Melatonin: Anyone used Melatonin to... - Advanced Prostate...

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Melatonin

StuartS profile image
99 Replies

Anyone used Melatonin to help with sleep issues? Having difficulty in getting back to sleep after 3 or 4 nightly toilet visits. Dr suggests that I try 2mg Melatonin for 13 weeks but not too sure if that will knock me out, and end up causing more issues if I don't wake to go to the toilet!!! Any comments / advice appreciated. Thanks.

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StuartS
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Magnus1964 profile image
Magnus1964

I use melatonin to help with sleep issues. Not all melatonin is the same. I will send you a private message to give you the name of the product I use.

524nurse profile image
524nurse in reply to Magnus1964

Which do you recommend. After Costco stopped selling schiff brand I’ve had difficulty achy sleep as many brands are not effective. Thanks kim

Magnus1964 profile image
Magnus1964 in reply to 524nurse

I like a brand called Mid-Nite. 2 tabs in the early evening. You can take additional tab late at night and still wake up refreshed.

524nurse profile image
524nurse in reply to Magnus1964

Thanks!

StuartS profile image
StuartS in reply to Magnus1964

Can't track down the product Mid-Nite in UK. There is a product called Rescue, which is essence extracted from White Chestnut Flowers, and appears to assist those suffering from sleep issues, though to date, not many have recommended this product.

Magnus1964 profile image
Magnus1964 in reply to StuartS

Try Amazon

in reply to Magnus1964

Hello Magnus1964! Could you pls advise the name of the melatonin you use?

Magnus1964 profile image
Magnus1964 in reply to

It's not considered kosher to mention brands on the forum. I will send you a Chat with that information.

Jimhoy profile image
Jimhoy

I went through sleep studies and all that bullshit!!! Ended up on a CPAP because ???? Yes I snored but slept very well before ADT and EBRT.

Anyway, that did not help (except for snoring(the wife is thankful)) but they said up to 10mg of Melatonin is completely safe. I found Nature’s Bounty, Duel Spectrum Melatonin 5mg Bi-Layer. One layer to fall asleep and one to keep asleep. This seamed to work better than the previous 4x2mg I started with.

Adding A/c for the hot flashes helped too!!!

Good luck

Jc

StuartS profile image
StuartS in reply to Jimhoy

Many thanks for the info Jimhoy.

tom67inMA profile image
tom67inMA

I use melatonin 5mg as needed for sleep. Never had trouble waking up to pee no matter the sleep aid. I'd use it more often, except that at the moment I'm taking other meds that induce sleep as a side effect and don't want to sedate myself any more than necessary.

One benefit of melatonin with prostate cancer is that it's rumored to help suppress the AR-V7 mutation that can cause castration resistance. If I recall correctly, at least one member is taking 40 mg a night for this reason.

Overall it seems to be one of the better choices in sleep aids.

in reply to tom67inMA

Higher doses are said to have cancer fighting properties . Try 20 mgs you might like it ?

StuartS profile image
StuartS in reply to tom67inMA

Hi Tom..., Appreciate the information. I guess I will be limited to the dose prescribed by my GP. Though the link to suppressing AR-V7 appears to be an additional benefit!

in reply to StuartS

Melatonin is over the counter so why do you feel limited to your GP's prescription? No prescription needed. Experiment and see what works for you. You can check online to see what interactions melatonin might have with other medications you are taking.

StuartS profile image
StuartS in reply to

Hi WSO, A further check shows that Melatonin isn't technically banned in the UK- but it is classed as a medicine, and while it can be prescribed, it is only in a 2mg dose and is only for those over 55 who suffer from a short term sleep disorder. So, therefore, it cannot be purchased over the counter and a medical professional is required to allow use. This notice is dated 28 Jan 2019. Of course, there are other suppliers just across the water in France who are willing to supply to UK customers.

tetech profile image
tetech in reply to tom67inMA

Dr Strum used to to recommend up to 20 mg of melatonin as an anti-cancer measure. Presently I am on 3mg. The body produces about 2.5mg in youngsters. Without it I can't sleep in an unfamiliar place like a hotel.

dougnola profile image
dougnola in reply to tom67inMA

I do 3-5 mg per day. Helps me sleep very well with no drug hangover. If there’s some suppression of castrate-resistance all the better! :)

Hex40 profile image
Hex40

I use 5 to 10 mg of Melatonin plus a prescription med. The two combined work pretty well.

