Discharged from the Pain Clinic.....😰

[Toplady]

Turns out there’s no more help coming from the Pain clinic, I’ve done all the meds, I’ve done the meditation so that’s my last appointment done.

This Blog Post is all about my feelings and thoughts. It’s a tough old road and who knows where to turn now....?

topladytalks.com/2018/07/06...

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[Buci]

Can you not go directly to the pain clinic and appeal for further help? They should no be able to cut you off. Keep pushing, pushing, don’t give up!! Let us know how things go. Good luck.

[Lakewolf in reply to Buci]

They can now, thanks to Kolodny & Frieden.

All I need is Kolodny’s financials, & I can put them BOTH away for LIFE.

[Lakewolf in reply to Buci]

We MUST fight this with EVERYTHING we have!

I’d much rather have my death mean something than just lie around & suffer like this!

The main thing keeping me going is that I have a ream of evidence on how fake the “opioid crisis” is.

I might just put everything in a document, submit it to the Justice Dept. ... then wait two weeks, & publish it internationally.

I was having severe trouble putting it all together... but I think I can now. It’s worth a try. I’ve lost 13 friends since the nonsense started...and I blame myself every time a chronic pain patient dies of a heart attack or stroke because of inadequate pain relief.

[deejames]

Sorry to hear this. My clinic is trying to discharge me since I stopped the opiates. I want to continue to have facet joint injections as they add to the pain control

Are they basically saying take the drugs but that's all,that is on offer ?

I can only suggest trying to enlist the help of your GP but they are bound by the rules too I suppose.

Sorry not to be more help.

Emotional help is always on hand here though. Take care

Dee

[JerryR]

I’ve been discharged from my pain clinic too!!! Admittedly they have had me on everything- tramadol, oxy, ketamine, lidnocane patches, Quitenza patches, Gabapentins, you name it, ive had it. I’m currently on Buprenorphine for chronic pain, but that doesn’t work either!!!!! They said they can’t do anything else for me the same day my work finally medically retired me!!! I’ve been referred for more cognitive therapy, but that’s the last they’ll do for me!!!

Where do I go now?? I’m 45, I can’t live like this the rest of my days!!

So Toplady, I know exactly how you feel. 😢

[Buci in reply to JerryR]

I have been through all the meds, acupuncture, physiotherapy, mindfulness etc etc, with no improvement. However, last port of call, have seen pain consultant anaesthetist again. In January had bilateral spinal blocks with him- surprise surprise, no help at all!! He is now referring me for a trial of SPINAL CORD STIMULATION. This is for a small device similar to a Pacemaker, implanted, probably in top of buttock, attached to leads which run under spine on top of spinal canal. You then control the device with an external control. You have to see a psychiatrist first, then they have a meeting to decide if you are suitable- so a long long process( the NHS being in the current position that it is!!). Will keep updating as things progress.

Don’t give up yet, see if you can ask about this. It is only offered to people who have exhausted every other avenue. You can find out more in depth information about it on the net. Thinking of you !!

[Toplady in reply to JerryR]

Hi Jerry, thanks for your comment. You sound exactly like me in a lot of ways, I was medically retired last year at 50 and feel sometimes that I’ve been thrown on the scrapheap. I loved my job as a secondary school teacher but one thing that I’ve learned through going on this journey is that looking forward is the only way now to live. Every time I look back and start stressing over what I’ve lost, what I should be, what’s been taken away, my depression starts up which in turn worsens my pain. I’m still waiting for some counselling to help me with this but I know this is what I must do.

I really do know and understand the hell you're going through, I really hope the CBT helps, take care Xx

[Lakewolf in reply to JerryR]

I have words for this...but they cannot be spoken in polite company.

[furrycat]

Furrycat

Hi toplady I'm due to go to pain clinic for first time next month by looking at various feedbacks I don't hold much hope as I have had back pain for 30yrs . Have had most pain killing treatments but nothing has worked so far but have been trying Butec patches and they do help fingers crossed.

[Millie09 in reply to furrycat]

Me too! Tried gaba, physio, can't take tramadol, or amyltrptaline due to liver disease 😏. So after badgering my dr and support letters being sent today via email to my dr , I am at last being referrd to pain management. Been in so much pain this week. My mental state is suffering so I have CBT therapist come to my home.. easier said than done when pain is foremost in your mind 😔. Good luck