Welcome to our community

At Action Radiotherapy we are often approached by radiotherapy patients and their friends and families who would like to share their experiences with others. We have created this community in the hope that you can use it to simply connect with others or to ask advice, share tips, voice concerns or discuss strategies.

Why not leave a short comment below and introduce yourselves. Give as much or as little information as you like about your circumstances and experiences.

Feel free to ask your own questions if there is anything you would like other people's opinions or advice on. This is your community!

5 Replies

  • I was diagnosed with Breast Cancer on December 23rd 2014, I had an op, 6 sessions of chemo and 4 weeks of radiotherapy, now on tamoxifen and loving life x

  • I was diagnosed with breast cancer in August 2015. Had chemo, surgery and radiotherapy. I finished my treatment in April. On tamoxifen for 5 years

  • Lumpectomies for breast cancer October 2013, no chemo, radiotherapy January 2014, discharged from Oncology March 2014, just taking tamaxofen now, and had 2 clear mammograms, 😀😀😀😀

  • Hi, I had Steriotactic Radiosurgery (SRS) in 2005 for my Brain AVM. The surgery wasn't very well administerd so the following day I had Chronic Pain on my right hand side starting from the SRS surgery site at the base off my brain/top off my spinal cord. To top things off the Raidiation spreaded to healthy Brain Tissue (Radiation Indused) This caused me more Damage & after the 3yr timescale it hadn't worked meaning further unplanned Brain Surgery for me. The Chronic Pain is 24/7 with no respite & there seems no medications to help me so it looks like it is with me too my ending day's. "Great"

  • Dear all

    Thank you for your stories/comments. I am from Action Radiotherapy. We are currently seeking funding to set up a dedicated professionally manned chat service and phone line for patients undergoing radiotherapy for their cancer. This will be operated by radiotherapy professionals who will be able to offer advice, information and/or support to those who need it, either electronically or on the phone.

    Radiotherapy is amazing but can seem complex to patients. We would be able to signpost patients on the right way forward, understand their options and above all get the right type of radiotherapy for their diagnosis.

    Do you think this is something that would be of interest? Would you have used it or would you use it now?

    Any comments would be much appreciated