StuartS profile image
StuartS in reply to Hex40

Hi Hex40..., Thanks for the response.

I have the same . Except for me it 7 per night. I take 4.5 naltrexone and 20 mgs melatonin prescribed by a Md naturalpathic .. some men take 40 mgs melatonin.. no matter what you take your urology will poke you awake . The important part is to be anle to go right back into deep sleep.. exercise promote sleep also . The melatonin and the naltrexone will take that anxiety and rolling around not beating able to sleep away . It helps me . I’m thinking about upping my dose to 40 mgs. I did it to see what happened one day last week . I Slept even better with the 50 mgs.I have wild dreams each and every night. Finning thru the jungle. Don’t know who’s chasing me ...but they haven’t caught me yet. I Don’t remember any of my active dreams the next day . Take care 💤

StuartS profile image
StuartS in reply to

Whimpy-p..., Interesting read..., Thanks. In UK, melatonin is a controlled drug so I have to take the amount prescribed by my Dr. I guess I will give it a try and see how it goes, though, I would be looking for a quick side step in the jungle and wait to ambush whoever was chasing me!!

in reply to StuartS

Sorry to hear about the U.K. restrictions..Melatonin is naturally produced inside of us . Crazy they limit it to you . Naturalpathics believe in a much higher dose . My nighttime adventures aren’t pretty . Between the night sweats and polo up to pee 7 times , running ftom whoever’s chasing me has become my routine for five years . 😂😂😂crazy business APC is . Take care

in reply to StuartS

Can you order melatonin from Vitacost or Amazon? I wonder if they are restricted in shipping to the UK. Be a rebel.

StuartS profile image
StuartS in reply to

Hi WSO

Obtaining the Melatonin is thankfully not the issue, as my local GP is happy to prescribe this for me and I get all medication free in Scotland. The main concern that I had was that the Melatonin might knock me out and cause more problems by me not making it to the toilet on time!!!. That fear has more or less been removed by first-hand info from Melatonin user's who responded on this site. Though I have no doubt that Melatonin could be shipped direct from the US, I think that UK customs might seize it!

monte1111 profile image
monte1111 in reply to

Yes sir. When I do remember my dreams, I'm usually in an impossible situation. Wait, I'm in an impossible situation now! Maybe not? Friend just had 9 hour surgery for stomach / esophagus cancer Thursday. He's looking good. May have dodged the bullet! Hope everyone here can find the cure. Just as you did. I'll buy you a hamburger, if you pay me Tuesday.

StuartS profile image
StuartS in reply to monte1111

Hi monte1111

You should join the j-o-h-n school of light hearted comedy

monte1111 profile image
monte1111 in reply to StuartS

Sleep is a huge issue. Can tell from so many replies. I'm down to about 3 times now. First 2 I have a snack. Now listen to Spotify podcasts on 2 paired Echo's. Set timer for what I want. Works for me. I tried out for the j-o-h-n school of comedy. I was rejected and his ex-wife is now chasing me with a double bladed axe.

in reply to monte1111

Hahaha😂😂😂😂✌️

in reply to monte1111

I thought he was kidding about her?👏🏼👏🏼

in reply to monte1111

I have a friend that went they the same esophageal C.. he pulled thru . Good luck to your friend.. waking up from a nightmare and then going into a night sweat session is a charm. Try that 7 per night and you can see my night moves.

EdinBmore profile image
EdinBmore

ADT affected my sleep. Tried Melatonin but it gave me weird weird dreams. Tried for a wk hoping I'd adjust. Didn't happen. Also tried OTC sleep meds. Nothing helped. Recently, i tried medical pot. Not smoking. Gummies. 20mg. Worked! Started about an hr before bed. Slept the entire night!! First time in year and a half while on Lupron. Good luck! Edinbaltimore

StuartS profile image
StuartS in reply to EdinBmore

Hi EdinBmore..., Unfortunately..., can't legally obtain pot in UK at this time however, new government might change that but not holding my breath!!!

in reply to EdinBmore

Go gummies!

