mets 4+4 got out of the prostate into... - Advanced Prostate...

Advanced Prostate Cancer

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mets 4+4 got out of the prostate into lungs and bones

Brianne07 profile image
13 Replies

I was put on firmagon {hormone therapy} and now 7 months still on it .Finished 6 rounds of chemo 3 weeks ago. Working 3 days a week and feeling a lot better.Psa originally 370 now down to .019.So have responded very well to the treatments .See the professor next week.What is the likely treatment going forward?I am 73 with no pre existing medical conditions

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Brianne07 profile image
Brianne07
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13 Replies

In my opinion, pretty good. When I went metastatic in 2004, I started with ADT (Lupron) with chemotherapy. Stayed on Lupron for six years until I was comfortable to stop the injections. I was never in a rush to stop ADT nor “take a vacation.” I wish you the best in killing the little bastards.

Gourd Dancer

dhccpa profile image
dhccpa in reply to

Are you doing any treatment at all these days?

in reply todhccpa

No, not since 2010. I have been most fortunate. At 75 life is good with quarterly undetectables.....

dhccpa profile image
dhccpa in reply to

That's great!

Seasid profile image
Seasid

Which scans did you do after chemotherapy? Your PSA is very low. Do you still have your prostate ?

Brianne07 profile image
Brianne07 in reply toSeasid

my latest visit to the professor on the 26/8 my psa blood tests showed down now to .1.He said i have had a very good result and it may come down further.He is looking at putting me on a new generic zytiga which becomes available at the end of september in Australia subsided for a $1000 a month

Seasid profile image
Seasid in reply toBrianne07

super

Seasid profile image
Seasid in reply toBrianne07

Which scans did they ordere after chemotherapy?

Brianne07 profile image
Brianne07 in reply toSeasid

Has not ordered any scans yet.He seems to be working off the psa levels.I am still on hormone treatment which suppresses the cancer.I feel a 1000 times better since off chemo.I am a first aid trainer and still working 3/4 days a week .I also worked while on chemo,but always very tired after training and slept 10/12/hours a day.What is your situation?

Seasid profile image
Seasid in reply toBrianne07

i am already more than 4 years on ADT alone and my PSA is still under 1. Started slowly to rise since a year ago from 0.2. I have mets in my spine and had sciatica nerve pain. Still have some neurological symptoms but I don't know the exact cause of it. Could you please fill out your profile as it is not obvious your situation. Are you oligometastatic and therefore still maybe curable?

I am in Sydney. Where are you?

Seasid profile image
Seasid

ok, i now understand that you actually did not have a lung cancer. Your prostate cancer spread to your lung.

i said Keytruda as I believed that you also had a real lung cancer. Thanks you don't have a real lung cancer. That is good.

my PSA nadir was 0.12. it didn't go down more and that is understandable as I still have a prostate.

doc1947g profile image
doc1947g in reply toSeasid

I am Level 4 and had VMAT-RT 20 Fx and 6 months of ADT.

ADT(Lupron Depot) started 05/31/2020) for 24 weeks and VMAT-RT 3Gy X 20Fx .

RT last 20 Rx from 2020/06/08 - 2020/07/07.

My PSA went from 20.4 APS μg/L down to 0.03 APS μg/L and as of (2022/09/07).

My PSA nadir has beenON for over 2 years.

Seasid profile image
Seasid in reply todoc1947g

Great

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