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What to do when Medicare doesn’t cover your prescription drug

cesces profile image
32 Replies

Pretty good checklist of options Seems there is always a new prostate cancer drug with coverage issues.

I am a bit dubious about the plan switching advice though.

Any comments?

What to do when Medicare What to do when Medicare doesn’t cover your prescription drug

fox8.com/news/what-to-do-wh...

(NerdWallet) – Although recent changes to Medicare Part D will eventually make covered prescription drugs more affordable for Medicare beneficiaries, there’s still a loophole: What if Medicare doesn’t cover your drug at all?

Specific drug coverage varies by plan, and you may not be able to immediately switch to a plan that covers your drug, or you may find that no plans cover it.z

“The problems are the more expensive brand name medications,” says Katy Votava, who holds a doctorate in health economics and nursing and is president and founder of Goodcare, a consulting firm focused on the economics of Medicare. “That can be difficult for people, and they’re often based on medical necessity anyway, and prior authorization is typically required.”

If you find that a medication you’ve been prescribed isn’t covered by your Medicare plan, here are some options to consider.

Check the Medicare landscape

First, is this a medicine that’s ever covered by Medicare — just not your plan? Does Medicare cover it under Part B because it’s administered in-office? Or does Medicare never cover this drug? “Knowing the reason, so why it isn’t being covered, is important,” says Justin Lalor, an attorney at the Center for Medicare Advocacy.

Talk to your doctor

“Discuss with your doctor if there is a similar medication that is covered by Medicare or Medicare Advantage, or if there are any other treatment options available,” says Jeremy Duboys, president of medication discount card company RxGo.

If there aren’t any comparable drugs, your doctor will have to support your need to be on the drug in question, since you’ll need their help to file one of the appeals listed below.

“They’re the ones that have to state that it’s medically necessary,” Lalor says.

Request a formulary exception

A formulary exception is a request to add your drug to your plan’s formulary, or list of covered drugs.

“The formulary exception is a medical necessity thing where your physician signs off on why you need it,” Votava says. “Written properly, most of the time that works. But you have to get your providers to do it.”

The request also might have to be submitted more than once. If you call the insurance company, Votava says, they might give you the specific language you should be using to have your request granted.

Request a tiering exception

If your Medicare plan covers your drug but places it in a high tier that results in a high price tag, you or your provider can request a tiering exception. Higher tiers generally mean you share a greater percentage of the price, and if you can get a plan to cover a drug in a lower tier, you’ll pay less.

“Essentially you’re saying, ‘This rung is too expensive, it’s the only medically appropriate drug for this patient, and their ability to use it is being hindered by the price of it,’” Lalor says.

Look for a special enrollment period

If your Medicare plan doesn’t cover your drug — or covers it at a higher tier than you’d like — you may be able to switch to a better plan if you qualify for a special enrollment period.

A special enrollment period allows you to change your Medicare Advantage or Part D plan outside of typical enrollment periods. A special enrollment period may be granted when you meet certain life circumstances, such as moving outside your plan’s service area or moving into a skilled nursing facility.

You also have an opportunity to switch plans if there’s a 5-star Medicare Advantage plan or Part D plan in your area. You can do this once between Dec. 8 and Nov. 30 of the following year. This is called a 5-star special enrollment period. And your new coverage will begin the first day of the next month after you make the request.

Switch plans during open enrollment

Of course, if there’s a Medicare Advantage plan or Part D plan that covers your prescription drug to your satisfaction, you can enroll in it during Medicare’s fall open enrollment period from Oct. 15 to Dec. 7 each year.

Look for a special enrollment period

If your Medicare plan doesn’t cover your drug — or covers it at a higher tier than you’d like — you may be able to switch to a better plan if you qualify for a special enrollment period.

A special enrollment period allows you to change your Medicare Advantage or Part D plan outside of typical enrollment periods. A special enrollment period may be granted when you meet certain life circumstances, such as moving outside your plan’s service area or moving into a skilled nursing facility.