MaxBenjamin profile image
MaxBenjamin in reply to EdinBmore

My brother sends me his "specially made brownies" which include a certain amont of pot (not sure what the actual dosge is). I take one about an hour before hitting the sack....works like a charm and have not experienced any side affects whatsoever in the 2 years I've been on these brownies.......

in reply to MaxBenjamin

Good brother!👍

in reply to EdinBmore

Yeah I like those indica gummies. I take a 10 mg gummy and slice into 4 pieces and take just one 2.5 mg dose at night. It seems to work. If I take too big a dose I dream so furiously that my dreams wake me up.

keepinon profile image
keepinon

I have had a few episodes of a little leakage at night after surgery and radiation and I am nervous about taking a big dose of Melatonin all at once. I want to make sure I wake up in time.

My routine is read a book for about 15 mins in bed which gets me drowsy and I fall asleep pretty quickly. I wake up 3 times a night to pee, and then aftereach time I bite off about 1/3 of a 15 mg chew-able Melatonin. That covers my 3 trips to pee a night and I fall back to sleep pretty quickly after each trip.

I too have some pretty vivid dreams, but for the most part I enjoy them. I wish my mind was that creative when I am awake!

in reply to keepinon

I hear ya!

StuartS profile image
StuartS in reply to keepinon

Are the dreams you remember of a similar theme or different each night? Just interested.

keepinon profile image
keepinon in reply to StuartS

different every night. not related in any way that I am aware of.

StuartS profile image
StuartS in reply to keepinon

Thanks..., just wondered!

in reply to keepinon

I’ve been running on this same dream routine five years . Some night I sleep sound others I’m running thru the jungle and I’m the prey!

keepinon profile image
keepinon in reply to

Don't let em catch you!

in reply to keepinon

Runnin Man !🏃🏽‍♂️

fluffyfur profile image
fluffyfur

I take 5 mg of melatonin a night and I still don't sleep. PS I have heard to take it earlier in the evening, like two hours before bed time. It doesn't work like a sleeping pill and just knock you out.

You will get up. My research medical oncologist would take 5 -10 mg flying overseas for seminars. He recommended I do the same. Reason. If emergency, you’ll get up. I originally asked about Ambien. He said it emergency, I would no t get up.

I take 5-10 mg when needed.

GD

StuartS profile image
StuartS in reply to

Hi GD

Many thanks for your response. This, along with other comments I have received has helped me move forward. I will be trying malatonin to see if it helps.

kreg001 profile image
kreg001

I use Amazon Echo smart speaker to play Ocean Sounds. Close my eyes and imagine the beach at night. Really helps after getting up to pee. Echo turns itself off.

StuartS profile image
StuartS in reply to kreg001

Hi Kreg001

Thanks for your comments.

I too have tried using sounds and easy listening classical music in a bid to get to sleep. Normally works ok at first but then at around 01:30; 03:15; 04:50 and 06:40 it becomes a bit difficult to fiddle with the controls, and that just wakes me up more!!! I am going to try the melatonin.

in reply to kreg001

There's an app for that on your iPhone. I think it is called 'Rain'. I need it for a touch of tinnitus such that absolute quiet is not good.

