Desperately Seeking Susan...um...2nd Opinion

[pete-ginger]

Fri, 2 Apr

Brothers -

Aggressive Dx here complicated by a constellation of serious factors and Sx.

Have had the 3 primary Tx. But, biochem recurrence of aggressive PSA velocity + dblg time metrics + early 4-lymph node involvement on top of known pT3aN0M0 (stage 3+ Cx and grade 5 PCa).

So I’m on 1st gen leuprolide/lupron + 2nd gen apalutamide/erleada(and others). Heavy, some unusual side effects = no surprise to me. Excellent, fast metric plunges.

I want a 2nd opinion from a super-expert. I’ve considered Johns Hopkins/Baltimore, MD Anderson satellite/NJ, and am leaning toward Memorial Sloan-Kettering/Manhattan where the PCa department is headed by a Dr Morris over a bewildering (to me) array of > 60 MDs &/or PhDs. MSK stresses interdisciplinary team approach.

Question: Anyone familiar w/ MSK PCa unit and Dr Morris, Head?

Many thanks in advance,

p-g

[tango65]

Yes, I consulted with him. He is one of the best.

[pete-ginger in reply to tango65]

Thank you so much, tango65.

[tango65 in reply to pete-ginger]

Best of luck, Pete.

[pete-ginger in reply to tango65]

And you, tango.

[fmenninger]

Hi P-G:

I’m currently being treated at mskcc and know of Dr. Morris besides other MO’s, RO’, surgeons and researchers. I was looking for an aPCA MO that is an MD/PHD and has skin in the game. You cannot go wrong with mskcc as I’m quite fortunate to live in nyc area to utilize their resources. I’ve had hormonal therapy, radiation and brain surgery all at mskcc as bd really own my life to them. Stay strong!

[pete-ginger in reply to fmenninger]

Thank you so much. Be well. Courage.

[Tall_Allen]

He's great. But my understanding is he no longer accepts new patients himself.

[pete-ginger in reply to Tall_Allen]

Thanks, Allen!

[Hidden]

Welcome . What is sx? Although no pc dx is great . I’m glad that it’s caught at stage#3.The chance to put it down is greater than stage #4 . I was #4 t-4 non op . I did imrt with Lupron and Tak -700( now unavailable ) .Ive now lived over five years with no pc seen on scans . Get that second opinion . A year from now you’ll know more about pc than you ever thought possible ..

[pete-ginger in reply to Hidden]

Thank you so much, Lulu. Yours is a kind message. You’ve been thru the ringer. The info velocity is overwhelming. Everyone is helpful here. Sx = symptom(s). Courage...sounds like you have it. My best to you, p-g

[Hidden in reply to pete-ginger]

Indeed! TMI out there. Especially on line. Follow pro advice and do anything that you feel increases your immunity . I think you’ve got this .

[Vindog29]

Dr Morris is my husbands doctor and in my opinion saved his life. I didn't realize he was head of the dept now, he did such a good job my husband rarely speaks with him...a good sign.

[Hidden in reply to Vindog29]

Viva Dr. Morris! 👏🏼👏🏼👏🏼