens is yet another along with Jane Mclelland who responded to medical treatment but claims it is all the other alternative stuff that has worked. At least in Korea they attempted to find why patients fall for this hype and tried to correct the wrong.
The fenbendazole scandal was an incident wherein false information that fenbendazole, an anthelmintic used to treat various parasites in dogs, cured terminal lung cancer spread among patients. It started with the claim of American cancer patient, Joe Tippens, but rather became sensational in South Korea. It caused national confusion and led to fenbendazole being sold out at pharmacies across the country in South Korea. Contrary to what the people know, however, Joe Tippens was a participant in the Kitruda clinical trial at the MD Anderson Cancer Center, and his improvement was likely to be the effect of immuno-cancer drugs. So, at the beginning of the issue, health authorities and experts in South Korea warned about side effects through press releases on September 23, 2019, but cancer patients ignored them. Instead, people were interested in a celebrity, a famous comedian in Korea, taking fenbendazole. The false information continued to spread until the celebrity declared that “it is ineffective.” (The celebrity announced his intention to take fenbendazole on Social Networking Service (SNS) on September 24, 2019, while suffering from lung cancer. In September 2020, he mentioned that he would not take fenbendazole or recommend it. He eventually died in December 2021). Why was the warning given by the health authorities ineffective? How should the government respond if false information is spread in the cancer information market again? Answering these questions remains a significant challenge related to cancer communication in Korea. Hence, there is a need for an academic approach.
Joe wrote himself that he started using fb at the same time of the clinical trial with Keytruda. He didn't tell his doctor though, who at the end of the trial couldn't believe Joe was alive, as everyone else had died or got much worse
"He didn't tell his doctor though, who at the end of the trial couldn't believe Joe was alive, as everyone else had died or got much worse"
Okay, how do we know this is true and not just more hype, based on hearsay?
I've read dozens of similar stories about the famous Mr Tippens and watched a few of his video interviews but remain very sceptical. I tried both Ivermectin and Tippens's Fenbendazole protocol, following his recommendations and it did nothing for me apart from elevate my liver enzymes count to a level close to the ceiling. And I'm still in so much pain I can barely walk, let alone participate in what used to be normal physical activities which I took for granted.
Steer clear of it and trust your Oncologist who knows what would work best for YOU.
I've also read a few recent online articles stating that Joe Tippens is now deceased. Again, I don't know if true or false. Can't really trust anything I read on the Internet anymore.
I am sorry it didn't work out for you. I also read on these forums all the time that there are no studies proving that a plant based diet plus fish ( as opposed to red meat) and exercise will improve outcomes on high risk ( PSA over 20) cancer. Well, I stopped my PSA increasing by this simple change, months before I started any medication, so I know it works, at least for me. I don't believe you have done your research when you advise: "Steer clear of it and trust your Oncologist who knows what would work best for YOU". No he doesn't. He knows what the many " properly funded" studies recommend and the guidelines he is supposed to follow, and he knows that he will loose his license and insurance if he doesn't follow those guidelines. We are just a variable within those parameters, nothing in particular about "US". I had to put up a fight to get Orgovix instead of the 40 year old crap drugs they wanted to inject me with. The Internet is like a jungle, all the information is there but you just have to waddle through the countless piles of BS. Just think about why many things that potentially work are being suppressed, no conspiracy theorist here, but why? Follow the money. I will give you some clues, though. Fenben and Ivermectin work in 6 different ways on cancerous stem cells (CSC), this is not to say it will dissolve a fully formed tumour, you will need heavy artillery for that; but the stem cells travel all over and spread metastatic disease ( specially when starting therapy) if you are not careful. Learn the pathways that Fenben and Iver modulate and that will give you an advantage (also learn adequate dosage) if you choose to use them. It works for many people, and it works for me and it does not elevate my liver enzymes. Also DMSO is known to change cancer to normal cells, and it works for pain as well. Many other compounds also make the cancer cells more vulnerable to chemo/RT. I've even read in here from some supposedly "informed" contributor that turmeric is toxic to the kidneys, even showing "studies". Do you know how stupid that sounds? All the people in India would be dead on the streets if that was true. The same contributor linked an article which stated that Fauci was a knowledgeable authority in health matters. Do you have an idea of how many people would like to terminate Fauci in the US of A? Not giving advice, but the information is out there. I wish you luck with your quest, although in your case I concur you must follow your oncologist to the tee
...although in your case I concur you must follow your oncologist to the tee
Why do you say that? Pretty sarcastic and arrogant response to someone with stage 4 prostate cancer. All I meant by my remark about trusting one's Oncologist is that he/she knows what to look for and knows the appropriate tests to perform and understands what they all mean, thus based on the results can make an INFORMED decision on how to proceed with treatment, even though at times may have misjudged them. However, a qualified Oncologist obviously knows more about the disease than I do, and all the Google educated 'experts' on forums such as this. There are too many of them and all have many different, even conflicting views and ideas, so, who should we invest our trust in?
If everyone on these forums knew all the answers, we wouldn't need qualified medical professionals or cancer hospitals, we'd all beat the life ending disease with all those proven natural 'home remedies', i.e. Fenbendazole, ivermectin or apricot seeds; or a million & a half other 'proven cures' one can find on these web forums.
IOW: I prefer to keep an open mind. All I know is that I tried the Tippens Fenbendazole protocol, and it had no effect whatsoever apart from raising my liver enzymes. Not good. Others might have been lucky, so, I'm not outright dismissing it, yet on the other hand there are many comments here from others who have tried it and speaking from their own experiences, they don't recommend it.
It's the same with orthodox medicine: what works for some may not work for others. We're all different.
Yes, I went down the plant-based diet road for a while and apricot kernels etc.. It all accomplished nothing but severe malnutrition.
BTW my last PSA test was 1,700 ng/ml. The diets, Fenbendazole, Ivermectin made no difference. Just keeps rising.
I had a full RP operation in April 2021. so that didn't help (no longer have a prostate gland). Oh yes also ED: that too. ZERO libido - no sex life at all, not even masturbation. which is pretty depressing.
I also believed the myth that the 'cancer industry' is only out to keep us sick so they can make shiploads of money from our misfortune. Same can be said about the numerous 'alternatives' and there are TOO many of those. They only create and fuel more unnecessary confusion.
That's it from me.
Good night from North Queensland Australia
I said that because obviously you've tried alternative options and didn't appear to work. Heck, you made that statement yourself about the oncologist and now seem to get offended about it, sorry it sounded arrogant, it wasn't meant to. I don't trust my oncologist 100%, but the reason I don't trust her is not because of her knowledge or lack thereof, but rather because they will give the same treatment to totally different people just based on the grade of the disease, not the condition of the person. She wanted to put me on lupron, bicalutamide, then radiation, followed by brachytherapy, and taxotere all at the same time. She didn't recommend RP because it was too late, so no I don't trust them and I had to fight for all of it, no doubt I appeared arrogant to them doctors at the time, but I dont care. I've learnt which drugs and SoC procedures cause the least SE and those are the ones I've chosen and it must be luck, but it is all working the way I intended. But that defies the picture that was put in front of me initially, oh well! All the best
1surviver out off 1100 🤔
Elevated liver enzymes
Who takes 80 mg Xtandi and for how long?
Locally advanced/stage
Can I go on 120mg dosage of Xtandi
11 days after 1st Lupron jab-no side effects