kapakahi profile image
kapakahi

I ried melatonin years ago - I got nightmares, truly bizarre and vivid, reminding me of hallucinations I had when I had encephalitis as a kid - so it didn't give me good sleep. Didn't do well with 5-HTP either - knocks me out but again the dreams making me feel like I'm awake all night (but it's a naurally occuring amino acid that the body turns into serotonin among other things). Other herbal sleep aids did nothing for me. When I didn't take anything for sleep I'd wake up at like 3am and start having catastrophic thoughts, like "I'm doomed! I'm gonna die and not exist anymore!" and wind up petrified and enormously anxious and never get back to sleep. Told my regular doctor about it - waking up and not being able to get back to sleep - and he prescribed mirtazapine (Remeron). It's an anti-depressant mainly (and I already take bupropion), but it also can be a sleep aid, esp. for sleep disturbed by depression and anxiety (which PC has given me plenty of) and it's the only thing I've taken that allows me to get back to sleep without stressing - and that includes getting up to pee (and now that I'm hooked up to a CPAP I just keep a pee bottle next to the bed so I don't have to unhook and rehook myself, which would make me wake up more). The normal dose is 15mg, but that knocked me for a loop so I've been taking 7.5mg (half a pill) for a few years now and it's worked really well, haven't had any side effects once I adapted to it, which took a week or two.

en.wikipedia.org/wiki/Mirta...

StuartS profile image
StuartS in reply to kapakahi

Hi kapakahi

Thanks for your comments. Would not have liked to have gone through what you have, and hopefully you are in a more settled place now. Although I have been most fortunate in that I have not unduly worried myself about my cancer, this is more due to fact that my wife (53 years married), developed dementia some 4 years ago and has gradually worsened over time. Nothing like having my mind focused away from my own issues! Intend to try melatonin and see where that gets me, hopefully a good nights sleep for once.

Ramp7 profile image
Ramp7

I take 20mg / nightly for the possible positive cancer effect. Have not noticed any effect on my sleep pattern.

Love your dog.

StuartS profile image
StuartS in reply to Ramp7

Hi Ramp7

Thanks for your input. Is that a merle Border you have there?

My constant sidekick is a 4 YO Border bitch (Islay). We do 4 or 5 miles a day across country and woodland, helping me keep reasonably fit. She is fantastic company, extremely intelligent, terrific entertainer and sooo spoiled..., but she gives so much more back in companionship and her eagerness to please just never stops.

Ramp7 profile image
Ramp7 in reply to StuartS

Skye is a 3 year old Merle Border. Medium drive. I wish I had something more for her to heard other than chickens but she doesn't complain. Great for hikes and fly ball. In fact her birth day was on Valentines Day. And yes, awesome companion and friend to all. We truly do not deserve these fine partners. I hope to get up to 4 miles hiking this Spring.

One last thing, I recently read Jane McLelland's book, How to Starve Cancer, very interesting.

StuartS profile image
StuartS in reply to Ramp7

Yes..., Borders are tops! Good luck in your hiking efforts.

I might just give that book a quick scan and see what it has to offer.

Thanks again for your input.

Egerdes profile image
Egerdes

CBD oil works great for me.

StuartS profile image
StuartS

Hi Nalakrats.

Many thanks for your input. I have found your regular contributions to this site interesting, and intend to investigate further the list of natural herbs you listed to see if I would benefit from any of them.

My main issue was what the effects would be in taking melatonin, as my GP was not too sure how it would affect my bladder signals when I need to 'ease springs' through the night. As I am taking tamulosin, that also has a bearing on the issue. Although the supply of melatonin is not an issue, I am aware that Amazon and other suppliers will supply melatonin direct from the US to UK customers, the problem would be at the UK customs end!

My original fears of taking melatonin and failing to wake when my bladder signals, have been put to rest by feedback from other contributors. My next course of action will be to see my local GP and arrange for a course of melatonin and see where that takes me. Dreams or not...., I am looking forward to getting a more restful night and not waking every morning feeling like I have been through a cycle in the spin-drier!

in reply to StuartS

Order through a Continental Amazon branch, like Amazon.de. They will not have to pass customs, for now, that is.

StuartS profile image
StuartS in reply to

Hi justfor..., thanks for the pointer

LearnAll profile image
LearnAll

I Tried CBD oil without ANY THC and was pleasantly surprised with quality sleep and refrshed feeling in morning. Its somewhat expensive around $60 a month for a good brand but it does help.

