Zapping time: Hi everybody. I had a... - Advanced Prostate...

Advanced Prostate Cancer

21,056 members26,262 posts

Zapping time

BrentW profile image
11 Replies

Hi everybody. I had a call from the zapper doctor today. She is arranging an appointment for a CT scan to allow the positioning of a tattoo to aim at for a metastasis in my sacrum. The radiation, one dose, will be a few days after. I am to get back on a low dose of morphine in the meantime, and take my supply of liquid morphine with me in case of breakout pain. Side effects I am sure you are aware of: nausea, vomiting, diarrhoea, fatigue. The drive home, 55 miles, is going to be such fun. . . . .

Written by
BrentW profile image
BrentW
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Tall_Allen profile image
Tall_Allen

I'm glad they are treating you with a single dose. Several men have told me there was a pain flare lasting a week or two after the zap before the pain was relieved.

BrentW profile image
BrentW in reply to Tall_Allen

I have been told to stay on morphine in the meantime, carry liquid morphine with me for any breakout pain, and be prepared to stay on the morphine for two weeks as the pain subsides. Then comes the joy of getting of the morphine, which I have done once before and found hellish. Oh boy.

Tall_Allen profile image
Tall_Allen in reply to BrentW

Can't you take naloxone to get off the morphine?

BrentW profile image
BrentW in reply to Tall_Allen

I shall ask my doctor if he can prescribe.

Kaliber profile image
Kaliber in reply to BrentW

“ IMHO “ .. If you are taking enough morphine to make it hellish to quit, then using naloxone might make the hell come on instantly and potentially give you an ugly withdrawal episode if you’re taking enough. Most patients can tolerate gradual tapering off if you don’t have a mental addiction. Kaiser suggests that I take my usual amount today, tomorrow take a little less, in a day or two ...even less .....and so on. Speak to your doctor for some xanax if you experience hard anxiety of the process. Early on I used to try to just quit outright and that brought on the hellish experience you mentioned as well. Tapering off slow, I might get grouchy and irritable and a little nauseous but that’s about all. I have to taper off and clean up from heavy opiates frequently. Unwise sudden discontinuance has caused me to have serious breathing issues and nightmareish experiences that have caused me to call an ambulance.... “ twice “. I couldn’t breathe( I thought ) and was having a massive withdrawal mental - physical panic attack. If you are still having difficulty quitting, speak to your doctor about suboxone. It can ease you off smoothly and easily.

💪💪💪🦋🌼🌻😊🌸❤️❤️❤️

Kaliber profile image
Kaliber in reply to Kaliber

Btw: if you are taking heavy opiates, liquid morphine ... dilaudid...etc. , Kaiser best SOC practices is for me to have a boxed naloxone inhalation “ over dose “ treatment applicator on hand where you keep your narcos and several people there should know about it and where you keep it, ...... just in case. If you nod out into an OD , that applicator can usually snap you out of it instantly and can even save your life ....but it’s only good for a couple hours per application and might be needed again. Kaiser requires me to have a overdose kit on hand all the time. Check with your doctor, he/ she probably wants you to have one handy 24/7.

I keep mine in a conspicuous location in the kitchen and my caregiver is well trained to use it. I take dilaudid and it’s 5X times more powerful than any form of morphine, having a naloxone kit handy is a life saving no brainer.

As with anything like this ... stopping heavy opiates use is important to discuss carefully with your medical team. Copy this post and take it with you for them to see and comment upon.

Just say’in

Kaliber profile image
Kaliber in reply to Kaliber

One more thing ..... If you had to sign and be tested for the federally mandated “ national drug abuse contract “ .... to get the pain meds.... then you can order just one Narcan kit to keep on hand. If you use that first kit and order a second, it automatically triggers a visit to “ rehab “ for Counseling and possibly withdrawal treatment. .... if that happens , afterward you’ll probably never see another opiate unless you make it to inpatient hospice, where they can monitor you full time. Just a FYI: . Doesn’t seem to matter if you are a stage 4 croaker or not ... the organizations ( Kaiser in this case ) seem prone to protect themselves first when it comes to the federal opiate abuse mandate.

Bodysculpture profile image
Bodysculpture

It wont be in vain Brent Whatever it takes

My prayers are with you

Realistic profile image
Realistic

Good luck, really hope that your treatments are successful. SheilaF xx

stay strong brent

j-o-h-n profile image
j-o-h-n

Definately listen to Kaliber..... he was Dr. Timmothy Leary's mentor....

Quoting you "I might get grouchy and irritable" YOU? en aucune façon NFW....

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 01/28/2021 6:52 PM EST

You may also like...

Find and Zap?

or 68-Ga PSMA scans to locate any disease. Then zap anything that shows up with radiation. He calls...

ADT Holiday to Locate and Zap Metastases?

doing an axumin scan. If there are no bone or non-lymph visceral mets, then radiate the pelvic...

Finally All Mets Zapped!

string. That’s all that shows on GA68 PSMA PET/CT scan. Hoping Dr. Phuoc Tran’s (John Hopkins)...

One large \"zap\" for painful bone metastases is enough

com/2019/08/one-large-zap-for-painful-bone.html If your radiation oncologist is planning on...

effectiveness of zapping what is seen on PSMA scan

those who have had radiation on tumors seen on PSMA scan, how long did the radiation put your...