Bone mets to spine

[Tua32427]

Is there anyone that has had issues walking or lost the ability to walk from bone mets to spine?

[Hidden]

I have three mets on the lumbar region of my spine. They ache once in a while but i'm still able to run 5 miles, 4 times a week. A recent MRI of my lumbar region showed no danger of spinal compression. I have had them for 3.5 years. Oh, i'm 69 years young,

[Tua32427 in reply to Hidden]

Wow that's great that you can be that active. Very inspiring! My father is 72 with bone mets to lumbar and spinal cord compression at t12. He uses a wheel chair now and can barely walk. I was just wondering if will be likely to regain his mobility.

[Hidden in reply to Tua32427]

We had a member here who just passed after 12 years of fighting this monster. He had spinal compression that put him in a wheelchair. He went from his wheelchair to a walker, to a cane, to a slight limp. It's how bad he wants it. Never give in.

[Tua32427 in reply to Hidden]

Thanks. Good to hear. My dads going on 9 years of battling. They did radiation on the site of compression to help ease pain and now hes doing chemo. He keeps fighting treatment after treatment. Anybody here try the radium or xofigo?

[ctarleton]

I don't have the condition now, but someday I might. You might run the idea of a one day procedure called at Kyphoplasty or a Vertebroplasty past his doctors, or in a referral to a specialist in such things, ... and see what they have to say. It might bring some symptom relief? Or slow further damage in the compression area? Allowing some subsequent rehabilitation to recover function? (I'm not a doctor.)

Charles

[BigM62 in reply to ctarleton]

i had a kytoplasty to shrink a large tumor on t12 that was causing nerve pain and in danger of fracture. after felt like they took a hammer to me, but nerve pain stopped dead. feels so much better.

[Tua32427]

Thank you. I will look into it. I know his spine dr had said they couldn't do surgery because of the extent of damage. I'm not sure if those are surgeries. They did radiation to help with the compression. He has an MRI next week to see if the tumor shrank.

[ctarleton in reply to Tua32427]

Here are a couple of videos that give a general idea of the two procedures.

spine-health.com/video/kyph...

spine-health.com/video/vert...

Charles

[Tua32427 in reply to ctarleton]

Thanks I believe kytoplasty is something that was discussed by my fathers spine docote

[blindsided]

I was diagnosed May 2016 when over the period of several days I became paralyzed due to a tumor compressing my spinal cord at T9. They performed a laminectomy to T7-T10. I had 20 doses of radiation to that spot, was in a wheelchair and had to wear an extremely uncomfortable plastic 'cocoon' on my torso. I spent $5k out of my own pocket for hyperbaric oxygen treatment (20 treatments), after the 2nd week I was able to use a rolling walker, and by the last treatment I was able to walk using a cane. Its been over 2 years and I'm feeling pretty good considering...I have/had eligard, casodex, zometa, xgeva, zytiga, xtandi, provenge, ketacozenole, and currently getting my 5th xofigo infusion this week...been quite a ride so far!!

[msnik in reply to blindsided]

Thank you for posting this. I am curious about the hyperbaric oxygen treatment. How does it help? Thanks.

[Tua32427 in reply to blindsided]

That's amazing. Thank you for posting. I will have to look into that. My father had xofigo around Christmas time and is now on docetaxel.