By way of thanks for all well wishes received, to add a little further information and to answer questions from initial post :
DIAGNOSIS
I will update my profile shortly.
WHY HEIDELBERG?
London Clinic , Devonshire Place , were firmly stating in February that Lu177 treatment (no Act225 ....they will not be doing that even when they do get set up ) , would be available there mid March 2019 .......they backtracked on that rather promptly stating that the procedure would not be available for the "foreseeable future " ...no other information forthcoming.
VISION trial is certainly not up and running at Guy's and of course is randomised in any event. I haven't researched other UK hospitals re VISION.
Heidelberg pioneered this lot I believe and from first contact their efficiency impressed me so did not delve into the other clinics. You will have read how quickly matters progressed once I supplied the information.
DOSAGE
2 MBq Actinium225
6 GBq Lutetium 177
RADIATION LEVELS
On morning of second day ahead of leaving Floor 4 for scan on ground floor ( so you are out with general populous of the hospital) you will be scanned for radiation levels. I was told then .....approximately 18 hours after the infusion .....that my levels were below legal limit for release at that time. The 48 hour German law is just what it says ....law ...... and is perhaps over cautionary but so be it . That said when I asked on the afternoon of the second day if I could leave the building for an excercise walk it was flatly refused the nurse stating that I may need to use toilet facilities outside of the unit. That suggests (TA) that the Nuclear Medicine Unit would indeed have to have holding tanks for waste disposal .
One gent asked on visitors in connection with the above. By the evening of the first day.....8 hours or so after infusion ....the staff mainly disregarded the use of the radiation screen that I have described and indeed had to have direct contact for checking blood pressure, replenishing of drips, removal of cannula etc. I cannot see a problem having a visitor within the room.......use the screen for its given purpose and I am sure the staff will guide you if there are time restraints.
DRIP INFUSION
3 litres over first day of " Sterofundin "
ANTI SICKNESS
I was given a five day supply when I left the hospital : I had no nausea nor consideration of it but I completed the course and have had no problem since.
TOILETRIES
Take your own together with towel. Cleansing gels are supplied as is tissue and wipes which you are requested to use on your possessions....phone, iPad etc ahead of leaving.....again cautionary conduct.
ELECTRIC SOCKETS
EU 2 pin round......same as one would use in Spain, France etc.
ADDITIONAL BEDDING
Will be supplied as requested....I needed a couple of pillows and they were brought two minutes later.
RAIL
Connection Frankfurt / Mannheim / Heidelberg.....about one hour......it's all on the net and tickets if purchased at the red liveried DB ( Deutche Bahn) offices are A4 page size with what looks like a big bankers draft on the bottom...being the ticket. The top part details everything clearly .....times , platform, lettered sub sections of the platform....just follow the detail.....very easy. Cost 27 euros each way.....you can buy a cheaper fixed train time ticket for about 21 euros but I'm not sure what happens if you miss the one you've paid for,....ie do you lose the lot. I paid the 27 euros and had complete flexibility of travel.
AND ON A "LITE" NOTE
I made a joke about all I needed further with my supper was a lager : 2 minutes later a glass and a bottle of very chilled " lite" lager arrived !
Hope the above answers the raised points.
Michael UK
LU177 in Heidelberg 
Doctor Says Its Time for LU177
