Dattoli Cancer Center Sarasota - Advanced Prostate...

Advanced Prostate Cancer

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Dattoli Cancer Center Sarasota

Peppertree602 profile image
16 Replies

Question as to next steps. My details are up to date in bio and I was undetectable until last week when I hit 0.021. G-9, t3B, PNI, IDC-P & lymphovascular invasion with decipher of .41. I live in Sarasota most of the time but Milwaukee was/is still home due to work. I shuttle back and forth every 4-5 weeks up north for a one week stay and to see our son as well. I like my RO Dr Colleen Lawton & Dr Deepak Kilari MO in Milwaukee my guess is that they will want to radiate sooner than later which is fine. So in the SRQ airport I see Dattoli signs all over. He claims to be world renowned with his DART technology & I have a phone consult scheduled for next week but I am skeptical due needing super expensive equipment that only hospitals typically can afford. Plus every few years you need to update the multi-million $$$ equipment. In Sarasota i also heard that Dr Liz Guancial MO is excellent as well for prostate but not sure of their radiology department. I have Moffitt Dr Grass RO who is only 90 minutes north. Regardless of location I am willing to travel to try for best results.

So 2 questions;

1) typically how long does one wait before radiation 0.05 or 0.1 or? Is 0.021 too low to even think about it yet?

2) What type of radiation is typical for salvage radiation?

Appreciate input

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Peppertree602 profile image
Peppertree602
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16 Replies
Tall_Allen profile image
Tall_Allen

Yes, 0.021 too low to even think about it yet.

Peppertree602 profile image
Peppertree602 in reply to Tall_Allen

I will test every month (per MO) now to see the trend thanks for reply

Tall_Allen profile image
Tall_Allen in reply to Peppertree602

Every month will include large amounts of natural variance and lead to erroneous conclusions. Once every 3 months is more than adequate. There is nothing to be done unless it reaches 0.2.

Peppertree602 profile image
Peppertree602 in reply to Tall_Allen

Thanks! I was reading my pathology and paranoia set in because RO told me 3 years ago if Decipher would not be .41 he would have recommended radiation almost immediately after surgery but again with .41 he said wait

GoBucks profile image
GoBucks

I could be wrong (my wife will tell ya) but at some places undetectable PSA could be <0.04. Maybe even <0.05. So your small detection could be something but might be noise. Easy for me to not worry, you not so much. Repeat tests will give you a trend.

Peppertree602 profile image
Peppertree602 in reply to GoBucks

same as TA said Thanks

Keniszen profile image
Keniszen

Consider three rising PSA readings to confirm the upward trend. You May be able to get PSMA PET to confirm no spread.

Then My RO started Lupron and then IMRT followed just before 0.2

Bethpage profile image
Bethpage

Peppertree602, my husband and I considered Dr. Dattoli for RT after BCR from both a simple and a salvage prostatectomy. Together, we decided against seeing him because his insistent plan was to do brachy and EBRT on a patient who had no prostate. He insisted that there was tissue where he could do brachy. Dr. Vipul Patel (robotic surgeon in Celebration) Celebration Hospital pathology, and Mayo Rochester pathology said there was no tissue available where brachy could be used. Dattoli's plan was unwavering so we left. Just a personal experience, nothing more.

I have heard very good things about Guancial as well but, like you, know nothing about the radiology department.

Peppertree602 profile image
Peppertree602 in reply to Bethpage

Yes Dr Patel did my surgery as well. Tx for info

Bethpage profile image
Bethpage in reply to Peppertree602

You're welcome. We had a short term rental arranged for 2 months in Sarasota. We did an about-face and went to Dr. Matthew Biaggoli (then in Orlando with Advent Health, now in Sarasota) instead. We were most happy.

Poweredparaglider profile image
Poweredparaglider

Google Dattoli arrests, between prescription and insurance fraud charges I cancelled my consultation appointment early on. I see Dr Guancial, wouldn't trade her for anyone, but have never had radiation treatments you seek, my cancer was too far along when discovered. Doing Pluvicto now.

Peppertree602 profile image
Peppertree602 in reply to Poweredparaglider

My MO Dr Kilari at Medical College of WI knows her personally and speaks very highly of her as well. I think they trained together .

London441 profile image
London441

I had nearly identical pathology to yours except 4+3. However I had a positive node, so there’s that. I had subsequent RT after RP in 2019, with abiraterone and 18 months ADT. Undetectable and in fine health 4 1/2 years later.

Between your bio and this post I would say your cancer is nothing to worry about compared to your anxiety. 0.021 is cause to celebrate (or more accurately, to continue celebrating) until further notice.

My only real advice: Keep one eye on it only, and trade in your glut of supplements for more exercise. Supplements help somewhat and sometimes. Exercise helps better and always.

Great luck to you!

j-o-h-n profile image
j-o-h-n

OH, Grandpa Googi what would we do without you?....

W A R N I N G!!! W A R N I N G !!! W A R N I N G !!!

SARASOTA COUNTY

Prominent Sarasota cancer doctor charged with prescription and insurance fraud, police say

Posted: Dec 16, 2021 / 05:37 PM EST

Updated: Dec 17, 2021 / 07:16 AM EST

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SARASOTA, Fla. (WFLA) – A prominent Sarasota doctor is under arrest accused of calling in fraudulent prescriptions for valium.

Investigators with the Sarasota Police Department say Dr. Michael Dattoli’s prescriptions were issued under the name of one of Dattoli’s former coworkers at the Datolli Cancer Center on behalf of Dattoli’s wife.

A former employee of the Datolli Cancer Center told Sarasota police officers that during a check of the Florida prescription drug controlled substance database in September 2021, he noticed several fraudulent prescriptions were written in 2020.

Three of the fraudulent prescriptions were written to Dattoli’s wife who was never the employee’s patient.

The victim was shown a copy of the phoned-in prescriptions during his interview with Sarasota police and said he never authorized the prescription.

Dattoli was charged with three counts of obtaining a controlled substance by fraud, three counts of criminal use of personal identification information, and three counts of insurance fraud.

He is currently being held at the Sarasota County Jail.

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My uneducated guess is if you psa is 0.0X keep on smoking your weed.... If it's 0.X, keep smoking your weed and if it's X.X keep smoking your weed.

Pass me a chew.........

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 10/11/2023 5:58 PM DST

Forcepro77 profile image
Forcepro77

Don't see Dr. Dattoli for 2 reasons. One he is not an expert on anything and 2, he was charged with fraud for writing prescriptions.Start with Dr.Barzell in

Sarasota if you want a good one. I had a double prostate cancer problem but

Found the right "experts" at Memorial

Sloan Kettering in NYC.

groundhogy profile image
groundhogy

i talked with Dr. Datolli and his partner each in separate phone calls. I found them both to be very competent as far as i could tell.

I communicated by forum and email with a man that was treated there maybe 15 yrs ago and he said they were light years ahead of the other places he was at.

My phone calls were exactly at the time of his legal troubles. Someone was writing prescriptions using his prescription pad. Maybe his ex-wife or family? I can’t remember.

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