Decipher: Anyone have experience with... - Advanced Prostate...

Advanced Prostate Cancer

22,373 members28,135 posts

Decipher

VN6465 profile image
14 Replies

Anyone have experience with the Decipher genetics program, it’s’ effectiveness and related cost?

Written by
VN6465 profile image
VN6465
To view profiles and participate in discussions please or .
14 Replies
Tall_Allen profile image
Tall_Allen

They have two- one based on biopsy for men on active surveillance; the other based on whole-mount prostate tissue for men on the fence about salvage radiation. It doesn't appear that you fall into either category. It is expensive (about $4000) if you just feel like knowing for no useful reason. What decision are you trying to make?

LowT profile image
LowT in reply toTall_Allen

Is it covered by Medicare?

Tall_Allen profile image
Tall_Allen in reply toLowT

The OP had primary radiation, so I doubt Medicare would approve it.

VN6465 profile image
VN6465 in reply toTall_Allen

Appears Decipher is not appropriate if one has completed radiation treatment? You used the term OP in a recent response. What is that an abbreviation for - don't understand all the terms yet.

Tall_Allen profile image
Tall_Allen in reply toVN6465

OP=Original Poster, which is you - you started this thread.

That is correct that Decipher is not valid if you've already had primary or salvage radiation. It is only used post-biopsy for men considering active surveillance, or post-prostatectomy for men considering salvage radiation. It is an aid to decision-making.

Ab75 profile image
Ab75

I had the test done. They wanted 4000 for the test but I talked to a company representative before the test and locked in a price of 100.00 dollars. Later on the representative informed me the company was changing to a charge based on income.

Peppertree602 profile image
Peppertree602 in reply toAb75

I had it done after biopsy which came back at .9 which is crazy high and then after my RP which came back at .41 which is low risk. So much less anxiety now even with a gleason 9 and T3b grade. Insurance covered 1/2 and they are working with me on the other portion now.

Jmr11820 profile image
Jmr11820 in reply toPeppertree602

I had it done post prostatectomy and mine was high risk. That said, my doctors treat it simply as another piece of information to consider with regard to treatment. They DO NOT use the DECIHER GRID in treatment decision making. What do your doctors tell you about your new, lower DECIHER? Has it changed anything for you, other than peace of mind?

Peppertree602 profile image
Peppertree602 in reply toJmr11820

no they treat my cancer as a G-9 and t3b and decided to simply watch the PSA. But he did say maybe less aggressive might be something to consider going forward. My 6 week PSA came back (last friday) as undetectable which they were all surprised by and said lets run it in 6 weeks and see if it reaches 0.1 first and then do radiation and lupron. So for once I am in the good minority because he told me most men with my numbers are 0.1 or higher as a first PSA.

Jmr11820 profile image
Jmr11820 in reply toPeppertree602

Nice, feels good. Congratulations and best to you.

Peppertree602 profile image
Peppertree602 in reply toJmr11820

Thanks and same to you as well all the best! Always staying optimistic and looking at medical and holistic options.

I decided to also do this RGCC "Greek test" and therapy because I thought it could not hurt.

Jmr11820 profile image
Jmr11820 in reply toPeppertree602

Just Googled it. Never heard of it. How did you find out about them?

Peppertree602 profile image
Peppertree602 in reply toJmr11820

I live in Sarasota 1/2 the year and Milwaukee the other 1/2 and I like to seek out options vs. just standard carpet bombing. Now once I need it I will do it but all of this holistic stuff also can ONLY help. So I found this MD who is holistic based

flimc.com/

So after my initial diagnosis I am doing the IST protocol whereby my T cells receive a boost to fight off the free floating remaining PC cells.

Jmr11820 profile image
Jmr11820 in reply toPeppertree602

Fantastic. So much info out there. Keep us posted on your progress if so inclined. Best.

Not what you're looking for?

You may also like...

DECIPHER TEST?

I am a fit 67 year old now and was diagnosed with PCa with Gleason 9, RP 8/2019, and PSA of .01...
JPnSD profile image

DECIPHER news

I read yesterday that a new phase RTOG 9601 validates DECIPHER as a predictor of OS, and also...
Jmr11820 profile image

Decipher Results

I now know I’m in the 10% worst category for genomic results. 20% chance of Mets in 10 years 25%...
Elbers123 profile image

Decipher GRID report

I received my Decipher GRID report and have only started to digest the information. My Post-Op...
kpminn profile image

Decipher and me

I'm having trouble with my urology team that are doing my TRUS/Fusion biopsy next week. The doc is...
RazorSaw profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.