Garbonzeaux profile image
Garbonzeaux

I take 10mg (Swanson) several times a week. It does not seem to affect my sleep at all (guess I already sleep pretty well), and does not keep me from waking up to go pee, which typically happens once or twice a night.

j-o-h-n profile image
j-o-h-n

I don't take anything to fall asleep, only one problem however, I keep dreaming that I'm sleeping...

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 02/15/2020 12:45 PM EST

StuartS profile image
StuartS in reply to j-o-h-n

I just knew that if I waited long enough j-o-h-n would be along with a quip. Thank you for not disappointing!!

And good luck, good health and good humor to you.....

j-o-h-n profile image
j-o-h-n in reply to StuartS

FYI I do sign autographs...... (slight fee)....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 02/15/2010 1:27 PM EST

in reply to j-o-h-n

I've dreamed more than once that I was awake and couldn't fall asleep.

StuartS profile image
StuartS in reply to

Cant quite get my mind round that!!! I think I need another single malt!!!

j-o-h-n profile image
j-o-h-n in reply to StuartS

This one's on me....

What is the difference between a battery and whisky ?

A battery has a negative

side.

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 02/16/2010 10:07 PM EST

StuartS profile image
StuartS in reply to j-o-h-n

I like that..., Thanks. Now..., how to make the perfect Martini:

1. Pour Gin, Vermouth and olives into the trash can where they belong.

2. Pour Whisky (preferably single malt) then drink!

j-o-h-n profile image
j-o-h-n in reply to

Funny, cause a few times I fell asleep and dreamed that I couldn't wake up....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 02/16/2020 8:23 PM EST

I have had great success with a product from Costco called Sleep Aid. I take 1/2 a pill before I want to go to sleep and then take 1/4 of a melatonin each time I wake up to pee in the night. Sees to work.

RonnyBaby profile image
RonnyBaby

Some tolerate melatonin better than others.

I use a herbal cocktail to sleep (I'm a hardcore case - insomniac) which includes at least 20 mg of melatonin.

Melatonin hangovers might be an issue for some, but for me - not a problem.

A small dosage (less than 5 mg) should not become a big deal.

I doubt that it would be a negative for you.

Trying to fix your sleep cycle would be a good thing for your overall well being.

If melatonin doesn't work, there are other things to try that are non habit forming or addicting.

Some include ashwaganda, L-theanine, passion flower, magnesium (there are varied forms that you'd need to look at), valerian, hops flower, chamomille and a few others to consider.

Some of the herbals are blended to make a mix that offers some of them combined (see Amazon for example - herbal / sleep supplements).

They don't cost much to try and find out.

Hopefully, you'll find the right 'aid' to find some relief.

These 'combos' helped me a lot .....

StuartS profile image
StuartS in reply to RonnyBaby

Hi RonnyBaby

Many thanks for the details. I have a busy few days ahead looking at the various solutions offered by the brotherhood!

StuartS profile image
StuartS

Hi tce...,

I am in UK so not many US Costco medical products are replicated here. There are however many sleep products offered but product testimonials vary from very good to Rubbish! I am going to try the melatonin from my doctor and see how that works before I venture into the great sleep medication jungle!!

dave100 profile image
dave100

I take 2 10mg capsules before bed -- works great for me and no, I don't sleep through toilet trips :-)

herb1 profile image
herb1

StuartS: try a half slice of american or swiss cheese after you visit the bathroom. I find it quite effective at letting me get BACK to sleep. I use low salt, low calorie swiss; there'a an amino acid in the cheese that helps--for me.

herb s

monte1111 profile image
monte1111 in reply to herb1

I became addicted to extra sharp cheddar cheese with the saltiest crackers I could find when I was on chemo and trying to gain weight. (The salt was for sore throat which I blame on dexamethasone.) Didn't know about the amino acid. Sore throat is long gone. But still love them crackers and cheese after nighttime visits to bathroom. This is from someone who once said never eat crackers in bed. Ok. No jokes. And I don't like Black Russians. Thanks for the laugh Nal. And Happy Anniversary to you and the wife!

westof profile image
westof in reply to monte1111

Hmm... Hey Monte, I thought I was the one with early morning cheesy habits (although, reflecting on some of my posts, it makes perfect sense)!

