So I’ve now been told that the PE that I had at Christmas is with me for life. Not sure how I feel about it at the moment. This breathlessness is really getting me down and I’m finding it very difficult to cope with being so tired all the time. I had got used to the idea of being on Apixaban for life and thought that was the last of the shocks but this one has really knocked me for six
PE: So I’ve now been told that the PE... - Anticoagulation UK
Poor you. You should improve a bit, though. It took nine months before I felt better, and even now I have days - or hours, mostly, usually in the evenings - of not feeling all that great. Can you schedule a daytime nap into your routine (not everybody can, I know)? And perhaps a short walk, if only 2-3 times a week? Every little helps, as the advert says, but it's true!