You also have an opportunity to switch plans if there’s a 5-star Medicare Advantage plan or Part D plan in your area. You can do this once between Dec. 8 and Nov. 30 of the following year. This is called a 5-star special enrollment period. And your new coverage will begin the first day of the next month after you make the request.

Switch plans during open enrollment

Of course, if there’s a Medicare Advantage plan or Part D plan that covers your prescription drug to your satisfaction, you can enroll in it during Medicare’s fall open enrollment period from Oct. 15 to Dec. 7 each year.

And if you’re in a Medicare Advantage plan, you can join a different Medicare Advantage plan or jump back to Original Medicare with a different Part D plan once during Medicare Advantage open enrollment, which is from Jan. 1 to March 31 each year.

If you don’t qualify for any special enrollment period, you’ll have to wait for one of these official enrollment periods to change plans. In the meantime, Lalor says, “[you] can attempt to do one of those appeal exceptions.”

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cesces
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32 Replies
Magnus1964 profile image
Magnus1964

DO NOT ENROLL IN A MEDICARE ADVANTAGE PLAN.

Medicare advantage plans are not Medicare. They are private insurance plans that pay your medical bill then recover the costs from the Medicare program. You are totally at the mercy of those companies and have no recourse for denied coverage or future changes in your policy.

These companies have been overcharging Medicare and will bankrupt Medicare. The government just have them a pass to continue this practice.

Magnus

cesces profile image
cesces in reply to Magnus1964

Agreed

leebeth profile image
leebeth in reply to Magnus1964

Agreed. Many people don’t realize that in most states, to switch from an Advantage plan to a Supplement, one will need to pass medical underwriting. So it is very difficult to switch to a Supplement outside of initial enrollment period. Some think they will be in an Advantage Plan until they are sick, and find out too late that they cannot switch.

Magnus1964 profile image
Magnus1964 in reply to leebeth

These fly by night insurance companies are advertising hard saying you can get hundreds in grocery benefits. if they can get everyone on these plans it will be the end of Medicare.

leebeth profile image
leebeth in reply to Magnus1964

All of this misleading advertising is disgusting.

cesces profile image
cesces in reply to leebeth

But it is working.

Some huge percentage of folks choose the free advantage plans.

We need pre-existing conditions protection.

That would bring the scam to a halt.

But there is only one party that will do that. And things are pretty evenly divided right now.

leebeth profile image
leebeth in reply to cesces

Are you saying that supplements should be forced to take people with pre-existing conditions outside of the initial enrollment period? Because as it currently stands, pre-existing conditions are not considered at all during initial period.

In states that have guaranteed issue later, the supplements are priced out of reach. If we could use the free Advantage plans until we got sick, and then switched to a supplement, that drives the price of the supplement out of reach. The system depends on healthier, younger people signing up for Medigap rather than Advantage so there is balance.

Right now, Plan F premiums are increasing much faster than Plan G, because Plan F is no longer available to younger enrollees. This gap will widen as the pool of Plan F ages.

cesces profile image
cesces in reply to leebeth

I think it's a bit more complicated than that, but you are correct about the general dynamics.

It's way too complicated to discuss here.

But the real problem is the demographic segmentation that you touch up on.

Any form of segmentation creates distortion and problems.

Medicare for all solves that problem.

But here is the problem. In the US there is a voting block, mostly older white folks, that just don't want to provide good healthcare to certain demographics that they seem to be shiftless or otherwise undeserving.

Therefore there are not the votes to permit the establishment of a system without demographic segmentation.

j-o-h-n profile image
j-o-h-n in reply to cesces

"Direct quote from sissis"

But here is the problem. In the US there is a voting block, mostly older white folks, that just don't want to provide good healthcare to certain demographics that they seem to be shiftless or otherwise undeserving.

Here you go again, you hear the trumpets BLOW again, all aglow again, talking some more crap.....