On any given night, I will awake to sharp Cheddar, fresh Mozzarella or even a bit of Gouda!

Saltines! Absolutely!

However, I have to wait a few hours, before I take my Zytiga! 😁

Best,

AJ

monte1111 profile image
monte1111 in reply to westof

I think we're both a little cheesy.

in reply to monte1111

It ain’t easy , being cheesy !

StuartS profile image
StuartS in reply to herb1

Hi herb1

Never thought of that. Might just try a nice fat free Emmenthal or Gouda slice during the night and see how that pans out... 🥃🥃 Might go down nicely with my large single malt. 😁😁😁

VictoryPC profile image
VictoryPC

When I began this journey 10 years ago not sleeping was the first thing I encountered. It got worse with ADT and Radiation. I am alive and sleep well because of one thing. Xanax.

StuartS profile image
StuartS in reply to VictoryPC

Thanks for the info...

donovan0932 profile image
donovan0932

I get Melatoin on Dr

Script for 20 mg and have been taking it for 20 years

Sleep well even with 3 times a night toilet visits

StuartS profile image
StuartS in reply to donovan0932

Thanks..., good to know that it doesn't stop the bladder alert during the night...

j-o-h-n profile image
j-o-h-n

I will repeat myself by saying the following again. ( I just hate repeating myself).

Night time get cozy under the sheets/covers, close your eyes and build a log cabin with your imagination. Cut the lumber (trees) drag and shave them. Build foundation, pile the logs on and etc. I never get past the first floor cause I zonk out. I M A G I N A T I O N.... Re-start from the beginning if you have to wake up and Pee... If you want first build an OUTHOUSE for peeing.

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 02/15/2020 7:48 PM EST

monte1111 profile image
monte1111 in reply to j-o-h-n

You just need to repeat the instructions please. We are shaving the trees because they are in drag?

j-o-h-n profile image
j-o-h-n in reply to monte1111

I actually meant carry them off and then shave their limbs....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 02/16/2020 1:17 PM EST

monte1111 profile image
monte1111 in reply to j-o-h-n

What else are you building with your imagination. Logs? I mean, really?

j-o-h-n profile image
j-o-h-n in reply to monte1111

A 59 Chevy.....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 02/16/2020 1:19 PM EST

Hex40 profile image
Hex40 in reply to j-o-h-n

I imagine I'm in the cockpit of a B52 bomber starting the engines and taxiing down the runway. I rarely make it to takeoff because I fall asleep. What can I say the plane is as old as me.

j-o-h-n profile image
j-o-h-n in reply to Hex40

Thanks for the tip.... next time I think I'll build a Boeing B-52 Stratofortress instead of a log cabin ...

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 02/16/2020 8:08 PM EST

CrocodileShoes profile image
CrocodileShoes

Melatonin works. I've been taking it for jetlag issues for years. It knocks me out, but I set an alarm every 3 hrs, due to a stoma) I always wake up. What I wasn't aware of was its potential anti-cancer properties. Does anyone know if there are any long-term issues with taking high doses of Melatonin?

in reply to CrocodileShoes

Only one is that your natural ability to produce it can be halted..I’ve taken 20 mgs per night for five years. I’m sure that my natural production is done.

Miket218 profile image
Miket218

I occasionally use the walmart brand of melatonin and it’s very effective. I fall asleep in minutes. The downside is I feel drowsy the next day for a few hours.

sjc2 profile image
sjc2

Hi Nalakrats! Always appreciate all your info!! Would chewable Melatonin tablets be the same as sublingual, if you let it dissolve under your tongue? Maybe give it a bite, then shift in under your tongue?

sjc2 profile image
sjc2

In your list of Herbs above, if I wanted to try the Lavender with Valerian Root, what dosage & strength would I need? Can you tell me what brand you use, please?

sjc2 profile image
sjc2

Thank you so much!! I assume she just takes 1 cap. of each, 40 min before bed, right?

Magnus1964 profile image
Magnus1964

Glad to hear it works for you.

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