Suffering alone: I have been suffering with... - Action on Pain

Action on Pain

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Suffering alone

MarinoSa profile image
3 Replies

I have been suffering with chronic pain for several years to the point where I now suffer with seizures. The doctors just tell me it’s my iron or iron deficiency and I feel alone and helpless. Most of my days are spent in bed and my days are dark. I have two children to care for and the mum guilt is so real.

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MarinoSa profile image
MarinoSa
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LeighBlyth profile image
LeighBlyth

Sorry to hear you are in so much pain. It's can't be easy, especially with two children to look after.

Have you any underlying conditions?

How low are your iron levels and are you taking supplements? - How often have your iron levels been checked?

What other tests have you had?

Seizures should be investigated.

My initial reaction is "time to find a new doctor".

MarinoSa profile image
MarinoSa in reply to LeighBlyth

Thank you for responding!

I have normal iron levels now as I am always taking supplements. They are checked so often that the blood test lady doesn’t even require my details anymore.

I’ve had them all, MRIs, scans, neuro tests you name it.

LeighBlyth profile image
LeighBlyth in reply to MarinoSa

Is that tests to investigate the seizures?

What kind of seizures are you having? How would you describe them?

If your iron levels are now normal they shouldn't be blamed for your symptoms.

If you are happy to share, feel free to tell me about your pain. When did it start? How has it progressed? What hurts, when ...

I've a lot of experience of pain over the years. Some of my story is here if it helps to know a bit about my symptoms:

healthunlocked.com/painconc....

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