My pet scan only went from head to top of thigh. Most PET images I see in Google only go down to the crotch or knees, though there are some down to the feet.
Made me wonder why they don’t scan lower legs.
Found a couple of abstracts saying spread to legs are rare.
pubmed.ncbi.nlm.nih.gov/184...
I wonder what about the anatomy of legs makes it rare.
scans are done on lower legs. Most of my scans are neck to toes. The rest head only. I have a large number of Mets in my lower body. PCa disfigured my left knee to three times it’s normal size…. My right knee to twice normal. I have major met damage in my foot bones, both feet and long leg bones. If you run your hand up and down my leg below the knee, you can feel all the lumps everywhere. I light up like a Christmas tree, thorax , neck etc. but my greatest bone damage is lower back down to toes.
Sorry to hear that for you. You’ve had a tough road for sure.
I got the CD with images from my first and only PET scan to date. Images on CD only go to a bit below the crotch. I couldn’t say if they actually scanned below the crotch while I was in the scanner.
Considering I have 2 visible mets in the pelvis bone structure (acetabulum and sacrum) and at least 3 I see in the lumbar spine (“several” in lumbar spine per the radiology report/opinion), I’m curious, if not concerned, about possible leg mets. I’m certainly going to ask my oncologist about the legs.
I guess with triple therapy they’ll be addressed systemically if they exist.
Thanks got the reply.
yep, you should be able to put those bad boys to sleep. You might just have micromets or even none at all, down low. If they got to you soon enough. Everyone is different, especially here in the group. I have a huge amount of Mets, every bone joint in my body too, but I seem to still get around and haven’t been totally disabled by them . Some guys only have a few . Shows you that even a extreme met load may not be “ all that “ until they eat into the nerves.
❤️❤️❤️
Just a wild guess but maybe exercise helps to flush out cancer cells from extremities? So most active muscles like in lower legs and forearms have rare incidence?
when I get scans both PSMA PEt and bone scans, they go head to toe. In fact last time they missed seeing toes so made me bend my knees a bit so they could catch the toes.
head to toe for all my past scans.
Head to toe scans for me the last 3 years at and since diagnosis and the mets from skull to shins.
CT scans are typically neck to pelvis. Looking more so at lymph's and organs but noting the mets as well.
My husband has cancer in his lower legs. He just had surgery to treat a pathological FX in his Tib/Fib right by the ankle bone on his left leg. In his right foot he has 8 FX. He had radiation on his lower legs. When he had the PSMA Pet scan it shows the cancer from the waist down. One little spot on a rib. Every doctor says they have not seen this before. Lucky us.
I know the feeling about lucky us.
That article says it rare, but I guess in this group we’re all more likely to have the rare stuff.
Best wishes to your husband.
Which imaging techniques are used in detecting Neuro Endocrine Prostate Cancer tumors?
New to the group and new to Advanced Prostate Cancer
Medical Oncologists specializing in neuroendocrine prostate cancer (or advanced and rare prostate cancer)?
When should I do my next PSMA scan to detect recurrent prostate cancer?
Xtandi and leg/foot swelling?