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 04/25/2023 10:20 PM DST

cigafred profile image
cigafred in reply to cesces

"deem" in place of "seem"?

cesces profile image
cesces in reply to cigafred

Correct

Atdabeach profile image
Atdabeach

I just skimmed that, but I didn't see the other option to pursue, before considering changing plans -- try GoodRx, bypassing your insurance entirely. Many of us have done so with Abiraterone, which is insanely expensive without insurance (I was quoted $8,000 for a month's supply), and only slightly less so with many Part D plans (mine would knock it down to a 25% copay, or $2,000 per month). I get it through GoodRx at my Safeway pharmacy for $187.

cesces profile image
cesces in reply to Atdabeach

(1) good point

(2) I didn't realize goodrx could do that with Abiraterone

Shameful we keep electing pols that permit this situation to continue.

Sandiego2 profile image
Sandiego2 in reply to Atdabeach

Not all Medicare Advantage plans are the same. Mine through Kaiser here in CA furnishes me with a month's supply of Abiraterone for a co-pay of just $3.00. And I get my Lupron shots with no co-pay at all.

cesanon profile image
cesanon in reply to Sandiego2

The problem with them is they constrict you to docs on their plan.

That is a real problem if your have prostate cancer and want to search around for the particular types of treatments and docs.

They have good docs and they have bad docs. You don't get a lot of ability to shop around.

dhccpa profile image
dhccpa in reply to Atdabeach

Have you tried Mark Cuban's drug company? I understand $35/month for AA.

cesces profile image
cesces in reply to dhccpa

I believe he is mostly focused on generics and low end drugs at present.

dhccpa profile image
dhccpa in reply to cesces

Yes, abiraterone acetate is one of the generics he carries. Isn't that as effective as Zytiga brand?

cesces profile image
cesces in reply to dhccpa

You would think. But opinions may vary.

Shams_Vjean profile image
Shams_Vjean in reply to Atdabeach

Costco pharmacy and Mark Cuban’s Cost Plus mail order pharmacy both have great pricing for Abiraterone generic formulation.

cesces profile image
cesces in reply to Shams_Vjean

Yes, but they are inherently limited to generics.

What they are doing doesn't work with proprietary medicines, which are the most problematical.

mrscruffy profile image
mrscruffy

You can also ask he manufacturer to help out though some have income limits

cesces profile image
cesces in reply to mrscruffy

I believe those programs are BS unless you have no savings and income limited to social security.

mrscruffy profile image
mrscruffy in reply to cesces

I qualified for Lymparza with a household income of 150k. Not horrible. Own two homes and have a ton of savings

cesanon profile image
cesanon in reply to mrscruffy

You learn something every day. LOL

leebeth profile image
leebeth in reply to cesces

I have many friends with hefty incomes who receive help from the manufacturers.

Alturia profile image
Alturia in reply to mrscruffy

Not if you are on Original Medicare. Pharmaceutical companies support plans are not allowed to provide rebates to those on Original Medicare.

mrscruffy profile image
mrscruffy in reply to Alturia

I am on an advantage plan

leebeth profile image
leebeth in reply to Alturia

Pharma companies are not allowed to offer copay cards to those on government programs, but they can and do offer extra help or simply free drug.

ShipModeler profile image
ShipModeler

My Oncology Pharmacy has found grants to cover my last two years of Zytiga.

MateoBeach profile image
MateoBeach

My Part D coverage is by Humana and I use their mail order pharmacy called CenterWell. It’s been okay for several years, but in the last year they are requesting new prior authorizations for ongoing maintenance meds I’ve taken for years. Sometimes 2-3 repeat PA requests and don’t acknowledge my doctor sent them. Then they have a “clinical reviewer” saying they don’t see adequate support for my diagnosis, and deny it. So I am pretty well done with Humana / Centerwell for my Part D.

Does anyone have specific part D companies with mail order pharmacy service that does a better job? I am considering switching to Aetna / Silverscript. Any experiences with that or others? Good or bad? Thanks. Paul

cesces profile image
cesces in reply to MateoBeach

The real problem is that the formularies they cover and don't cover vary from plan to plan.

And they get to change them from time to time whenever they choose to do so.

And their administration approaches are not even written down any where to the best of my knowledge.

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